Hypoglycaemia reversed

rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Very excited to say that my hypoglycaemia has reversed after treatment for my stomach infections! I can now eat bread, oats, rice, fruit occasional sugary treat ect. I thought this could be useful info incase SIBO is a causing factor for anyone else’s hypoglycaemia. I was originally intolerant to carbs and would very rapidly shoot up and then plummet low, now the rise and fall is far slower and I don’t seem to go low. I am running, horse riding, going to the gym and long walks no problem- this would have been impossible before as I would just go low and I had very little energy. Worked with a gut doctor and decided to go down the route of more gentle / natural antibiotics as they’re less likely to agitate my gut flora even more by wiping out the remaining good bacteria! As well as this I have been taking the HU58 probiotic along with a few other supplements; the SIBO caused vitamin deficiencies due to malabsorption which explains some of my other symptoms. The “natural” antibiotics did work, it just took a while to see progress so a bit of a waiting game. Everything was very gradual, especially with what foods I could tolerate.

Even though I have reintroduced carbs into my diet I still tend to opt for slow release or pair them with a protein or fat source in attempts to continue keep things steady. My original very low carb diet was hard, but necessary at the time and would have also helped to starve off some of the bad bacteria.

I had hydrogen dominant SIBO so it was easy to tell how much of it I had left via breath testing. I’ve attached screenshots of my original breath test and more recent! SIBO has only just become recognised by the NHS and is not too understood, the effect it had on me was awful to the point I had to drop out of uni for a year! they can test for it via breath test.

Personally I had to go down the private healthcare route since I was very ill and wasn’t getting any help from the NHS. I’d urge anyone struggling with digestive discomfort alongside their hypoglycaemia to consider doing the same if possible.

Hope this could all be useful information for someone, sending my best wishes and happy to answer any questions :))

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Last edited:

MrsA2

Expert
Messages
5,947
Type of diabetes
Type 2
Treatment type
Diet only
route of more gentle / natural antibiotics as they’re less likely to agitate my gut flora even more by wiping out the remaining good bacteria!
What did you use?

I read quite a bit about SIBO in various books but I thought it wasn't recognised at all here in UK. Teh resolution seems to be to build a good gut health
 

rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
What did you use?

I read quite a bit about SIBO in various books but I thought it wasn't recognised at all here in UK. Teh resolution seems to be to build a good gut health

Hi, I took garlic allicin and biocidin capsules. Originally took ParaBotanic Select but it really didn’t agree with me so I switched to the biocidin! Apparently the parabotanic select doesn’t usually cause reactions though and is pretty effective! I did also have to take antacids to let my stomach heal as there was a bit of damage, presumably caused by the SIBO. I’d get a painful burning sensation when eating!
 

rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
What amazing news!

Even my gut doctor had only ever had one other case of hypoglycaemia in his patients with gut problems and said he couldn’t guarantee mine would reverse after treatment, so I am pretty surprised by how well it has gone! Crazy how it can affect the endocrine system and I think it’s quite unusual for SIBO to present in the way it did for me.
 
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rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
IMG_5658.jpg


the little peak is my porridge I had for breakfast :)) I used to shoot up to 9, 10 or sometimes even 11 mmol/L very quickly with the exact same portion size and then usually go hypoglycaemic (3 / 2 mmol/L) pretty rapidly following that! Obviously sugar rising quickly is normal with carbohydrates but it was the way it would fall so low that was abnormal. Very strange malabsorption must’ve been going on, we’re thinking leaky gut could have been involved but that’s just a theory! As things seem to have calmed, i’m not reliant on libres anymore, but occasionally wear one to check how everything is / see what foods I can tolerate.
 

Lamont D

Oracle
Messages
16,504
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Wow!
Very excited to say that my hypoglycaemia has reversed after treatment for my stomach infections! I can now eat bread, oats, rice, fruit occasional sugary treat ect. I thought this could be useful info incase SIBO is a causing factor for anyone else’s hypoglycaemia. I was originally intolerant to carbs and would very rapidly shoot up and then plummet low, now the rise and fall is far slower and I don’t seem to go low. I am running, horse riding, going to the gym and long walks no problem- this would have been impossible before as I would just go low and I had very little energy. Worked with a gut doctor and decided to go down the route of more gentle / natural antibiotics as they’re less likely to agitate my gut flora even more by wiping out the remaining good bacteria! As well as this I have been taking the HU58 probiotic along with a few other supplements; the SIBO caused vitamin deficiencies due to malabsorption which explains some of my other symptoms. The “natural” antibiotics did work, it just took a while to see progress so a bit of a waiting game. Everything was very gradual, especially with what foods I could tolerate.

Even though I have reintroduced carbs into my diet I still tend to opt for slow release or pair them with a protein or fat source in attempts to continue keep things steady. My original very low carb diet was hard, but necessary at the time and would have also helped to starve off some of the bad bacteria.

I had hydrogen dominant SIBO so it was easy to tell how much of it I had left via breath testing. I’ve attached screenshots of my original breath test and more recent! SIBO has only just become recognised by the NHS and is not too understood, the effect it had on me was awful to the point I had to drop out of uni for a year! they can test for it via breath test.

Personally I had to go down the private healthcare route since I was very ill and wasn’t getting any help from the NHS. I’d urge anyone struggling with digestive discomfort alongside their hypoglycaemia to consider doing the same if possible.

Hope this could all be useful information for someone, sending my best wishes and happy to answer any questions :))

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I am so happy for you never heard of SIBO. Though I have heard and had gut issues, bacteria and the anti biotic to help with the bacteria.
I am now going to Google it all.
Really pleased for you.
I hope more endos and the healthcare industry start using this as a diagnostic tool.
Excellent news.
 

rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
I have been tested again to see how much SIBO I have left and if I need a second round of treatment, annoyingly it is known to be tricky to get rid of so will see how that goes! i’m still struggling with digestive discomfort, stomach pain and fatigue but I am much better, so feeling very grateful! my stomach must’ve taken a real battering, I have a feeling there is still a little SIBO left but definitely less than before, I had a high volume Popped a libre on to see how i’m getting on and did some experimenting, I can eat pretty much anything. This was after eating a bit of millionaires shortbread, it tasted blindly sweet after having cut sugar out for a while and wasn’t very nice but I was curious to see if I’d go hypoglycaemic after it, I didn’t! You can also see by the nature of the graph I seem to be digesting food a lot better. If I get super hungry or have a meal late I will still go fairly low but I think that’s pretty normal.
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rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
I am tempted to lower my gluten / lactose intake and see if that helps, I would not be surprised If i’ve developed some intolerances
 
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Lamont D

Oracle
Messages
16,504
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I agree with your summary.
it does seem to be the intolerances, let us hope they can find out what it is.


Sweetness, yuk!
Mrs L takes sweetners, and every now and then, I get the taste, while making a cuppa.
I literally have to scrape my tongue or they my teeth, sometimes, even toothpaste is too sickly.
Funny how much our taste buds change with all this keto or low carb stuff?
 

rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
I agree with your summary.
it does seem to be the intolerances, let us hope they can find out what it is.


Sweetness, yuk!
Mrs L takes sweetners, and every now and then, I get the taste, while making a cuppa.
I literally have to scrape my tongue or they my teeth, sometimes, even toothpaste is too sickly.
Funny how much our taste buds change with all this keto or low carb stuff?

currently trying non-dairy and seem to be going a lot better, and will see how my gut is next week and what steps to take next I’ve said it before but I am genuinely fascinated by the effect gut dysbiosis can have on the endocrine system, I lost my period too for months (although that could have been down to stress or strange diet) and have only recently just had it come back. Also showed clear signs of malnutrition even though I was eating plenty- which just pushed so many things out of whack. Think the NHS should definitely prioritise looking into these sorts of things more, I lived a healthy and active lifestyle and had/have pretty good diet, it can happen to anyone.
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rosie04

Active Member
Messages
32
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
^ above graphs show how I would just sit low. So strange! I have an endocrinology appointment too next month to see what my hormones are up to. I did come up with quite low cortisol last year which I know can have an effect on insulin. Crazy stuff, but i’m getting there
 

Lamont D

Oracle
Messages
16,504
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
^ above graphs show how I would just sit low. So strange! I have an endocrinology appointment too next month to see what my hormones are up to. I did come up with quite low cortisol last year which I know can have an effect on insulin. Crazy stuff, but i’m getting there
It does seem odd that you are spending a lot of time low.
I do think that this is another form of hypoglycaemia rather than RH, but don't take it, I really know.
Very interesting.
And as you say it could be the cortisol or another hormone having an effect of a combination of more than one.
Make sure you take these readings from your CGM, to your appointment, along with your food intake.

And yes, your gut has a big say in your digestive system.
And I believe one of the causes of my RH, was bad bacteria, helicobactor pylori, and possibly the anti biotic that got rid of it. But my endocrinologist said, there is no real reason to know for sure.

I do hope you get sorted, you could do with a break from it all.
Good luck with your appointment, take care.
Best wishes.
 
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