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I don't like being diabetic

How are you struggling with that, @Julia is a type 1diabetic ?
What is your usual day like?
I'm sure you'll get loads of people supporting you and reflecting on what you're doing, how it's going, your feelings about it will help direct their comments and likely give you additional insights.
ATB
Mat
 
It would help to know how high your bgs are and what type of insulin regime you are on. Are your diabetic team giving you any help?

If you just want to vent, lots of T1s are here for you, and if you want advice on lowering levels (disclaimer we can't give specific dosing advice) we may be able to make some helpful suggestions.
 
Are you on fixed doses of insulin, or do you carb count and adjust your insulin depending on what you eat?

There's a wealth of knowledge on this forum, but we can't really help unless you're willing to give us a bit more information. It's entirely up to you, but no one's going to judge you for eating something.
 
Julia is a type 1diabetic said:
It's when I have lots of naughty things
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I don't think there are naughty things, just foods difficult to dose for.
How do you dose for those foods?

Alternatively, you could see if it works for you to snack on things that are more easy to dose for. We don't know what your 'naughty things' are, but I know for me, snacking is something I love. I don't think it's naughty, I just learned to choose snacks I can dose my insulin for.

If you share what those foods are for you, maybe we can give you some tips. :)
 
Hopeful34 said:
Are you on fixed doses of insulin, or do you carb count and adjust your insulin depending on what you eat?

There's a wealth of knowledge on this forum, but we can't really help unless you're willing to give us a bit more information. It's entirely up to you, but no one's going to judge you for eating something.
Click to expand...
No I'm not carb counting but I only do insulin in evening before dinner and I'm on 5 units
 
Hi Julie and welcome, it can be very hard living with this condition but there is lots you can do to help yourself, and it may even make you feel healthier by following a better lifestyle! Your diabetic nurse should hopefully be giving you lots of advice re food and mealtimes, many type 1s take multiple injections as we eat more than 1 meal a day. That's your fast acting or bolus insulin, then at bedtime you generally take a long acting insulin (basal) to see you through the night.

Carb counting is an excellent method of seeing how much insulin you need and is really straightforward, there is a DAFNE course your DN may well have already signposted you to?

The folk here are great and have lots of experience yo share, maybe if you tell what your average day/meals/activity is we can help you out as you learn to adjust.
 
Julia is a type 1diabetic said:
Humlin
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Which type of Humulin? Humulin comes in different types, thre are mixed insulins and intermediate acting insulins.
Neither of them are usually taken only once a day.

Are you treated by your GP or are you seeing an endocrinologist and diabetes specialist nurse for your diabetes?
 
Antje77 said:
Which type of Humulin? Humulin comes in different types, thre are mixed insulins and intermediate acting insulins.
Neither of them are usually taken only once a day.

Are you treated by your GP or are you seeing an endocrinologist and diabetes specialist nurse for your diabetes?
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Humlin M3 and I was told to take one a day but I used to take it twice a day
 
Julia is a type 1diabetic said:
Humlin M3 and I was told to take one a day but I used to take it twice a day
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This is a mixed insulin, which means you'd need to eat pretty much at set times and eat set amounts of carbs for each meal.
It has a long acting insulin which is meant to keep you stable without eating, and a quicker acting insulin to deal with the carbs in your food, So it's not easy to adjust doses depending on what or when you eat.

For instance, if you want to skip a meal, you don't need the quick acting insulin. But you'd still need the longer acting one so you can't skip the injection. Which will make you go low without food because it also holds the quick acting stuff.
Likewise, you can't adjust the quick acting and take more if you have more carbs than usual, because that would increase the long acting as well.

Most of us use a basal and bolus regime, meaning we use two types of insulin in separate pens.
The long acting or basal is the same dose every day, and it should keep us more or less stable without food.
The quick acting dose changes from meal to meal, depending on the amount of carbs in the meal.

So basal/bolus is more work, because you need to find out how much insulin you need to how many carbs, and then you have to calculate the amount of carbs for everything you eat to work out your dose.
But it's also much more flexible, and the quick acting can be used for corrections as well if you're high.

Are you treated by your GP or by a specialist?
If you'd be interested in trying if a basal/bolus system would work better for you you can bring this up with your diabetes nurse to see how they feel about it.
 
Antje77 said:
This is a mixed insulin, which means you'd need to eat pretty much at set times and eat set amounts of carbs for each meal.
It has a long acting insulin which is meant to keep you stable without eating, and a quicker acting insulin to deal with the carbs in your food, So it's not easy to adjust doses depending on what or when you eat.

For instance, if you want to skip a meal, you don't need the quick acting insulin. But you'd still need the longer acting one so you can't skip the injection. Which will make you go low without food because it also holds the quick acting stuff.
Likewise, you can't adjust the quick acting and take more if you have more carbs than usual, because that would increase the long acting as well.

Most of us use a basal and bolus regime, meaning we use two types of insulin in separate pens.
The long acting or basal is the same dose every day, and it should keep us more or less stable without food.
The quick acting dose changes from meal to meal, depending on the amount of carbs in the meal.

So basal/bolus is more work, because you need to find out how much insulin you need to how many carbs, and then you have to calculate the amount of carbs for everything you eat to work out your dose.
But it's also much more flexible, and the quick acting can be used for corrections as well if you're high.

Are you treated by your GP or by a specialist?
If you'd be interested in trying if a basal/bolus system would work better for you you can bring this up with your diabetes nurse to see how they feel about it.
Click to expand...
I have not been told to bolgus insulin
 
Julia is a type 1diabetic said:
I have not been told to bolgus insulin
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That's because you are on a mixed insulin which has the bolus in it.
But the way you currently treat your diabetes doesn't work very well so it might be worth discussing with your diabetes nurse if something can be changed.
 
@Julia is a type 1diabetic the insulin regime you are on us very old fashioned and restrictive. I was taken off this regime 20 years ago and put on a much more flexible regime.
I would rather not have diabetes but have accepted it. I think if I was on a fixed dose mixed insulin as you are, I too would have much stronger emotions towards it you do.
You have not been given the correct tools to manage your condition and live a fulfilling life.
Please, request a modern treatment with basal and bolus insulin along with Libre to monitor it.
I also highly recommend a course like DAFNE to teach you the skills you need.
 
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