How to pursue potential misdiagnosis?

[CottonCutiePies]

Which is why a definitive diabetes test is based on a 3 month average (A1c) rather than an immediate finger prick test.

When I was diagnosed in 1989 it was via the dreaded glucose tolerance test. Now its diagnosed differently. Upon being given steroid injections I was told by the specialist giving it, to forewarn when having any blood tests.

 

[Bashert]

Similar story , diagnosed in the middle of covid with type 2 Blood sugar was in the high 20s, diabetic nurse blamed me, my life style, not eating regular ,weight ,long work days, lack of sleep, ect.
Last year i changed doctors as i was so ill and no matter what i did the blood sugar was up and down. I was sick of her making me out to be a liar on what it eaten or done to change things. Id lost over 4 stone in weight and and was in so much pain.
The new doctors only had me on their books for only a month. Id had ECGs even an Endoscopy. They then said they would like to do a c peptide test.
This took a month to return and with in 2 days i was under the Diabetes team at the hospital with two lots of insulin a CGM more leaflets than i could carry all this at 57 year old. sharp learning curve to say the least.

 

[rayq81]

Unless you are treating your diabetes with insulin, if you have LADA, you are very unlikely to be experiencing significant low readings.
LADA is a variant of Type 1 which is an autoimmune condition where our body has decided to attack the insulin producing cells. No insulin = high BG not low.
However, auto-immune conditions are rather sociable - they tend to group together. So, as you have other autoimmune conditions, it is definitely worthwhile getting it checked out.

On most cases that is true however I have Lada and have avoided insulin so far and I regularly get lows in fact some nights I can get a low alarm 3 or four times, my doctor at the hospital and my doctor at the surgery just cannot believe that I control my diabetes with my diet and exercise, most of the time I have reduced my Metformin to 2 a day, I also questioned whether I was actually Lada and was told there was absolutely no doubt on my tests that I was Lada.

 

[Deleted member 527103]

On most cases that is true however I have Lada and have avoided insulin so far and I regularly get lows in fact some nights I can get a low alarm 3 or four times, my doctor at the hospital and my doctor at the surgery just cannot believe that I control my diabetes with my diet and exercise, most of the time I have reduced my Metformin to 2 a day, I also questioned whether I was actually Lada and was told there was absolutely no doubt on my tests that I was Lada.

Do you check those night time low alarms with finger pricks to confirm they are not compression lows?

 

[Lynne C J]

Similar story , diagnosed in the middle of covid with type 2 Blood sugar was in the high 20s, diabetic nurse blamed me, my life style, not eating regular ,weight ,long work days, lack of sleep, ect.
Last year i changed doctors as i was so ill and no matter what i did the blood sugar was up and down. I was sick of her making me out to be a liar on what it eaten or done to change things. Id lost over 4 stone in weight and and was in so much pain.
The new doctors only had me on their books for only a month. Id had ECGs even an Endoscopy. They then said they would like to do a c peptide test.
This took a month to return and with in 2 days i was under the Diabetes team at the hospital with two lots of insulin a CGM more leaflets than i could carry all this at 57 year old. sharp learning curve to say the least.

Good luck but it may help if you contact the Independent Diabetes Trust (IDDT) who will send you out a pack if you are T1 or T2. I only found out about them 5 years ago, 40 years after being put onto insulin. The T1 information pack told me more than I had been told in all those years! They have lots of leaflets on various things that affect diabetics. They like you to make a donation if you can but they are very helpful. Best information I have ever been given.