I've read a lot of posts, with people commenting on taking 38-40 units per day - you're the lucky ones! I've been on Humulin I for six months increasing from 10 units to the current 188 (split morning and evening dose) (and I'm still titrating up 2 units every two days). Also taking Lixi (in the morning), Metformin and Gliclazide
Latest HbA1c is 11 (down from 13 six months ago). Morning glucose is ALWAYS in the mid- to high-teens, I haven't had a decent night's sleep in months. In six months glucose has only dropped to 'normal' levels twice before delayed evening meal - otherwise, fairly persistently in double figures (and that's before I eat!). At times I go off the scale on my meter after eating - I've no idea at what point this is classified as severe hyperglycaemia, or indeed what to do at this point. (Analysis shows there's no clear pattern, as I can eat the same meals at the same times and get very different readings after each).
I'm black and blue from all the needles. I'm permanently exhausted. I pour with sweat day and night. I'm 2.5 stone heavier. I can eat a meal, and will be painfully hungry for hours afterwards (knowing that I can't eat anything else to avoid more weight gain). My feet are walking on spiky gravel and my legs are persistently and painfully 'lactic' even walking less than 100 yards. etc. etc.
I've been treated by the practice nurse, as the 'local' PCT/CCG policy is that patients are not referred to consultants or specialists, but that a consultant will speak with the nurse/GP once very six months to discuss any 'problem' patients. Nurse is nice, but after six months we're really getting nowhere - it's another four months until the next scheduled 'consultant' meeting. What questions should I be asking?
Latest HbA1c is 11 (down from 13 six months ago). Morning glucose is ALWAYS in the mid- to high-teens, I haven't had a decent night's sleep in months. In six months glucose has only dropped to 'normal' levels twice before delayed evening meal - otherwise, fairly persistently in double figures (and that's before I eat!). At times I go off the scale on my meter after eating - I've no idea at what point this is classified as severe hyperglycaemia, or indeed what to do at this point. (Analysis shows there's no clear pattern, as I can eat the same meals at the same times and get very different readings after each).
I'm black and blue from all the needles. I'm permanently exhausted. I pour with sweat day and night. I'm 2.5 stone heavier. I can eat a meal, and will be painfully hungry for hours afterwards (knowing that I can't eat anything else to avoid more weight gain). My feet are walking on spiky gravel and my legs are persistently and painfully 'lactic' even walking less than 100 yards. etc. etc.
I've been treated by the practice nurse, as the 'local' PCT/CCG policy is that patients are not referred to consultants or specialists, but that a consultant will speak with the nurse/GP once very six months to discuss any 'problem' patients. Nurse is nice, but after six months we're really getting nowhere - it's another four months until the next scheduled 'consultant' meeting. What questions should I be asking?
