My 'normal'BG is around 5.2 and when I drop to 5 my thigh muscles start seizing up and I get symptoms similar to hypos and these get worse the lower I go. I feel at my best around 5.6 but my problem is, if I use sugar based things to pick me up, the sugar causes me to have dreadful pains behind my eyes which last 24 to 48 hours.
This morning when I got up I was 4.6 and had rolled oats porridge, skimmed milk, flaked almonds, sunflower and pumpkin seeds and yogurt. I know this is slow release but it didn't get me above 5.
Does anyone have any suggestions for raising my BG without sugar. Thanks. Atlantico
Hello and thank you for your reply. I had an extended glucose tolerance test done in hospital with a laboratory result of 2.1Did you get a diagnosis, just ask. Because it does not sounds like RH or any blood sugar issue at all to me.
You won’t get hypo symptoms at such levels, there is no point in keeping blood sugar above 5 mmol instead of 4 mmol.
Also, a rapid increase in blood sugar or hyperglycemia does not make dreadful pain behind eyes for 24-48 hours. This sound psychical to me.
Also tight muscles are not a common symptom of hypoglycemia. Can I ask if you have had any readings below 4 mmol?
Thank you for your reply. I do enjoy exercise but this is usually where I struggle. I can more or less keep myself steady at home but as soon as I exert energy (I play golf and love brisk walking), then my BG drops and my muscles shake terribly, can't think clearly, my brain feels foggy etc. I don't seem able to eat enough of the right food to keep my BG high enough.How does exercise affect your BG?
Some exercise, such as weights or interval training raises my BG.
I am not suggesting a full on body building gym session but you may find something like walking up a short steep slope or doing some star jumps or lifting some tin cans may help.
Other things such as stress and illness are harder to manage.
However, your preferred BG is very precise and our test meters are not this accurate.
Perhaps there is some other issue - headache for 24 to 48 hours from some sugar sounds to me (but I am not a doctor and do not suffer form RH) like it could be something that you should see your doctor about.
Hello Brunneria, first of all, thank you for your very supportive comments.@Atlantico
Regarding your question about raising bg without sugar... phew! Complex question, and the answer is likely quite different for a non diabetic.
I would suggest that you combine carbs with fats and proteins to experiment and see how things work for you, with the best idea being to avoid the lows in the first place.that is, of course, easier said than done!
I find snacking on nuts is v good to avoid dipping into the hypo in the first place.
Similarly, i find a slow release snack bar (e.g. peanut 9bar, or nutty snack bar, even some bitter choc) will ‘head the hypo off at the pass’. Much more comfortable than waiting for it to hit, then treating.
I have had sugar-high-headaches on occassion, but they never last like yours do. And sometimes my eye muscles ache. No idea why!
If the sugar is mixed with fat or protein (choc or yog, or similar) then that reduces the effect, mainly because it reduces the speed of ‘the hit’.
Mixing carbs with fat and/or protein and/or fibre reduces the speed they are digested. So they are less effective at rescuing us rapidly from a hypo, but they do mean we can avoid the precipitous highs and lows.
Hope that helps.
Thanks @Lamont D
I forgot to mention food intolerances.
Mine include whey, soya, and especially gluten. There are more, but they bore me so much I expect them to bore others even more.
For me, gluten seems to be the biggie. My bg levels become much more unstable and unpredictable for several days after eating gluten, and it triggers an autoimmune reaction in the form of aching joints and psoriasis as well.
My personal view is that food intolerances are key to understanding RH, but I don’t have any studies or research to back up that opinion, and I have no idea if it applies to a minority or a majority of RHers.
Thank you for your reply. I will take your advice and tomorrow morning I will try a carb free breakfast and see if that helps.Would it perhaps be better to avoid grains and seeds first thing in a morning - when many people find that they are most resistant to insulin - by eating porridge etc and low fat you are starting off a rollercoaster.
It is touted as slow release - well my insides obviously didn't get the memo about that, and during my recovery I had some very wobbly mid afternoons until I began to eat breakfasts with a few gm of carbs, 10 at the most, and that seemed to settle things down for the rest of the day.
@Brunneria has given you some great advice and pointing out that everyone is different, but I would try lower my carbs intake even more, because I believe you are still suffering symptoms, from whatever it is that is causing them, and you may be still getting a rebound effect from the food you are eating.
The idea that starting the day without carbs at all will set up the day for whatever you do. Not having to try and push your blood levels back up is a sign that something is pushing it down, and the usual suspects are carbs.
As a long time RH patient, I have found certain foods are what triggers the symptoms.
I don't eat them even though they are supposed to be healthy and nutritious. Because they aren't healthy for me.
The symptoms are your brain telling you to have something that will give your brain glucose quickly, it is a signal that is not wanted, because the message is not what your body or brain needs, it is so use to having a quick fix, because of the gastric dumping. You have to train your body to stop doing this, only good fats and proteins in a (for you) a healthy balance. This will take time, and means lots of testing and experimentation, recording and getting rid of the food you are intolerant to.
A food intolerance is similar to a food allergy, but it only effects your blood glucose levels. But both will bring on the symptoms. If you had a peanut allergy, would you eat peanuts?
In my experience, the best way is to find something as has been suggested, a bite of something that will nudge you into normal blood levels, rather than above, is essential to stop the rebound effect. Since diagnosis, a plain biscuit is plenty to just nudge you into normal levels. The last thing you need is to rebound again. That is why, fifteen minutes after the very small carbs, you need to test again to see if has worked, if it has, then have a small very low carb meal, this should satiate you, but you really need to stop having the episodes. Are your fasting blood glucose levels in the morning normal? Do you fast?
Exercise is important, too much is not good, too little is not good. Once you get good control, your energy levels will increase, you can do more. Golf should be okay, as long as you haven't overdone the carbs beforehand, walking, swimming, gentle exercise is always good. Strenuous exercise for me is out, it will give my liver a chance to stimulate a liver dump, more glucose than you need and raise your blood glucose levels.
Understanding how and why you are getting hypo episodes is as important as how to treat and get really good control, because dietary intake is the only way to treat RH.
Since I got really good control and avoided my intolerance foods, I have not had the hypos I did.
The list of food you have posted is very bad for me, rolled oats, hypo!
Skimmed milk, lactose intolerant! Hypo!
Yoghurt, if it is low fat, lactose and added sugar intolerant! hypo! Full fat, a couple of spoonfuls okay!
Yes, it is slow release but the way your body metabolises these intolerant foods increase the likelihood of hypos, the gastric dumping triggers the glucose initially swamping the background insulin, after this dumping the overshoot of insulin will drop you into hypo levels. But wether they go actually into hypo levels, it will still trigger the symptoms. It is the rapidity of the glucose dumping, will give you the roller coaster ride you are getting, up and down, from the moment you start eating your breakfast, it is not surprising you are getting lots of different symptoms.
Before diagnosis, I had a continuous headache behind my eyes for years, it wasn't there in the morning, but come midday, it was there. Since diagnosis and control, no headache! The same with a lot of symptoms.
My endocrinologist asked me to list my symptoms. I nearly filled a page from a foolscap pad, and then he asked if I had others and they were added.
It can be really long list of symptoms, some like being itchy, vivid dreams, and of course forgetfulness, or memory loss, forgetting things, oh, I've said that!
Keep asking, knowledge is important, find those intolerant foods.
Thank you Mr Lamont for your long, interesting reply.
This morning I had a pre breakfast reading of 4.6. For breakfast I had 2 rashers grilled bacon, 1 fried egg, 1 tomato and mushrooms. 1 hour 30 mins after breakfast I started with very deep yawning and my BG was 3.9 (I am not sure whether the yawning is as a result of me "dumping" my breakfast and then having a big release of insulin. Yawning is usually the start of my BG going down.) At this point I ate 1 Rich Tea biscuit and walked 1 mile. 50 mins after eating the biscuit and the walk my BG was 5.5. My waking BG is usually between 4.2 and 4.7 and I don't fast. Kind regards, Atlantico.
Best wishes
@Brunneria has given you some great advice and pointing out that everyone is different, but I would try lower my carbs intake even more, because I believe you are still suffering symptoms, from whatever it is that is causing them, and you may be still getting a rebound effect from the food you are eating.
The idea that starting the day without carbs at all will set up the day for whatever you do. Not having to try and push your blood levels back up is a sign that something is pushing it down, and the usual suspects are carbs.
As a long time RH patient, I have found certain foods are what triggers the symptoms.
I don't eat them even though they are supposed to be healthy and nutritious. Because they aren't healthy for me.
The symptoms are your brain telling you to have something that will give your brain glucose quickly, it is a signal that is not wanted, because the message is not what your body or brain needs, it is so use to having a quick fix, because of the gastric dumping. You have to train your body to stop doing this, only good fats and proteins in a (for you) a healthy balance. This will take time, and means lots of testing and experimentation, recording and getting rid of the food you are intolerant to.
A food intolerance is similar to a food allergy, but it only effects your blood glucose levels. But both will bring on the symptoms. If you had a peanut allergy, would you eat peanuts?
In my experience, the best way is to find something as has been suggested, a bite of something that will nudge you into normal blood levels, rather than above, is essential to stop the rebound effect. Since diagnosis, a plain biscuit is plenty to just nudge you into normal levels. The last thing you need is to rebound again. That is why, fifteen minutes after the very small carbs, you need to test again to see if has worked, if it has, then have a small very low carb meal, this should satiate you, but you really need to stop having the episodes. Are your fasting blood glucose levels in the morning normal? Do you fast?
Exercise is important, too much is not good, too little is not good. Once you get good control, your energy levels will increase, you can do more. Golf should be okay, as long as you haven't overdone the carbs beforehand, walking, swimming, gentle exercise is always good. Strenuous exercise for me is out, it will give my liver a chance to stimulate a liver dump, more glucose than you need and raise your blood glucose levels.
Understanding how and why you are getting hypo episodes is as important as how to treat and get really good control, because dietary intake is the only way to treat RH.
Since I got really good control and avoided my intolerance foods, I have not had the hypos I did.
The list of food you have posted is very bad for me, rolled oats, hypo!
Skimmed milk, lactose intolerant! Hypo!
Yoghurt, if it is low fat, lactose and added sugar intolerant! hypo! Full fat, a couple of spoonfuls okay!
Yes, it is slow release but the way your body metabolises these intolerant foods increase the likelihood of hypos, the gastric dumping triggers the glucose initially swamping the background insulin, after this dumping the overshoot of insulin will drop you into hypo levels. But wether they go actually into hypo levels, it will still trigger the symptoms. It is the rapidity of the glucose dumping, will give you the roller coaster ride you are getting, up and down, from the moment you start eating your breakfast, it is not surprising you are getting lots of different symptoms.
Before diagnosis, I had a continuous headache behind my eyes for years, it wasn't there in the morning, but come midday, it was there. Since diagnosis and control, no headache! The same with a lot of symptoms.
My endocrinologist asked me to list my symptoms. I nearly filled a page from a foolscap pad, and then he asked if I had others and they were added.
It can be really long list of symptoms, some like being itchy, vivid dreams, and of course forgetfulness, or memory loss, forgetting things, oh, I've said that!
Keep asking, knowledge is important, find those intolerant foods.
Best wishes
Hello Lamont
Thank you again for your prompt reply.
You asked what I cooked my egg in, I always use olive oil for cooking. I have decided to take your advice and miss breakfast tomorrow and see how I feel.
When I have read previous posts from yourself I didn't realise you had Rapid Gastric Emptying, it is good to be able to speak to someone about this. Anyone else I have heard of with it have had stomach surgery but I haven't and don't know what caused it. Actually, mine started in 1997 but it was 2012 before I finally got it diagnosed.
Regards, Atlantico
Hello Lamont,
It was interesting reading how you have overcome all your problems and intolerances and come through it feeling so well. You are an inspiration.
My dumping is classed as late dumping as my symptoms happen between 1 and 3 hours.
Yesterday I missed breakfast completely and had my lunch at 12 noon. I was perfectly fine and wasn't even hungry at lunch time. My BG stayed around 5 which was okay. How often would you suggest fasting?
Regards, Atlantico
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