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I hate Diabetes!

Discussion in 'Type 1 Diabetes' started by kelp84, Jul 19, 2011.

  1. GlucoseKnight

    GlucoseKnight · Member

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    Hi There
    I completely understand how you feel, I have had Diabetes T1 for 31 years and I have had ups and downs with my levels for years. I have had intermuscular injections because they went so high, have been in hospital a few times with very low sugars and my HBa1C have normally been around 11-13.
    I went on the Daphne course (or something similar) and it was fantastic, I found I had to decrease my insulin intake and learning to count my Carbs correctly, makes a huge difference.
    I have Diabetes Retinopathy, Necrobiosis Lipoidica Diabeticurum on both my legs and have recently been diagnosed with Gastroperisis so as you can imagine, I have had some challenges.
    I used to be terrible at doing blood tests, i was luckily if I did a few a week but being on the Dafne course and speaking with other Diabetics, it changed the way I wanted to deal with it. I now do 4 -6 blood sugar tests a day and at the end of this month I am going on the Insulin pump.
    I still have my off days and I ask myself every day why I have Diabetes and I am the only one in our family who has it but the facts are, I have it and the only person that can help me is myself.
    This forum is fantastic for speaking to other Diabetics, gaining information and getting the support you need.
    I wish you look in finding an inner calm with your Diabetes, take all the help you can from your Diabetic Team and use this forum to speak to other Diabetics, it sometimes helps.
    Goodluck .. :D
     
  2. TheBoyCalledSam

    TheBoyCalledSam · Member

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    Hello

    I understand why you hate diabetes I hate it aswel, I had to spend my 5th birthday in hospital. I was diagnosed on my 5th birthday. And my sugar levels run high alot and every time I go to the doctors they are telling me somthing different. So I think hey if I do somthing wrong and they stay high forever its because I havent beed told what to do. I dont think doctors without diabetes know what to do and what to tell people.
     
  3. sicko666

    sicko666 Type 1 · Well-Known Member

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    Lol see the truth is out people do actually HATE the blinking disease and its really only a few who seem to actually not mind it! ;)
    I have had it since a baby and thats now knocking on for 36years ( and hated every year of it! ). I even was sent to a boarding school as a child were every carb was counted and they couldnt keep my levels balanced! The number of times i woke up in the sisters emergency bed or in a hospital well lets say i just didnt bother counting after a while....
    At the moment i have to keep my sugars high because if i dont i can plumit like a stone and trigger an epileptic seizer. So i am stuck with a "you will have serious complications, blindness,liver,kidney,nervous system faliare if you dont lower your BG", or a "you will end up with paralysis,death,brain damage if you dont stop having seizures" lol!!!! "Damned if i do" or " Damned if i dont " sort of situation. I can understand completely your feelings towards diabetes...
    All i can suggest though is you try to get lower levels, dont worry too much about getting "perfect" readings because by its very nature these will never be possible, but try to get the levels down as the complications are serious.Myself, my eyes are starting to go,i have nervous damage in both arms, and my liver levels are a bit high i have been told, but then again i havent got any choice.Pumps seem to be recommended by a lot of people (my needle phobia rules these out at the moment) so why not inquire your high levels might make your "care" team make one available sooner rather than later? The ability to continuously adjust your dosage might iron those levels out.Anyway good luck!
     
  4. Herbie72

    Herbie72 · Well-Known Member

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    I think the DAFNE course will be brilliant for you. Also, have you chatted to your diabetes nurse etc about going on a pump? I'm on the Accu-Chek Combo now, and it's helped out a lot. Good luck!
     
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