Have posted about this recently. I haven't been diagnosed but definitely have it with all my symptoms.
Neurologist already said I have small fiber neuropathy from presentation with burning feet.
Autonimic symptoms are much more bothersome and started first and seem to be increasing at an alarming rate. I have POTS symptoms, low blood pressure that comes and goes, adrenaline rushes that come from nowhere, temperature dysregulation, facial flushing, sore and achey limbs that come and go, tremors and twitches that come and go, dizziness and an aversion to heights, feeling very cold and shivering, internal vibrations, brain fog, coat hanger pain, fatigue, blurry vision and now I've started to wake at night with nausea which comes and goes all day with brief moments of stomach pains so I'm assuming probably gastroparesis now too.
Been diagnosed for 6 years. Hba1c at diagnosis was 44. Levels have ranged from 32-56 since then but mainly sit around the 40's.
Neurologist already said diabetes is the number one cause of small fiber neuropathy and that's what it is. I'm waiting on nerve conduction tests for large fiber involvement before he will see me again. I'm at my wits end.
Looking for others with experience of this hellish condition.
Neurologist already said I have small fiber neuropathy from presentation with burning feet.
Autonimic symptoms are much more bothersome and started first and seem to be increasing at an alarming rate. I have POTS symptoms, low blood pressure that comes and goes, adrenaline rushes that come from nowhere, temperature dysregulation, facial flushing, sore and achey limbs that come and go, tremors and twitches that come and go, dizziness and an aversion to heights, feeling very cold and shivering, internal vibrations, brain fog, coat hanger pain, fatigue, blurry vision and now I've started to wake at night with nausea which comes and goes all day with brief moments of stomach pains so I'm assuming probably gastroparesis now too.
Been diagnosed for 6 years. Hba1c at diagnosis was 44. Levels have ranged from 32-56 since then but mainly sit around the 40's.
Neurologist already said diabetes is the number one cause of small fiber neuropathy and that's what it is. I'm waiting on nerve conduction tests for large fiber involvement before he will see me again. I'm at my wits end.
Looking for others with experience of this hellish condition.
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