Kimberleyart1
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Hello!
I am a 24 year old Mother who has had type 1 for 5 years now and I have had on and off bad control, when I was pregnant I became completely insulin resistant and my body just doesn’t seem to have gone back to how it was, I have really poor control at the moment and seem to be averaging a BM of 20 most days and Keytones at 2. The hospital don’t seem to be interested unless I go in through A&E which I refuse to do. I’ve also asked multiple times for a pump. I’ve tried everything I can and just feel so alone! It has effected my relationships and my mental health and I really don’t know what to do now!
Does anyone have any advise or help?
It will be so appreciated!
Thank you
Thank you @Knikki
Hello, welcome! Sorry you are feeling rubbishCould I ask have you spoken to your DSN or consultant about this? While ketones and high blood sugar is scary, an insulin pump is a tricky route. I am trying for one. There is a criteria that needs to be fulfilled - one of them is to complete a carb counting course. So what insulin are you using? Do you carb count? Have you done a carb counting course? When you were pregnant did your diabetes team offer any help that could bring you to discuss it again? Being a mum is tough, I’d urge you to get in contact with your diabetes team for the cooler gadgets, since it’s only your consultant can provide funding for things like CGMs and pumps and your GP to refer you for mental health help to improve your mood. Insulin resistance does happen to everyone, so I don’t know if you are going through the monthly hormones, or have something else going on that is causing your BG to be high. Any chances it has come down now?
I’ve tried to get appointments multiple times but they always get cancelled and I can’t seem to nail them down on the phone.
I do carb count and it doesn’t seem to work no matter what I do. I’ve done DAFNE a few times!
Hiya,I do carb count and adjust but nothing seems to work, I do 7 pricks a day but apparently that isn’t enough to qualify for a libre.
I am on fast acting Apidra and long acting Lantus
I’ll work on my profile didn’t realise it hasn’t saved x
I am sorry to hear about your diabetes issues. I am only a T2D and what I say should be treated only as a suggestion to be discussed with your doctor. It appears to me that you need to reduce the quantity of insulin you are taking and to do that you need to reduce your carbohydrate intake. It is important that this is monitored at all times so that any reduction in carbs is met with the appropriate reduction in insulin. You don't want to get to the point where your body thinks it is starving as that might risk ketoacidosis. You should therefore convert to eating a lot of vegetables, high level of fatty foods (butter, nuts, olive oil, eggs, etc.,) and meat for protein. Meat also contains fat and if your not vegetarian good for you. Fish and walnuts will also give you Omega 3.Hello!
I am a 24 year old Mother who has had type 1 for 5 years now and I have had on and off bad control, when I was pregnant I became completely insulin resistant and my body just doesn’t seem to have gone back to how it was, I have really poor control at the moment and seem to be averaging a BM of 20 most days and Keytones at 2. The hospital don’t seem to be interested unless I go in through A&E which I refuse to do. I’ve also asked multiple times for a pump. I’ve tried everything I can and just feel so alone! It has effected my relationships and my mental health and I really don’t know what to do now!
Does anyone have any advise or help?
It will be so appreciated!
Thank you
OP would be still be running high in spite of low carb if there is a lack of insulin on board or back ground insulin is not quite right. We need OP to try and get help as soon as possible because DKA is very serious. There are a whole host of factors why OP is having some insulin resistance, from hormones to bad injection sites.I am sorry to hear about your diabetes issues. I am only a T2D and what I say should be treated only as a suggestion to be discussed with your doctor. It appears to me that you need to reduce the quantity of insulin you are taking and to do that you need to reduce your carbohydrate intake. It is important that this is monitored at all times so that any reduction in carbs is met with the appropriate reduction in insulin. You don't want to get to the point where your body thinks it is starving as that might risk ketoacidosis. You should therefore convert to eating a lot of vegetables, high level of fatty foods (butter, nuts, olive oil, eggs, etc.,) and meat for protein. Meat also contains fat and if your not vegetarian good for you. Fish and walnuts will also give you Omega 3.
Eating fatty foods will not make you fat. If you can reduce your carb and insulin intake, your liver will eventually break down your own fats into ketones, which it will use instead of glucose (sugars) to feed from. This is a very stable energy source for your body which does not fluctuate. You will then only require to use a small amount of insulin to deal with the modest carbs in your body and maintain a steady blood sugar reading within the normal range of 4 to 6 that non-diabetics enjoy. The reduction in insulin will reduce and possibly resolve your insulin resistance.
Because T1Ds manually maintain their insulin levels depending on the carbs they take it is sometimes too easy for them to eat what they want and as much carbs as they want believing that they can simply deal with the sugar in the blood through their insulin intake. It can be forgotten that T1Ds can also suffer from insulin resistance in the body caused by having high levels of insulin over a prolonged period of time in the blood. This high level of insulin will over time be detrimental to your body as it leads to other health issues including neuropathy, retinopathy, kidney and heart problems and has also been linked to Alzheimer's. As you have discovered the insulin resistance means that your organs and muscles are not taking up the sugars from your blood and this in turn sends signals to your brain asking for more sugar, despite the fact that you have eaten. You then have to inject more insulin which is simply poring more petrol on the fire.
Insulin resistance is what T2Ds have to deal with on a daily basis and you need to adopt some of our methods of dealing with that issue. Moving to a low carb high fat diet (or keto diet) will not reverse your T1D, but it will at least stabilise it and keep it at a more constant low level, which should make it easier for you to control. Remember because you are a T1D it is not as easy for you as it is for a T2D to go straight into this diet, and you should do it slowly and with consultation with your doctor.
I hope this helps and wishing you well.
Any possibilities your GP could push it for you? Or refer you to a different hospital? I know I had a choice of two hospitals in this area or email tham? My DSN is more difficult to get hold of so I leave voice mails for her but my consultant has a different number & he is much easier to get in touch with. So I’m wondering if you can’t get in touch with your DSN, maybe try your consultant? Or are they under the same number? and my GP wrote another letter to my consultant about my diabetes control. I am struggling too so you aren’t alone on this one. It is difficult because we all want to help you without interfering your diabetes regimen. I know my consultant goes through a list of options before considering the pump route - identify what is the cause of high BG, change insulin, different ratios for different times of the day or meal (I know during DAFNE, other diabetics who were running high needed a different ratio at different meal times based on their insulin sensitivity), make sure your insulin doesn’t have fine line cracks, is in date and your injection sites are in check.
Hello @Kimberleyart1
How long is it since you gave birth ? It can take up to a year for the body to adjust after pregnancy with hormones settling down and this can impact on your control.
I agree, which is why I mentioned twice that it can only be considered after consultation with the lady's doctor and that it is monitored at all times. T1Ds are not immune from the dangers of high carb and high insulin intakes. Sooner or later Kimberleyart1 will have to address that issue particularly now that she is insulin resistant. The reason she cannot judge her present insulin to carb intake is because she has developed this resistance and more insulin is needed than she would normally take for the food consumed. The situation can also be more complicated because some T1Ds are on a slow releasing insulin which requires very controlled eating habits and cannot be adjusted easily when more or less insulin is required, which can then lead to hyperglycemia or hypoglycemia. For this reason any move to a low carb, high fat diet, must be subject to consultation with the patient's doctor and carefully monitored. In addition Kimberleyart1 is also noting high levels of ketones in her body. That means that her body cannot feed from the carbs already consumed and is going into starvation mode. If that is the case she needs to adapt her body to actually using and feed from the ketones rather than having then lying around and poisoning her system.@aealexandrou I understand your comments relate to the insulin resistance.
However, suggesting someone with type 1, high BG and ketones "to reduce the quantity of insulin you are taking" is dangerous.
The suggestion to reduce carb intake has been suggested and could be useful but no no no no no with regard to reducing insulin until the OP's BG is reduced.
I hope you're okay, if you urgently need help now please call NHS111. We all know high BG and ketones is not very nice. there are pump friendly hospitals, you might need a google search to see which one is available in your area or if your GP is willing to refer you to that hospital - it could be a long stretch.My consultant is the issue she’s always cancelling clinics not just for me but for everyone and she’s the only consultant at my hospital
I never thought of asking my gp if there is another hospital I could use. I’ll try that next!
OP would be still be running high in spite of low carb if there is a lack of insulin on board or back ground insulin is not quite right. We need OP to try and get help as soon as possible because DKA is very serious. There are a whole host of factors why OP is having some insulin resistance, from hormones to bad injection sites.
I agree, insulin resistance (however it is caused) means that increasing doses of insulin is required to deal with her food intake. I would also assume she is also feeling hungry on a regular basis which in turn results in higher intake of carb rich foods. Clearly Kimberleyart1 has been asking from help for some time and not unusually it is not forthcoming. Until that help does materialise her diabetes doctor can at least help her try to restore balance in her diet, as suggested, to mitigate for the excessive insulin and I would imagine carbs, the two usually go hand in hand, because she cannot carry on as she has been indefinitely as it can only worsen.OP would be still be running high in spite of low carb if there is a lack of insulin on board or back ground insulin is not quite right. We need OP to try and get help as soon as possible because DKA is very serious. There are a whole host of factors why OP is having some insulin resistance, from hormones to bad injection sites.
@Kimberleyart1 has had some good advice I’m posts above. Unfortunately for T1 there is not always a linear relationship between carbs and numbers. Getting help from the medics is a great idea but ultimately diabetes is self managed so we need to stay on top of dose adjusting and life balance high goes beyond simple carb management.I agree, insulin resistance (however it is caused) means that increasing doses of insulin is required to deal with her food intake. I would also assume she is also feeling hungry on a regular basis which in turn results in higher intake of carb rich foods. Clearly Kimberleyart1 has been asking from help for some time and not unusually it is not forthcoming. Until that help does materialise her diabetes doctor can at least help her try to restore balance in her diet, as suggested, to mitigate for the excessive insulin and I would imagine carbs, the two usually go hand in hand, because she cannot carry on as she has been indefinitely as it can only worsen.
Extra insulin is also required to deal with excess amount of ketones too. While I agree that low carb does help, OP could maybe consider low carb in the future once she has resolved this high BG situation. I don't think it is just diet we need to comment on, anything can contribute to OP's high blood sugar. I also think mental health and high BGs going hand in hand too.I agree, insulin resistance (however it is caused) means that increasing doses of insulin is required to deal with her food intake. I would also assume she is also feeling hungry on a regular basis which in turn results in higher intake of carb rich foods. Clearly Kimberleyart1 has been asking from help for some time and not unusually it is not forthcoming. Until that help does materialise her diabetes doctor can at least help her try to restore balance in her diet, as suggested, to mitigate for the excessive insulin and I would imagine carbs, the two usually go hand in hand, because she cannot carry on as she has been indefinitely as it can only worsen.
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