I have confirmed hypercalcaemia and hyperparathyroidism. It was discovered last year, after years of symptoms which include bone pain, (not joint pain, but pains in shins and ribs) abdominal discomfort including constipation, alternating with diarrhoea, severe headaches, exacerbation of hearing loss, extreme fatigue, and I seem to have a lot less patience than I used to.
My referral to Endocrinology was made in July, and I was finally seen in January. The consultant diagnosed the hyperparathyroidism from the blood tests, and symptoms. He advised that the vitamin D with calcium that I had been prescribed several years ago should be stopped. This is because the excess calcium increases the activity of the parathyroid glands. He also said I would need surgery, but the service is overwhelmed and I am not even on the waiting list yet. I am waiting for a follow up appointment. I was referred for a sestamibi scan, which involves an injection of a radioactive agent, followed by a CT scan. It was nothing to worry about.
In the meantime, I have to drink lots of water, have blood tests every 6 weeks , arranged by GP, and observed by them . If calcium levels are above a certain level I will need to go to hospital and have intravenous medication to ‘flush calcium from blood’. I have managed to avoid that so far, but it is frustrating having such a long wait.
I hope your refferal appointment results in some reassurance and action,
@j.100.s