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How I cope (very well) with my RH!

Lamont D

Oracle
Messages
17,882
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
There is a certain amount of debate on how to approach treatment for the condition I have, and how I deal with every day living my life and be in control of my blood glucose levels and the evidence through experience is what I'm trying to describe.
I have a three way approach to control and depending on my circumstances and working, also, now that I'm travelling a lot around the country, how to keep your energy levels up and when and how to eat effectively to the said circumstances.
I have in the last few months done a tremendous amount of thinking about how to solve how, to go about my business and keep myself fit and healthy.

The first approach is to eat regularly throughout the day, say every three hours, very low carb. This is sensible if you do really need to have a few carbs and you feel like you are going low. You just top up through the day.
For me, this is the least effective especially if I'm working or travelling. For this you have to plan, buy, cook all fresh protein, and try and keep fresh in a form not conducive to travelling. I do this on days off, occasionally now! Salad every day is not the best way to achieve low carb.

Second is fasting, full days, or intermittent.
I can fast most days, and I now choose this method when travelling, so there is no need to rely on packing food.
Since doing this, my energy levels are really good. I have gone lately over thirty six hours due to travelling and working the next morning, only having a few hours sleep. If I'm staying overnight in a hotel, I do eat at evening times and breakfast but IF whilst travelling. I have always had a back up small meal when travelling and only succumbed once so far, but I had a cold and was slightly up on my bloods and believed that having some meat to offset any reactions would be beneficial and just in case. Fasting has improved my well being beyond belief, I'm never hungry and energy levels are great.
The third is to try and eat as a normal person would, but try to have no carbs at all if possible! So having three meals, really very, very, very low carb. Hey! You say, a RH er can't do this?
My thinking and I've done this and I've convinced myself through testing and experience that it can be done!
You see, when we have carbs, even a few, we need some more later to offset the hypo. No hyper, no hypo? Right?
Well, if we don't go hyper, no carbs or sufficient to trigger a blood glucose rise and the insulin response, (that is what we are trying to avoid!) Then the need to eat after three hours is unnecessary and redundant!
As I've said, I've done it!
If we have a healthy (for us) three low carb meals, with portion control, then we can go for more than five hours without going hypo! It sounds like IF, but you are truly not fasting if you space the three meals throughout the day.

I think exercise is so important to our treatment. Doing mild exercise such as walking, swimming, even housework and chores help, I have a manual job, that has me on my feet most of the day and I never feel mentally tired.
I do believe that excessive exercise is not so good, anything that makes our bodies produce more glucose, will set the trigger for excessive insulin. And ultimately that is what we are trying to avoid!

All this seems to go against medical advice, as having no carbs, is the thinking that most medical practitioners spout is a huge no, no! We need carbs for our brains?
Well, no I don't!
But once again, I can and do exist and live really healthy and physically in good health!
I don't need carbs! They make me ill! I have been in permanent ketosis since before this sub forum was introduced and before the thread asking for a RH forum! My thinking has evolved, my treatment has evolved, my health has never been better! Yes, we do need glucose! But not from carbs! Being in ketosis, seems to let our livers work successfully with our brains to provide enough glucose to keep our brains healthy. The mental symptoms, we get, when not in control, decrease and eventually disappear in ketosis.
This is my personal opinion through experience, what works for me, might not work for you. The need to find out what we can eat and what to avoid is the only way you can guarantee future good health.

I will post a Christmas message separately, I'm having a low carb Christmas and have it all planned out!
Fresh meat every day! Fresh salad! Gammon, eggs, mushrooms, big joints of fresh pork, Turkey, chicken, roasted gammon, I've adapted to a Christmas without the trimmings except for pigs in blankets!
Hey ho, ho, ho!
Have a really good low carb Christmas!
Best wishes to all RH ers!
 
This is really great advice Lamont, thanks for posting. I'm newly diagnosed (about 4 weeks ago) I've been ill for 18 months. Since the birth of my daughter (I had GD... apparently. Controlled with metformin and insulin)
After 18 months of major night sweats, fatigue, weight gain (still BMI under 25 so they weren't fussed) low blood sugars, dizziness, frequent urination and 5 lots of blood tests the endocrine dr finally diagnosed me with RH. Which completely fits. Now I know what it is.
This post has given me much more information than the dr. I have a dietitian appointment in a few weeks, looking forward to see how useful that will be haha.
Thanks again Lamont.
 
Hi and welcome to our forum.

I'm glad you have got a diagnosis. It can be a great relief, to find out what is happening and the next few months is likely to be a period of trial and error to what foods you have no tolerance to.
Do have a look around our forum, the low carb forum and how to be free from the symptoms that have caused you so many problems.
If you have any questions or want advice, start a new thread and one of us will reply!
Once again, welcome
 
I've been controlling RH through testing bg over the past year.
Some foods really surprised me (boiled carrots and porridge send my bg over 14). With understanding and lifestyle change, I now eat 3 times a day and consume less than 50g carbs per day. No more hypos. Happy days!
 
I've been controlling RH through testing bg over the past year.
Some foods really surprised me (boiled carrots and porridge send my bg over 14). With understanding and lifestyle change, I now eat 3 times a day and consume less than 50g carbs per day. No more hypos. Happy days!

Well done! Wheat/gluten/grains seem to be my issues.
Isn't it weird how different foods affect our individual bodies.
Am really glad you are in control. :)
 
I've been controlling RH through testing bg over the past year.
Some foods really surprised me (boiled carrots and porridge send my bg over 14). With understanding and lifestyle change, I now eat 3 times a day and consume less than 50g carbs per day. No more hypos. Happy days!

Wheat, potatoes, rice, grains, dairy, are my nemesis!

I have been told I'm glucose intolerant and also insulin intolerant because of the horrible hypo symptoms that affected me, before diagnosis!

It's got to be nearly three years from a hypo, but I'll have to look it up!
 
I'd thought I would bump this up to the top of the forum threads.

I have now dismissed any thoughts and actions about regular eating, it is no good, I just can't cope with that! It makes me think about food too much!

So I eat when I feel like it!
Only small meals!
It is so surprising how little I eat now!
Intermittent fasting has revolutionised my food problems.
My body likes it and my body has no complaints about this approach.
My mind is clear and is happier!
My weight has plateaued, I just can't get under twelve stone!

But hey ho! I'm healthy!
 
Really good post! I though i was alone in this. Seeing more people coping with this gives a lot of hope.
 
Really good post! I though i was alone in this. Seeing more people coping with this gives a lot of hope.

You're definitely not alone and if you have had a proper diagnosis, you will realise that we have a unique condition especially us men.
If like me, it took a long time to get my diagnosis and only one endocrinologist had a clue. Have you had any hospital tests?
Now that you have found us, you can move forward to gain the knowledge you need to get control. It is important that you find out what you can eat and what you have to avoid. I have a lot food intolerance including potatoes, wheat, grains, the usual suspects! But even more, I have a dairy intolerance and chaste cooked vegetables.
If it wasn't for salad vegetables, I would be eating protein all the time!.

Best wishes
 
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