How do I stop fearing this disease?

AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
I went 20+ years living with it in the back of my mind, taking insulin when needed, eating when needed but still doing whatever I liked. Now I can't even go on a walk to the shop without fearing I'm going to have a hypo. It's horrible and it's been this way the last 3+ years. I use a freestyle libre 2 sensor and I'm on MDI... Just feel lost it sucks

#Type1D
 

AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Can you give us more details - how long are the walks, when are they (e.g do you have IoB from a previous meal)?

Do you know what changed ~3 years ago?
Sure, so I mostly have fears of going out for walks (10-15 maybe 20 min walks) after I've had a meal and took insulin for it. So I try to get everything done by having no food and then eat meals at home once I know I don't need to go back out. What changed is getting a CGM and being overly obsessed with my A1C and trying to be in range all the time. If I see a spike I try to correct as fast as possible not knowing the IoB was probably enough but needs a bit of time to work... I just overly think. I've had my first ever serious low recently too. Never saw a LOW reading 20+ years until recently (2 years ago) and it completely shook me... I'm just on edge all the time and avoid meals in public
 

SimonP78

Well-Known Member
Messages
538
Type of diabetes
Type 1
Treatment type
Insulin
Walking is typically very good (and often suggested) as a way of bringing BG down, so if you're walking immediately after eating you could try reducing your bolus dose, or even taking it after the walk - the difficultly is that your food may (will probably) take more than the 20min to be digested so you'll still need some (more) bolus after you get back from the walk. If I ride at lunchtime I will eat uncovered and then correct when I get home though if I'm running towards the top end or high, I'll probably take a unit or two so there's something in my system (and be prepared to eat a snack if I mis-judged it, c'est la vie.)

Obsessing over numbers is one of the downsides of CGMs and overcorrecting is a thing that happens in many walks of life as the body (or whatever other system) doesn't react as fast as your brain wants it to! :)

I sometimes do this too, though I rather try to learn from what I did (how much bolus, how long before eating, what was the effect) and then do something different next time rather than trying to correct and potentially end up with oscillations.

What do you use to see how much IoB you have (e.g. XDrip+ does this quite well)?
 

JAT1

Well-Known Member
Messages
578
Type of diabetes
Type 1
Treatment type
Insulin
I went 20+ years living with it in the back of my mind, taking insulin when needed, eating when needed but still doing whatever I liked. Now I can't even go on a walk to the shop without fearing I'm going to have a hypo. It's horrible and it's been this way the last 3+ years. I use a freestyle libre 2 sensor and I'm on MDI... Just feel lost it sucks

#Type1D
I sympathize. I get hypos for reasons I cannot fathom. Even when I eat the same and exercise the same as the day before I can go hypo when yesterday I went high. It's weird. I work around that by doing all outside-the-home activity in the morning before starting the day's routine of eating and bolusing. Then when I'm home for good I will have my meals and bolus accordingly. Often my bolus (Trurapi) goes into effect hours after I've taken it. I can suddenly drop drastically so I just want to stay home where I can quickly deal with it. I'd rather it weren't this way for me, but I'm alive and keep happy indoors too. By now, I realize life is so short and the end may come much sooner than expected so it's better to accept what I can't change and appreciate the time I have.
 

AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Walking is typically very good (and often suggested) as a way of bringing BG down, so if you're walking immediately after eating you could try reducing your bolus dose, or even taking it after the walk - the difficultly is that your food may (will probably) take more than the 20min to be digested so you'll still need some (more) bolus after you get back from the walk. If I ride at lunchtime I will eat uncovered and then correct when I get home though if I'm running towards the top end or high, I'll probably take a unit or two so there's something in my system (and be prepared to eat a snack if I mis-judged it, c'est la vie.)

Obsessing over numbers is one of the downsides of CGMs and overcorrecting is a thing that happens in many walks of life as the body (or whatever other system) doesn't react as fast as your brain wants it to! :)

I sometimes do this too, though I rather try to learn from what I did (how much bolus, how long before eating, what was the effect) and then do something different next time rather than trying to correct and potentially end up with oscillations.

What do you use to see how much IoB you have (e.g. XDrip+ does this quite well)?
Thank you for replying, in response to your question, I have the Novorapid smart pen so whenever I take my insulin it shows how much I last took and I can also scan it on my libre app. The advice about taking a very small amount (1-1.5 units) while I'm doing a long walk after a meal sounds like a good idea which I have to try out. Thank you for sharing your own experiences too so it makes more sense. I just have to figure out whether my carb ratio at the moment is correct or not (1:10) then go from there. Another thing I have to learn is to be patient while I have IoB...
 
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AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
I sympathize. I get hypos for reasons I cannot fathom. Even when I eat the same and exercise the same as the day before I can go hypo when yesterday I went high. It's weird. I work around that by doing all outside-the-home activity in the morning before starting the day's routine of eating and bolusing. Then when I'm home for good I will have my meals and bolus accordingly. Often my bolus (Trurapi) goes into effect hours after I've taken it. I can suddenly drop drastically so I just want to stay home where I can quickly deal with it. I'd rather it weren't this way for me, but I'm alive and keep happy indoors too. By now, I realize life is so short and the end may come much sooner than expected so it's better to accept what I can't change and appreciate the time I have.
Thank you for this honestly I appreciate it, life is for living and I definitely would love to go places and enjoy food outside rather than it being home all the time. I don't want to be in my comfort zone at least not while I'm young. As long as you are happy with the way you are handling your diabetes that's all that matters and I will definitely take note :)
 
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Grant_Vicat

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Staff Member
Moderator
Messages
1,358
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
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Intolerance, selfishness, rice pudding
Sure, so I mostly have fears of going out for walks (10-15 maybe 20 min walks) after I've had a meal and took insulin for it. So I try to get everything done by having no food and then eat meals at home once I know I don't need to go back out. What changed is getting a CGM and being overly obsessed with my A1C and trying to be in range all the time. If I see a spike I try to correct as fast as possible not knowing the IoB was probably enough but needs a bit of time to work... I just overly think. I've had my first ever serious low recently too. Never saw a LOW reading 20+ years until recently (2 years ago) and it completely shook me... I'm just on edge all the time and avoid meals in public
Hi @AdamMo95 I just wanted to try and reassure you. Hypos can be terrifying and are certainly a curse. Between 1959 and 2013 I must have had at least 100. Some were so bad that I had total memory failure temporarily. The media doesn't help by publishing headlines like "Mother's life saved by actions of her 9 year-old son", when they are talking about her being hypo and needing help. In no way am I trying to undermine the seriousness and risks of hypoglycemia, but the shock and newness of a severe low is bound to make you overly think. Since I have even had a bad hypo in a restaurant because the meal didn't arrive until after an hour had passed, I put this down to lousy service and my friends sorted me (and the manager!) out. I continued life as normal. I really hope you can overcome this as so much of your life could be impacted. Don't let the b'''''' grind you down! All the best.
 

AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
Hi @AdamMo95 I just wanted to try and reassure you. Hypos can be terrifying and are certainly a curse. Between 1959 and 2013 I must have had at least 100. Some were so bad that I had total memory failure temporarily. The media doesn't help by publishing headlines like "Mother's life saved by actions of her 9 year-old son", when they are talking about her being hypo and needing help. In no way am I trying to undermine the seriousness and risks of hypoglycemia, but the shock and newness of a severe low is bound to make you overly think. Since I have even had a bad hypo in a restaurant because the meal didn't arrive until after an hour had passed, I put this down to lousy service and my friends sorted me (and the manager!) out. I continued life as normal. I really hope you can overcome this as so much of your life could be impacted. Don't let the b'''''' grind you down! All the best.
Hi @Grant_Vicat

This is so kind thanks for the reassurance and for sharing your own struggles. I have to definitely make some tweaks with how much I am injecting depending on where I'm at and what I'm doing etc.. Glad you're doing good for yourself thanks again :)
 

Nicola M

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Staff Member
Moderator
Messages
918
Type of diabetes
Type 1
Treatment type
Pump
I wear a CGM 24/7 and honestly, I have 1 rule when it comes to my CGM which helps me to not obsess as much.. I only look at it at the times I absolutely have to (driving, meal times, particularly feel low/high) I think it stops me obsessing so much over what my blood sugar is all of the time. I've had plenty of 'bad' lows (finger prick reading of less than 2.0) and they're an awful feeling but I also still was able to treat them and move on with my day, it's all about making sure you're prepared and have hypo treatments on hand at all times. You can't let the numbers get you down, the general rule of thumb is 70% time in range is more than enough, some people do get more than that.. I am not one of those people I hover around 70%-75% and my HbA1c is always within a good range (most recently 49).
 

AdamMo95

Member
Messages
8
Type of diabetes
Type 1
Treatment type
Insulin
I wear a CGM 24/7 and honestly, I have 1 rule when it comes to my CGM which helps me to not obsess as much.. I only look at it at the times I absolutely have to (driving, meal times, particularly feel low/high) I think it stops me obsessing so much over what my blood sugar is all of the time. I've had plenty of 'bad' lows (finger prick reading of less than 2.0) and they're an awful feeling but I also still was able to treat them and move on with my day, it's all about making sure you're prepared and have hypo treatments on hand at all times. You can't let the numbers get you down, the general rule of thumb is 70% time in range is more than enough, some people do get more than that.. I am not one of those people I hover around 70%-75% and my HbA1c is always within a good range (most recently 49).
Thank you for this, and what I will now start practicing at home is ignoring the LibreLink app and not checking what my numbers are unless I am about to eat. I always mix my anxious feeling to my diabetes. My anxiety has similar symptoms to low blood sugar feeling so I have to definitely seek support with this from a therapist hopefully. Again thank you for sharing your own experiences and you are clearly doing incredible with your numbers :) I hope to aim for this and just focus on living
 

himtoo

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4,812
Type of diabetes
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why can't everyone get on........
Hey @AdamMo95 you have my sympathy because bad lows can be very scary indeed. I think i view my diabetes differently the longer i have had type 1.
so far 52 years and more hypos than i can remember ( and a fair few involving paramedics and hospitals ) .

given how wonderful it is to have my numbers available to me 24/7 on my phone i try my hardest NOT to obsess over any number i see at any time ...i also keep written records and actions i took at particular times so i can hopefully avoid hypo or hyper situations in the future.

I know that waiting for blood sugars to drop when they are higher than we like can be frustrating and the extra bolus definitely sorts things quicker but increases the possibility of the bad hypo....... i guess finding that balance is a bit of trial and error , while also making sure you always carry hypo treatment.

there has been a lot of great advice so far and as type 1 lasts a long long time, taking your time with change is important so you don't put even more pressure on yourself. Do keep us updated on how you are progressing because that is what this forum is all about ......community support. !!
 
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