Wanting to hear from anyone else who has had this experience - basically what to expect/is there something else going on here which diabetes clinic are not telling me. Daughter is 10 years old, diagnosed 3.5 years ago. She is very independent at self-managing and has a Libre. There have been episodes of snacking without injecting which I though had ceased but am now tightly watching for. Consultant at clinic in February this year was happy with evidence of management in terms of recording and knowledge but (which I agreed with) felt her HbA1c (71) was not good enough - her advice was to consider a pump which we agreed with and I understood that daughter was to be added to the local waiting list for this.
This June a different consultant pulled us in for an early unscheduled appointment, said that daughter's then HbA1c of 76 was putting her at risk of imminent hospital admission (daughter has not had an admission since diagnosis) and insisted on much closer monitoring and manual recording (as well as recording in Libre app) which we are still doing and overall I thought things were improving though far from perfect (identified issues of daughter undercorrecting if not monitored though always bolusing correctly for food and not always bolusing for food immediately when outside house, and unexplained highs frequently but not consistently overnight), judging from appointment we had in August. Further appointment this week (when I explained again that we had agreed to a pump, which neither this consultant nor the DSN apparently knew about) and consultant is insisting on hospital admission for daughter for 3-4 days to identify cause of erratic levels. She presented this as a routine intervention but I have not come across this scenario of hospital admission when there isn't a history of clinical problems caused by DKA or hypo.
Am assuming that intention is to see if levels are still erratic when daughter is essentially in a closed environment and supervised by someone other than parents/school/out of school care (so finding it hard to believe that basically I'm not trusted to care for daughter though I know this is not a helpful way to think) but keen to hear from anyone else with experience of this.
This June a different consultant pulled us in for an early unscheduled appointment, said that daughter's then HbA1c of 76 was putting her at risk of imminent hospital admission (daughter has not had an admission since diagnosis) and insisted on much closer monitoring and manual recording (as well as recording in Libre app) which we are still doing and overall I thought things were improving though far from perfect (identified issues of daughter undercorrecting if not monitored though always bolusing correctly for food and not always bolusing for food immediately when outside house, and unexplained highs frequently but not consistently overnight), judging from appointment we had in August. Further appointment this week (when I explained again that we had agreed to a pump, which neither this consultant nor the DSN apparently knew about) and consultant is insisting on hospital admission for daughter for 3-4 days to identify cause of erratic levels. She presented this as a routine intervention but I have not come across this scenario of hospital admission when there isn't a history of clinical problems caused by DKA or hypo.
Am assuming that intention is to see if levels are still erratic when daughter is essentially in a closed environment and supervised by someone other than parents/school/out of school care (so finding it hard to believe that basically I'm not trusted to care for daughter though I know this is not a helpful way to think) but keen to hear from anyone else with experience of this.
