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I feel alone!! :(

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Hello....I'm Hannah I'm 20 years old, I got told I had type 2 diabetes about 11 weeks ago now, it's been a nightmare. Seem to live at the hospital latley.... Blood tests! Scans! Eye checks! Bloody checking! It's only been 11 weeks and I'm already fed up. I have my good and bad days, but latley it seems to be all bad days! I'm waiting for my results on my womb,overies,liver and kidney results so I'm kinda stressing about that. I do have amazing friends and family I know I can talk to them, but to be honest they don't understand, how can they really? Joining this site as made me realise I'm not on my own, reading some of these posts make me realise there is so many people going through the same thing. It would be nice to get chatting to some people who knows what it's like, I've got so many questions and just no one to ask, is it normal to have mood swings? How much sugar can I have? Or Can't I have none? What do people do for a pick me up? Do I need to have any kind of jabs? Why do my bones hurt? Ectt ...... I feel so scared deep down, I will keep smiling thou ?? Because I believe everything happens for a reason, so if your feeling scared, lonely, believe me your not alone xxxx
 
One thing's for certain HannaLouise, you are not on your own! Welcome to the forum, we'll do our best to help and support you and answer any questions you have.

On the subject of sugar - for the most part its best avoided, sugar and products high in sugar can cause your blood sugar to rise very quickly. Having high blood sugars once in a blue moon when you have got them mostly under control is ok, but regular high blood sugars can lead to some nasty complications. Its why you are going through all of these tests at the moment to find out if any damage has already been done.

There are lots of lovely recipes on this forum - alternatives to our old favorites, which I am working through.
 
Hi Hannah and welcome to the forum :)

You will meet lots of people on this forum who have similar problems who you can share experiences with. I have made many good friends on here as you will too. You will soon turn your :( into a :D ! Diabetes is something you get used to and all the tests you are going through at the moment will be finished soon. Anything you need to know - just ask and there is always someone here to help.

Here is the information which we give to new members and I hope you will find it helpful, maybe answering some of your questions.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
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Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
Thank you both so much for the advice I need to sit down and really look into this .... Knowing that there is so many people out there like me....makes me feel a lot better already xxxxx
 
Welcome Hannah Louise,

You are in the right place for answers to an questions that you may have regarding your diabetes.

you will also find a wealth of support from the many lovely people here on thie forum.

hope you feel even better soon.

regards

Bernie
x
 
Hi, Hannah :)

Welcome to the forum,

Best not to rush out and buy expensive things until you know what you really need and at a good price, eg; BG meter and strips from Amazon are a lot cheaper than some chemist.

You will get lots of friendly help from this lovely forum.

Good Luck.

Roy. :)
 
Hi HannaLouise, hello all, I get exactly what you are saying I was only diagnosed last Thursday and I have been given a mass of appointments to attend test here and test there monitor this and that. The best place you can be is here I am still a recent joiner but no longer am I miserable about having diabetes because of exactly what you stated you are most definately not alone, there a gret bunch of people here and some with good knowledge and long time experience of all types of diabetes. If I start to feel unhappy in myself I log on and remember I am not the only one, and that sharing your concerns and worries always seem so bring an encouraging and genuine response froma wide variety of people. Welcome.

best wishes

Simon aka Ccobra3164
 
Hello HannaLouise ... Hello Cobra ... welcome to the forum ... you've come to the right place. As Daisy said you'll get through all your appointments and things will settle down and everything will slot into place. You can relax knowing that you're in good company with people who know how you feel. Keep posting and asking questions ... every question helps someone else too. :)
 
i HannaLouise
I am 60 (in three days! stretching it out as long as I can!) T1 for 16 years. Mad as a box of frogs.

Here's some observations:

Be grateful of the tests they perform - a lot of illnesses and conditions that non-diabetics just don't get diagnosed. I get my BG daily, BP at least quarterly (I have my own BP Meter and I gt a BP about three or four times a week), weight weekly, heart listened to, major organs sussed out (I have had so many needles in my veins that I can now watch the doctor/phlebotomist ease the catheta under the skin - scary stuff at first. Then it becomes a badge of honour. I don't like injections, I used to think/. I positively look forward to having my bloods done. ENUFF SED?

Diabetes is only a word. What you make of it is up to you. You will find that you have a rite of passage ahead of you. Blood pests (did I really type that? What would Freud say?). You will make friends with your diabetic specialist nurse, the phlebotomist (Count Dracula or a colleague) and your doctor. If your don't get sympathy, change your doctor. It's tough enough keeping on the path without fighting someone who should be on your side.

Injecting is a breeze. A little scratch, IF THAT, and it's done. I can't remember the last time I had any problems with one. The worst of it is finding somewhere sympatico if you are out for a while. (That includes sympathetic friends who encouorage you.

It's not the end of puddings, sweets etc It is the end of stuffing a full bar of Swiss chocolate, or lunching on a Mars Bar. I still have pudding, when I've not had a regular sized meal, with carbos, I just don't do it every day.

Mostly: YOU ARE NOT ALONE, NOT A FREAK, you are perfect as you are. :crazy:

Robert WT
 
Lately my friends have stopped texting me and I feel I have nobody to talk to. I know I havent done anything wrong so idk whats going on. Im always felt like ive been a second thought to my friends, but never like this. I cant make new friends because i go to a small school and these friends are the only people i like in the school. How do i make myself stop feeling so lonely?
[link removed]
 
Hi Hannah. Welcome to the forum and as others have said - you are not alone. You will make a lot of friends here.

Hi Mandy. Guess you now know who your real friends are eh? "Proper" friends will stick by you no matter what. You haven't mentioned if you're Type 1 or 2 (or whatever)
 
Hi Hannah. Well you are certainly getting a lot of medical attention. Most people here complain that they get nothing at all or very little and that was certainly my experience. I was given a leaflet produced by a registered charity. So, my first question is how do you do it?

What makes these experiences unpleasant is that no one ever seems to take the time to explain what is going on. Very few get told was the results of the tests are and fewer have them explained. I know it doesn't seem like it, but you are getting a good service by the sounds of things. Use this forum to find out what questions you should be asking and I would suggest that one of the first is to find out what your blood readings were when you were diagnosed.
 
Best not to rush out and buy expensive things until you know what you really need and at a good price, eg; BG meter and strips from Amazon are a lot cheaper than some chemist.
https://www.type2testing.com/ is also a good alternative for buying test strips from Amazon. Takes out a lot of the hassle of re-ordering and what not, and also offers a full testing plan and advice on how to interpret and use the results from your meter.
 
Hello both! This forum is exactly the place to be. Some people on here have had diabetes for as long as your nurses will have been alive which is great because they'll have all the answers you'll ever need!
You'll find lots of answers and advice i know I have! Your definitely not alone and I've only had diabetes a year and I've learnt so much as you will do too!
Having diabetes is hard but always remember control it and don't let it control you. Don't let it take over your life!

Xxxx
 
Yes it's a year for me as well, and still a shock, but there is some good support on this site, do what is always right for you though x
 
Lately my friends have stopped texting me and I feel I have nobody to talk to. I know I havent done anything wrong so idk whats going on. Im always felt like ive been a second thought to my friends, but never like this. I cant make new friends because i go to a small school and these friends are the only people i like in the school. How do i make myself stop feeling so lonely?
[link removed]

:playful: Hi, Mandy, and Welcome!

You are in the right place if you are looking for support, encouragement and friendship. Hang around and you'll connect with some very lovely people here.

I'm a lot older than you, but, even in my circle of IRL friends, people all have different reactions to my DB. One chap (who is a bit daft and dodgy to begin with:confused:) asks me how I am, and then when I'm telling him the latest about my successes, or, frustration with my DB, he rushes me along as though he doesn't really want to listen. I told him to not bother asking if he doesn't really want to hear the latest on my health.

But, people can react in the extreme other direction too, as has another chap who sent me 2 vials of test strips for my meter. it was totally unexpected and very well appreciated by me.

I have found that regardless of the type of illness I may have, throughout my life, people can act strange and unpredictable regarding such. Some people cannot deal with knowing about illness in a friend or loved one. This can be because they are afraid of losing you, or, it reminds them of their own mortality, or, they really have no patience with illness, neither in themselves, nor, in others. Sometimes it's as simple as the fact that some people are very selfish and self-centered.

Anyway, I hope that you find the support and understanding that you are looking for on here, and/or IRL. Best to you!
 
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Dear Hannah Loiuse, Welcome, to the Forum, this Certainly is your Lucky Day !?!

Here you will find the Worst, the Best, and everyone in between,

You'll find many you Love, and a few You'll Hate,

The Advice, Experience, and Knowledge are Second to None,

Be careful, and Check all advice and info with your Doctor, or Diabetes Team,

Ask any Question you want, Share our own experiences,

As for feeling alone, Everone here, at one time or another as felt Alone to one extent or another,

Diabetes is often a Shock, Alwas a Challenge, and Never ever easy,

But don't be scared,

Yes other people get scared of your New Needs, few understand, and the rest back off,

You have to gently, and slowly educate them, look for those who already know to help with mutual friends,

Keep coming here, keep asking questions, keep looking into the desease your saddled with, theres only around 800,000 of us are members here !

Soon the whole world will know how tough it is, but how the don't need to worry around you,

OK maybe not the whole world, but your newly educated inner cicle will,

This place is for me, one of the BEST Websites in the world,

And here I've met some of my closest and dearest friends,

You wont always feel this way, and you'll learn to control both your Diabetes, and the Attitude of those closest to you,

Best Regards.

Love and. Hugs.

Kevin and Wendie

xxx.
 
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Have all the tests you can because you will know if any damage from high sugar levels has already occurred, and if it has, remember, it could be reversible. I'm sure you'll get to grips with this nasty business. You sound very level-headed and that is half the battle. You will be on one of the best eating regimes anyone can be on. The idea now is to keep your Blood Glucose levels within a safe range and prevent any of the complications that come with Diabetes.
:watching:
 
Have all the tests you can because you will know if any damage from high sugar levels has already occurred, and if it has, remember, it could be reversible. I'm sure you'll get to grips with this nasty business. You sound very level-headed and that is half the battle. You will be on one of the best eating regimes anyone can be on. The idea now is to keep your Blood Glucose levels within a safe range and prevent any of the complications that come with Diabetes.
:watching:


Well Said DiamondAsh
 
Hi Hannah and Mandy!
I too have recently been diagnosed as T2 and have found this site to be a valuable lifeline. There are some really kind and helpful people here - as we are all going through the same thing! My advice would be to read everything you can, don't be afraid to ask, gey a cheap bs monitor. The ones in the shops often have expensive strips so check out amazon and ebay. My chemist is going to try and order in my strips at the same price as the internet. Depends on who's paying for them. If it's you I would recommend the SD codefree as the strips cost£7 as opposed to£25. I keep a food diary of what I eat and take my bs before and 2 hours after meals. All of this makes me feel I am in control.
Mandy - if these people choose not to be friends it's their loss, not yours. Why not look around and see if there are not some clubs which you can join. If you feel down about your diabetes there are loads of lovely people here who will talk to you. Just start a thread.
Good luck and happiness to both of you.x
 
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