joules
Well-Known Member
- Messages
- 71
- Location
- London, UK
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Autoimmune issues
While I'm happy that your secondary issues have been helped, I think it's dangerous and unkind to say that. Every so often we have desperate parents here asking about miracle diets or, worse, saying they're trying one they found on the internet to help their newly diagnosed child.
So suggesting there's a cure if only they - and we - look hard enough is inaccurate at best, soul destroying at worse when the parents (and others) find that simply isn't true.
I wish it was - but it isn't.
Joules, it's great that you have reversed 'secondary' conditions, however making claims about the reversal of type 1 is misleading, it is not possible, unless you can generate re-growth or a replacement of your pancreas then it's not wise to make claims on a public forum about 'reversal', however in newly diagnosed you can extend the honeymoon period of the pancreas, simply by keeping BG levels well controlled for as long as possible, however eventually the flame will flicker and insulin requirements will increase.
It is possible to orchestrate the actions of the pancreas simply by using technology to create a loop with an insulin pump and a cgm, it is not possible to revive the pancreas or indeed reverse type 1.
I would like to think that in our lifetime we could at least discover the trigger for the auto-immune attack and in doing so help prevent more people being diagnosed with type 1, so suggesting to others to 'go do the research' is misleading others with false hope.
A long time ago Joules - whilst not Coeliac, I'm not the best with Gluten....Everyone is different. My thyroids are back to normaland i have lost weight considerably. Did you quit wheat @tim2000s ?
That's great and have also been checking Turmeric out, made a tea for the first time only last week and am gonna get some more in
Hope this info helps others as it has me.
On taking the L-Glucamine you'll notice a great deal change re weight loss, need of carbs will drop, hypos also will drop off.
I do
I have several autoimmune things - psoriatic arthritis (PsA) 4 yrs ago (I’m 64). UC in past. Now low thyroid and Hashimoto’s. Not sure which kind of diabetes. List expanding.Maybe I didn't make myself clear, I was referring to secondary issues of diabetes and autoimmune problems which have been fixed despite what Drs said. As they are to do with diabetes i mentioned diabetes, though didn't mean in my text that I've reversed diabetes, by no means. There has been a huge improvement however and i think that going to the root of an issue is the start to turning things around.
If there's anything that needs researching for anyone here, it's prevention rather than cure and of course, take insulin and do your tests for optimal control of course!
My diabetes is not gone by no means, though I'll never say never.
Anyone with thyroid issues with a Dr that says you have to take drugs forever, well my experience is that that can be reversed careless of what the drug world says. I prefer to find a natural way and with that, i beat the Dr and fixed what he said is impossible.
That's my personal experience and i don't blame anyone for being a sceptic.
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Pancreas islets have been successfully transplanted in humans. This IS a cure for T1. Early research (trials) - 5 yr success rate ca 70% in suitable candidates. Caveats. Saying it can’t/ won’t be cured is not correct. When will it be routine? Don’t know. Some pple will never be eligible. But we didn’t transplant hearts not so long ago. Then there is stem cell therapy…
I don’t know if I’m allowed to post links - in case not - search on Islets transplantation - 8 Aug 2023. Or at:
I have several autoimmune things - psoriatic arthritis (PsA) 4 yrs ago (I’m 64). UC in past. Now low thyroid and Hashimoto’s. Not sure which kind of diabetes. List expanding.
I know this is a diabetes forum - but… are the majority of diabetics ‘only’ diabetic? ie In isolation? Those pple are ‘lucky’ (not minimising anyone’s anguish here).
I’m on a ‘biological’ (Tremfya - anti Interleukin 23.) Had terrible vision /balance/ hearing issues. Improved. My biology won’t process / digest only proteins and fat. You need right DNA to make the right enzymes in quantity. Or your immune system may kick up and make you sicker. You can tinker round the edges of your DNA (ie epigenetics - how environment alters genes). But you can’t ‘train up’ what you don’t have in the first place.
You can pay for tests (if you have a little money) - to find out about SOME of your DNA driven metabolic tendencies - as well as immune ones. May save time and stress in food experimentation possibly.
Autoimmune diseases make many blood tests unreliable. Incl the Hb1Ac test. There’s a big interpretive reliance on that number… it’s useful to know this if you have autoimmune issues. (Other factors also affect Hb1Ac. The list is surprisingly long.) Sorry if this is repeats info elsewhere.
I applaud support on this forum for not accepting blindly everything you’re told by medicos. Self help through shared experience is clearly making a huge difference to pple.. Equally - I feel for this poster - who was just trying to explain. I got your message. Thank you.
Pancreas islets have been successfully transplanted in humans. This IS a cure for T1. Early research (trials) - 5 yr success rate ca 70% in suitable candidates. Caveats. Saying it can’t/ won’t be cured is not correct. When will it be routine? Don’t know. Some pple will never be eligible. But we didn’t transplant hearts not so long ago. Then there is stem cell therapy…
I don’t know if I’m allowed to post links - in case not - search on Islets transplantation - 8 Aug 2023. Or at:
This site was started by someone who had a family member with diabetes, very much not a drug company.Have read that all autoimmune problems can be reversed with L-Glutamine and am surprised it's not mentioned here, which is a major surprise. Who runs this website?? A drug company maybe??
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Am still taking L-Glutamine morning and night and have also added a teaspoon of extra coconut oil daily instead of the fish oils. Am intrigued by the next check mid Feb '17...
Hope this info helps others as it has me.
<snip>
Have read that all autoimmune problems can be reversed with L-Glutamine and am surprised it's not mentioned here, which is a major surprise. Who runs this website?? A drug company maybe??
Yes you are absolutely right. Hence I noted there were caveats. These meds are ‘easier’ to tolerate these days as have been refined (info from heart/lung transplant patients who lived a long time). However if stem cell therapy can eventually be applied - and/or DNA technology called ‘Crisper’ (literally cuts and rejoins and if nec - inserts new DNA) - then immunosuppressants will not be needed. Stem cell therapy (autologous - ie own cells) already on market - more research needed for complex cell types. Crisper is the basis of all the so-called GM (gene modified) foods - and ‘successful’ for years now. Humans - they already use Crisper to delete poor DNA in a couple of terrible diseases in young children. Very specific DNA mods. Nearly 100% success rate. And then they live a normal life. Trials ca 5 yr point. Crisper has been around a while (>10yrs). It’s a matter of funding for research - and the transplant academics are technically in competition with the other crowd. Which part of ‘cell production’ line will need to be edited / reproduced in a baby/child? Don’t know. But the principles behind this research theoretically will treat a myriad of ‘born with’ conditions. So funding competition also in that respect. Complexity of islets (or their precursors; or post - late onset T1) is another issue. Science / gov funders will fund the ‘sexy’ research first. These first Crisper cases are treating very rare diseases. Possibly there’s an economic argument for DB1. I was trying to signal hope. I also have impression T1s on this site seem to get things under control (better?) than other types. Which would lessen ec argument. Possibly. Could be wrong.However an islet transplant still requires the recipient to take anti-rejection medication, which has it's own risks.
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