It was a few years ago I read about it, so can't remember the exact articles I read. Googling brings a load of resources up. To give you an idea, here's a paper on the variability of insulin absorption:Do you have any references to back this up? Especially with insulin dosage - there's also insulin strength quality but lets leave that for another day! If what you say, and given that Blood glucose meters have a +/-15% tolerance as well is true no wonder most T1Ds find it hard to have very good control.
Really interesting re the carbs, thanks. We are already finding these weird discrepancies and he is having to inject quite a lot of insulin to cover some days which doesn’t seem to cover the same meal other days...but I guess that all depends on all the other factors like stress,exercise etc too. He has is still getting his background dosage adjusted so hopefully once that seems more acceptable too the daytime spikes may improve...although who knows! Like I said before it is all very reassuring to hear your experiences.
I am very taken by this idea of lessening the pasta and increasing the meat/sauce...we did it last night and it seemed to work quite a bit better
My main concern now (there’s always something new...!) is that he seems to be avoiding snacking (healthy and Unhealthy) because he does not want to inject himself more than he already does. He eats 3 healthy meals a day, sometimes will take a wee bit of chocolate immediately after (covered by his rapid acting insulin) but has lost quite a bit of weight and already looks quite gaunt, he is possibly underweight now, I’ve not calculated his bmi. In your experience did you start putting on weight again once injecting regularly? Should I be subtly pushing snacks or just leave him to it?
Don’t panic too much things will settle down. It is just an awful shock at the time. You should get yourself and your husband the books carbs and cals or a similar one which will help with the calculations of carbs. It will get easier. You could also try the smartphone app fat secret which is very useful. Take careHi all,
Just wanted to come on here and say this looks like an amazing place with some fab people/advice going around. I wonder if anyone can advise.
My husband (32) has recently been diagnosed with type 1 dm. Completely out of the blue, never ill a day before, apart from a few weeks of symptoms. I’m not going to lie it has hit us really hard (as I’ve read a lot on here, glad to see it’s not just us). We have 2 young kids, 1 more on the way, who have both been vomiting in the week since diagnosis so that doesn’t help! I feel he is getting over the diagnosis but I am stuck in a rut and just can’t.
I am just looking for some advice. In people’s experience how quickly does blood glucose get into target range (for the most part)? He has been injecting - long acting twice daily, rapid acting with meals - for around 1 week now and I think I’m expecting too much too soon. I am (and he is too) so frustrated with readings of 14 still at times. We are doing carb counting and obviously not getting the hang of it, I think he is underestimating as for the most part as he is well above 7.5 for most of the day. How long do people usually take before they are mostly in target range?
It’s odd too because one night he had a big pasta dish, 4units rapid acting then before bed bm was 4.9..:then tonight similar meal (with garlic bread), 7 units, same time but before bed was 14! Not much else different. I am stressing enormously, I worry this is damaging him being high for most of the day. This whole week has been awful for us both, I just keep thinking about the future and worry about everything, especially with the little ones. We always ate healthy, both exercise lots (tho he isn’t at the moment until everything is more stable), I am medical too so I know the things to look out for/test for....maybe that makes it worse...feel I am probably overthinking things but this is all just so difficult. And the best people to ask are people who are personally experiencing it so I really would appreciate any advice/experience.
Many thanks in advance
Hi @CTS with regard to the DVLA I learnt very quickly, back in 1988, that it is vital to keep copies of all clinical documents related to diabetes and to keep photocopies of the filled-in forms. Sometimes it is like getting blood out of a stone or fingertip (!) just to get a 3 year licence. Even after 5 years with a pancreas transplant, I am still battling to prove to them that I am not diabetic any more - third letter direct from the hospital department has just winged its way to Swansea...You have all honestly given me so much reassurance, thank you from the bottom of my heart. (Sorry to sound sappy)
Ok, as per everyone’s advice we will continue with the carb counting, monitoring, documenting everything and not expect too much too soon. Focusing on the now and not worrying about the future too much seems to be the key. I love the ‘there’s more to life than glucose measurements’ type phrase, this is fantastic.
You’re entirely right, he’s no where near over the diagnosis, I still see it when he gets a minute or two to sit down, or when he has to inject himself, I see the cogs turning and the reality dawning. I think it’s perhaps that he is not getting upset anymore maybe that’s what has changed, and this is only a good thing. Whereas I’m just an emotional wreck!! Your points on this are all completely correct, nail on the head.
I will definitely make sure he reads these comments himself. I don’t have the first hand experience obviously but I know it’s always nice to know you aren’t alone in something. You guys have all been through such struggles which I’m sorry to hear of, thank you for sharing and advising x
(Ps yes forms off to dvla today! As a priority)
Hi, @CTS , a few tips and things to watch out for.
Gary Scheiner's book Think Like a Pancreas is worth a read. He's T1 and a endo so he's got both personal and professional experience of it.
One thing which we see quite commonly with newly dx'd is that they read every book on the subject, experiment with carb counting, think they've got it sussed, then it throws them a few fliers, and they start getting dispirited, and the reality that it's for life and doesn't play by the rules sinks in.
I'm not saying that will definitely happen with your man, but just that we've seen it happen so many times before with newly dx'd it's something to keep an eye open for, so maybe have a think in advance about how you might deal with that.
Counter-intuitively, telling them it will all be fine can sometimes make it worse. He might say, easy for you to say, you've not got it. I had a few arguments with my parents along those lines when I was dx'd at 21. One approach is to simply agree and say, yes, it is difficult.
If he goes through that sort of delayed shock, it is a stage, we all generally get past it and find a way of accepting it.
Carb counting is certainly worth learning. The simplicity of saying x units for y carbs is an attractive idea, but it can becomong frustrating when, as you've seen, you can get different results from the same meal on two different days.
The reality is that as soon as insulin is injected and food eaten, they are subject to a wide range of biological processes which can lead to different and unexpected outcomes depending on how those other factors play out.
There's also other things which he's maybe too early in the game to be aware of yet, but will pick up over time.
For example, before a meal, I'll think about how much carb, and how much insulin, as a starting point, but I'll also be thinking about how active I've been in the last few hour, how active I'm likely to be in the next few hours, whether I've got insulin on board from the last shot, whether I'm trending up or down, the type of food in terms of GI, and generally how responsive I've been to insulin in the last few days. All those factors will likely, to varying degrees, lead me to adjust both the amount of insulin and the timing of it.
It's also useful to think about the "shape" of insulin over time. It has a pattern. For example, novorapid is about 20 mins to start working, peaks at an hour or two, tails off after three to five hours. Carb counting isn't just figuring out how many units for x grams. It's also trying to match the pattern of the insulin to the pattern of the absorption of food over time. It's why many of us "pre-bolus", inject before a meal, to give time for the insulin to get to work before the food gets into play. That way, the insulin will already be in place and working by the time the food is digested and ends up as glucose in stream. If that's not done, the insulin can end up playing catch up. Wouldn't worry about this too much just now, but keep it in mind for the future. Different foods digest at different rates, and some just seem to fit some people's patterns than others, so it's worth experimenting with that sort of thing. For example, with me, white rice is a nightmare, but brown rice fits perfectly.
One approach which is gaining in popularity now that cgm like libre are becoming more available (including on script in some areas) is Stephen Ponder's Sugar Surfing.
You might think that with all the unmeasurable variables involved that it's an impossible task. Sugar Surfing accepts that it is unpredictable but then says that if you've got cgm, you can have a glance at the screen or your watch from time to time, and when you see it starting to go out of line, you can consider whether a small adjustment is needed, say 5g of glucose, a biscuit, or 1 or 2u of insulin, to nudge it back in line before going too far out of range.
Sure, it requires a bit more attention, and perhaps a few more injections, but I've found it to be time well spent, because I'd much rather spend a few seconds fixing a small rise or fall without any drama instead of the time and hassle of sorting a major high or low.
If the docs haven't already mentioned cgm or libre, do ask about it. We're having to deal with a constantly moving and unpredictable target, so it's only fair that we get to see it. With strips alone, we often just get to see the aftermath of a high or low after they've happened, whereas cgm let's us steer things in advance to avoid them.
I, for one, learn so much from your posts, thank you.
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