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I had a few problems on my original diagnosis

bamba

Well-Known Member
Messages
319
Type of diabetes
Type 2
I have normally had annual screening around June for a diabetes risk assessment after having had a stroke in 2014 "an acute lacuna infarct affecting the posterior aspect of the left putemen, extending to the corona radiata" . ( Funny how some things can stick in the memory ).

Blood pressure at time of event 200/120 mmHg - Put on ACE Inihibitor, Calcium uptake blocker, Beta-blocker, Anti-coagulant and Statin.

This year the test was late and I chased it up with GP - twice.

On both occasions I had fasted in preparation for expected blood test, on the second time surgery phlebotomist had
finished for the day so I took form to local hospital blood test service. This was on the last day of July.

I heard nothing in August, which is a very busy time where I work at an FE college, and chased the result mid September
after main enrolment rush had ended.

I was asked to make an urgent appointment.

In the surgery my blood glucose was 22 mmol/L - retested on another meter - 21 mmol/L.

My foot was tested - I could feel the bristle on my toes and also the tuning fork on my ankle and could see but not feel it vibrating.

I was told I would have an appointment with a diabetic nurse, but as they were very busy it might take up to six weeks.

My GP put me on 2x500 mg Metformin and Glicazide, given a meter + strips and told to stop taking the Glicazide if my glucose levels reached 5 mmol/L.

(A week later I had a text message from the surgery - saying I was at risk of Diabetes and to make an Urgent appointment. I actually found that funny - but so much for my sense of humour).

Over a month I brought my blood glucose down to 7 to 8 and was told to stop taking the Glicazide daily, but to take half a tablet if it got "too high" (value unspecified) and to "only test twice a week". Metformin increased to 3x500mg per diem.

I also had another HbA1c test.

At the end of the month I asked the reception staff about the DN appointment, as on a timeline of six weeks - a date should have been set.

Was assured appointment had been made.

At two months I asked again.

At three months I phoned up the Community Health organisation which runs the Diabetic Nurse service, they had had no booking for me.

I phoned the surgery reception and they said that they would "Fax the booking again".

At the end of December an appointment notification arrived - for a Dietician.

I rang up the surgery to query this and was given a telephone appointment. Was told to see dietician - but left a form for more blood tests.

Due to holiday times I had the (fasting) blood tests on 2nd January before work at 08:00.

I rang up the surgery for the test results prior to seeing the Dietician. I also ask for the historical HbA1c values to gain idea of progression.

I was told:
2016 January:_48
2017 July:____53
2017 October:_62
2018 January:_63

I was rather discouraged by this, as between September and January I had dieted and lost a fair amount of weight - 106.4 kg to 89.0 kg and had blood sugar readings between 5.0 and 6.5. ( Apart from a spike of 15.4 mid-December which I blamed on the mashed potato in a Wetherspoons Xmas dinner).

I also put it down to not being strict enough with myself over Christmas.

When I see the Dietician I am told that:
The surgery had specifically requested a Diabetic Dietician appointment - not Diabetic Nurse.
There is however a free slot the following week.
I am weighed - given a further appointment for April and told about the eatwell plate.
I finally get to see the Diabetic Nurse.
He accesses my data from the Surgery.
The January HbA1c was apparently mis-reported - it was actually 31.
He is surprised (I get the impression - appalled) by the amount of testing my graphs show.
[ notes say "this is a very empowered patient" - I think may need a 'translation' of this]
I am set a new HbA1c target of 53.
Metformin increased to 2x1000mg.
I am told there is no real need to test.

I have been following a moderately low carb diet - I seem to be able to tolerate about 30g in a meal.
I shall of course go on testing - even if I have to pay for the strips myself.
 
@bamba That is just a comedy of errors, and would be funny if it weren't so blo*dy awful.

One thing I don't understand is if the last January HbA1c of 63 was misreported and was really 31, how come your target has been set at 53? Did you query how and who misreported it? Perhaps asking for a print out of the lab report would be helpful. I think you need to know which is was so you can move forward.
 
@Bluetit1802
I had the original report over the telephone - the 31 was shown to me on the screen and is on the printed report - which I was copied in to.

The target of 53 is, apparently, the NICE standard target for diabetics on oral medication, though I thought at the time he was subtracting a number from my age, as he had just asked me how old I was.
 
@Boo1979
I have bought the codefree - which shows somehwhat higher than the GlucoRx Nexus the surgery gave me - which was why I accepted the orginal result of 63. This was the one I used over Christmas. The nexus strips having run out.

I understand that it's possible that the Nexus is giving capillary blood values as found - but the codefree is "adjusting" to presumed plasma values - though I may well be mistaken in this.
 
I think the 53 target is more for people on medications that can cause hypos - its higher than the target range for people on meds like metformin that cant cause hypos or who are controlled diet alone - the target for those groups is hba1c under 48. The reason its higher is because ver tight control increases hypo risk which is a risk factor in itself
That having been said I am on Gliclazide which can cause hypos but aim to keep my day to day sugars within a 4-7.8 mmolrange which Im currently managing to do 91% of the time - that gives a projected hba1c of 39.8
 
That DN needs to go back and read the NICE recommendations from 2015. Anyway, as you have already achieved your target, and some, no need to worry.

https://www.nice.org.uk/guidance/ng28/chapter/1-Recommendations#blood-glucose-management-2

Targets
1.6.5 Involve adults with type 2 diabetes in decisions about their individual HbA1c target. Encourage them to achieve the target and maintain it unless any resulting adverse effects (including hypoglycaemia), or their efforts to achieve their target, impair their quality of life. [new 2015]

1.6.7 For adults with type 2 diabetes managed either by lifestyle and diet, or by lifestyle and diet combined with a single drug not associated with hypoglycaemia, support the person to aim for an HbA1c level of 48 mmol/mol (6.5%). For adults on a drug associated with hypoglycaemia, support the person to aim for an HbA1c level of 53 mmol/mol (7.0%). [new 2015]

I understand that it's possible that the Nexus is giving capillary blood values as found - but the codefree is "adjusting" to presumed plasma values - though I may well be mistaken in this.

The Codefree is definitely calibrated to convert the capillary to plasma. I believe most meters are these days unless you have a very old one. Some meters have the calibration in the strips, so old meters are still usable.
 
@Bluetit1802
I had the original report over the telephone - the 31 was shown to me on the screen and is on the printed report - which I was copied in to.

The target of 53 is, apparently, the NICE standard target for diabetics on oral medication, though I thought at the time he was subtracting a number from my age, as he had just asked me how old I was.
@bamba unless I’ve misinterpreted your posts what he is in effect suggesting you do is go from being in the non-diabetic range to diabetic range - that seems a bit perverse and, quite frankly, stupid to me. I hope you have given this suggestion a stiff ignoring.
 
Have you considered changing surgery?
They don't seem to be able to organise a drinking session in a brewery.

You might be able to get a specialist clinic to take over your care if there is one in easy reach.
 
53 is the level that complications start to become common, hence they are happily provided we remain below it. It would be better if it was called "trigger" not "target", as it is the level that triggers them to take more actions. (GPs, also get pay a little more if we remain under 53.)
 
Have you considered changing surgery?
They don't seem to be able to organise a drinking session in a brewery.

You might be able to get a specialist clinic to take over your care if there is one in easy reach.

I think, to be fair, that he is trying to cushion me from taking drastic measures to get even lower.

I have lost 3 stones since diagnosis, and expressed a wish to lose at least 2 more to reach a healthy BMI and he may be trying to tell me not to rush it following a diet that will fail in the long term because I won't stick to it.

I also suppose that he's warning me that I am at the early phase of a progressive condition.

My GP has told me that I have this for life.

I believe him in that respect and will act on that.

I have a colleague who tells me that she had been diabetic, but her GP says she is only "pre-diabetic" now. She has relaxed her diet and never tests, apparently didn't do so before.

I hope to be in this for the long run and definately don't want "sugar coating" on this one.
 
your colleague iis heading for a nasty shock. you seem to be doing a pretty decent job as you still just about on blood lowering med you are still entitled to glucose testing strips its worth a try.
 
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