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How can i join the Pancreas transplant list?

J

Jdizzy135

Newbie
Messages
3
Hello,

i have just been researching this online and saw that within the NHS you can recieve a transplant but it seemed most likley to be suggested if you were experiencing Kidney failure as they would transplant new Kidneys as well in order to make sure the Pancreas is supported.

I was only diagnosed last year and i am 19 in October, i dont want to sound selfish though as i realise many people have lived with it for many years! I have decent control but i do hypo quite alot and i have become slack in treating it at times as i know the Liver will let out Sugar in due course but i am worried at the damage i have already done to myself and i am ashamed to tell my mum who i know worries alot or my Nurse as my levels are really good and i am not a open person. I know its wrong for me to say that as they are experts but i do treat it well and the Hypos are mainly recently from a new job i have gotten at Tesco which requires me to shop for the online people so alot of exercise! :) I realise i have gone off topic but as its my first post i thought id share my experience in just over a year of having it....Everyone says i dont complain and have just gone on with it really well but as i said i am that guy who will just suppress all his emotions for the better of others, but maybe one day it'll all explode >.<
 
A quick google found this:
http://www.nhs.uk/Conditions/pancreastr ... ction.aspx

I haven't read through it.

I do wonder, with a transplant (which would probably be hard enough to obtain) will you need immunosuppressant drugs? If so have you looked into the side effects etc?

Speak to your specialist or try to see a consultant at a hospital, with practice good control should be reality.

Failing that have you looked into an Insulin pump?

Edit: just read the link, I'd push for pump, have a deep think and may be reform your lifestyle, unless of course it's 100% perfect already.... :silent:
 
with a transplant (which would probably be hard enough to obtain) will you need immunosuppressant drugs?
Click to expand...
Of course you would, and the same applies to islet cell transplants as well. That, combined with the non-trivial risk of the operation and shortage of donor organs, is why insulin is the standard treatment.
 
The most disappointing aspect about becoming a Type 1 diabetic was the fact that I could no longer be a pancreas donor for my son who was diagnosed years before me.

The main disadvantage in receiving a donor pancreas (if one were available) is the immunosuppressant drug regimen to stop your body rejecting the donor organ. Injecting or pumping insulin is currently the safest way to treat our condition.
 
Thanks for the reply guys, I agree that the tablets everyday would almost be equivalent to me taking Insulin I guess but a bit less hassle and obviously I could eat those cakes that stare at me on so much! Think I was just a bit down in the dumps yesterday, mainly wanted to introduce myself to the forum so hi, good to meet an talk to people who understand!
 
Jdizzy135 said:
Thanks for the reply guys, I agree that the tablets everyday would almost be equivalent to me taking Insulin I guess but a bit less hassle and obviously I could eat those cakes that stare at me on so much! Think I was just a bit down in the dumps yesterday, mainly wanted to introduce myself to the forum so hi, good to meet an talk to people who understand!
Click to expand...

But... You can eat those cakes! You just need to know how much insulin to inject to cover the carbs. You can always check your blood sugar after two hours and do a corrective bolus if you underestimated initially.
 
Ambersilva said:
Jdizzy135 said:
Thanks for the reply guys, I agree that the tablets everyday would almost be equivalent to me taking Insulin I guess but a bit less hassle and obviously I could eat those cakes that stare at me on so much! Think I was just a bit down in the dumps yesterday, mainly wanted to introduce myself to the forum so hi, good to meet an talk to people who understand!
Click to expand...

But... You can eat those cakes! You just need to know how much insulin to inject to cover the carbs. You can always check your blood sugar after two hours and do a corrective bolus if you underestimated initially.
Click to expand...

Exactly, I would of hated to be on pills for the rest of my life and have a super restricted diet.

I'm not saying Type 1s have it easy, but at least we can carb count and set our Insulin levels accordingly...
 
kidney plus pancreas transplant
i know a friend from my kidney transplant 8 days in hospital who was in the next bed to me
had both kidney and pancreas transplant
after a few months of adjustment the last time i spoke to him on phone he was doing fine and base line hba was 6.5
what a brilliant TRANSPLANT TEAM and i really admire him for his courage and will to improve his life
so if any of you get the chance go for it
it was done 2006
victor hill 55 years type 1
 
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