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How do you decide?

SueJB

Well-Known Member
Messages
3,325
Location
Heaven
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
cold weather
I've only had T1 for a little over a year. Now here's my quandary, you get aches in your legs, pains in your back, tingling in toes, headaches, you can't lift as much as before etc/etc/etc, obviously not all at the same time and along with other bits and bobs that come and screw up a normal day, you feel pants. Question, how do you know it's either you just getting a bit of a virus, or pulled something at work, a cold coming on or something that might be to do with the disease or some of the meds you're taking or is it just getting older?
Help, advice, ideas and thoughts really appreciated.
 
I've been diagnosed for the same length of time. There are days where I feel really rough & test my levels to find they are totally normal. So I guess feeling rough that day isn't diabetes related!

Felt a lot better coming off lantus though. Just used to make me ache like I had flu
 
As @Circuspony said it can just be your feeling tired and grotty just because, non-diabetics feel tired and grotty some of the time too.
It seems a lot with diabetes blame said diabetes, but no, quite often is it just normal human illness
 
Just because your a diabetic doesn't mean your falling apart, your still human and for the most part normal.

Being a long term diabetic if I get aches or pain it usually mean I have either got man flu or over done it in the gym. I don't think I have ever said "oh I'm ill must because my diabetiese is playing up"

Yes it would appear that diabetics have a challenged immune system but mine is actually better than Mrs Knikki who is none diabetic
 
First I thought I was just getting older, turned out I had symptoms of diabetes for at least 2 years (diagnosed at 39, recurrent thrush, pretty severe depression as opposed to my pretty standard depression, annoying hot flushes, fatigue).
Then I thought I was just getting older, as my bg was pretty good (pretty nasty aches and pains in muscles and/or joints and feet) until I switched from Lantus to Tresiba and the aches disappeared to pretty normal aches for a 41 year old overweight person.

So I proved i'm not very good at deciding. Except for colds and stuff. If things aren't back to normal in 1 or 2 weeks, it wasn't a cold.
 
I rarely blame symptoms on diabetes. I think it is because of my pig headedness insisting diabetes will NOT control my life.

However, high or low BG always magnifies and cough, cold, ache, pain, flu symptoms.
So, if I am feeling under the weather, my fingers become more perforated with all the added testing.
 
I can have trended high or low and find myself weaker in the gym,, but then I can have had 3 days bang on and still feel tired in the gym, but then my non D mates would say the same and I think it's always been like that, but as Helen says, a cranky sugar amplifies any other ills,
 
I get more aches and pains as i mature(get older not wiser)!! Yes, a highest BSL will make me feel rough but sometimes I can feel unwell with a normal BSL reading. Sometimes in spring or autumn I think I might be coming down with a viral infection until the hayfever becomes more obvious.
Exercise (provided I avoid it if BSL > 13 mmol/l approx) does seem to help and super-important is obtaining enough sleep.
For me stress is probably the biggest ache maker and there are times when I am unaware that I am stressing. I wear a mouth splint at night to prevent the damage of teeth grinding (bruxism) and whilst that does not deal with whatever the underlying issue is it still saves on dental bills. (another potential source of stress)!!
Hayfever and the like do not put up my BSL up so that is a useful distinction. Distraction and exercise generally ease aches due to stress.
 
For anything that’s troublesome in my life, I don’t look to find blame. I look for some way to get around it. I try to figure out what I have to do to learn for this issue and then get around it.

This skill is a valuable tool that most long term type 1 people have developed. We adapt, try to learn & make rules, and move on. We survive with d, not blame it.
 
I will blame the weather or the season, but it is really about self-humour for me. And the solution, the journey needs some levity to balance the seriousness and trying to find a win-win solution if possible.
If one is part of the problem, one is part of the solution.
Or If one is not in solution, one is part of the precipitate.
 
I’m pig headed I’m afraid and carry on regardless ignoring all aches pains etc (when often I should take notice). I’m the one who treats a hypo but carries on doing what I’m doing, but then has to sit down 10 mins later! Duh!
 
My default position, and it always has been is nothing is "to do with diabetes" until proven so. I had the odd aches and pains. I was pretty tired after an 18 hour day, with travel. I sometimes a got a bit,.......... well,........... grumpy with others, before diagnosed and didn't pin any of those things on a medical condition. More likely I pinned them on life, circumstances, the moon phase or whatever.

The only outburst I have ever had with an HCP came when my GP told me "all diabetics should be offered statins, as a matter of course". My response pointed out one single A1c over the diagnostic threshold, and asked at which point would I or any other such person be given any credit for that, in terms of physical and metabolic improvement/recovery.

I hate labels, and I hate sticking labels onto things.

Of course some things are more likely associated with a condition, or certain symptoms could related to diabetes, say, but I won't tolerate, either in myself, or a HCP, defaulting to "that'll be the diabetes".

That isn't going to happen in my world - without a fight!
 
Thanks all for replying and your sage words. I suppose what I wanted to know was. Am I in for any nasty surprises as T1 develops?

I know that us T1s have to monitor and control BG which I do and it's generally within range but is beginning to go a little higher but not manic.

I've been told to inspect my feet daily .............. I don't know why or what to look for and this is quite a feat for me.... sorry about the pun, but I'm short-sighted.

Even before T1, I very rarely visited the vet and generally let body things right themselves but now I'm thinking for example, is this hot flush after eating a result of the diabetes? :***:Hey it's not menopause, been there, done that.

Are there any other weird things to expect? It's always been difficult to tolerate ambiguity so I like to know about things in advance so can work out a cunning plan
 
I've been told to inspect my feet daily .............. I don't know why or what to look for and this is quite a feat for me.... sorry about the pun, but I'm short-sighted.

That made me giggle, on the plus side checking your own feet everyday ensures you stay supple!
 
I've been told to inspect my feet daily .............. I don't know why or what to look for and this is quite a feat for me.... sorry about the pun, but I'm short-sighted.

Even before T1, I very rarely visited the vet

Like @slip those made me smile as well.

The problem with diabetics is, as you are from hanging around the forum, is neuropathy where we loose feeling in the extremities. Usually this is a result of running high BSL from a long time or basically bad long term control and because of that if we get cuts or skin abrasions on the feet we are less likely to spot it and deal with it, meaning that it could develop into something more serious.

However as I have never, since I was about 3 years old, been able to touch my feet, it also makes it challenging to check them. Saying that I am still very ticklish in that area so I have feeling and yep can still feel something if I step on it
 
Hi @SueJB, from my reading and experience of 52 years on insulin but not as professional advice or opinion:
A trial begun over 30 years ago called the Diabetes Control and Complications trial showed that the more intensive treatment of diabetes group (T1Ds) had a lower rate of diabetes complications after the first 7th year and slightly better gains after the 10 th year compared to a group T1Ds on a much less intensive treatment and poorer diabetes control.
Also this difference in complication rates continued to a significant degree after that time even if the diabetes control of the intensive diabetes treatment group slipped back into a less intensive treatment regime and not as good control.
That research has come too late for many of us but please talk to your DSN and GP/doctor about this. If I was PM for a day I would be pushing through legislation that offered free or heavily subsidised use of an insulin pump and CGM for all newly diagnosed T1Ds for at least 7 to 10 years after diagnosis.
I know that may not suit every newly diagnosed T1D and I would still be allowing the other priorities for pumps and CGM such as for pregnant diabetics, and the other criteria for insulin pumps.
This is just my view and I know this may not suit the attention span of each politician.
By the 45 year mark on insulin (from 1966 where no fancy insulins, glucose meters, pumps or even disposable syringes and needles existed) I was suffering from recurrent night hypos despite an intensive bolus/basal injection regime. The insulin pump was my saviour.
I have had cataracts in both eyes replaced at the 44 and 45 year mark on insulin (they were diabetes-related but likely accelerated by exposure to the Aussie sun over many decades)! Left and Right carpal tunnel operations were needed at about the 40 year mark on insulin as well as for some pesky trigger fingers - all par for the course for some but not all diabetics i gather.
But no heart, blood vessel, kidney or eye blood vessel disease, and Bone Mineral Density (BMD) is well in range.
I retired a little early due to family issues, not due to diabetes.
My specialist says he tells all newly diagnosed T1Ds to ensure they plan well for a normal age retirement. The outlook is that good.
At age 65 I live a full life, with more sedate exercise than earlier in my life, with family, with a great hobby of kite making and flying amongst other interests. Yes, I do ache at times, due to stresses of life and one day my denial of the normal ageing process will shine through the applied coats of denial and I shall see the light (?dimly by then)??
From age 13 when some HCPs would use the fear of diabetic complications as means to force compliance with insulin and diet, to being criticised as a still growing young adult for having the worse BSLs in one doctors clinic that day and thus spoiling said doctor's reputation, to doing 7 days canoe trips through wilderness country, University, training, work, family, children seem to pass with great speed. In 2016 I received a medal for the 50 years with diabetes. Was all the fear mongering in early years part of the reason for so few complications I had had or was it learning what worked best for me.?
At one year in you have so many advantages in choice of insulin, method of delivery, testing options, diet options and so much more.
Live life to the full, always be prepared with spare insulin, pens etc and glucose etc wherever you go, be sensible (climbing Mt Everest as a diabetic is putting others as well as oneself at higher risk). Managing one's diabetes to the best of one's ability is far more meritorious. Pleas keep asking questions if there is more you would like to know!!
 
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And weight-wise if you can SEE your feet that is good also.
 
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