I need help, please :(

[Diakat]

Hi @Sharnanike
I have a daughter and a husband who travels a fair bit for work, so daughter and I are often alone.
There is some suer advice above so I’ll repeat some of that but here goes.
1. No one is perfect, stuff happens.
2. When child is old enough to know how to call an an ambulance practice the whole “mummy won’t wake up and she has type 1 diabetes” role play. Keep some hypo treatment where child can reach it just in case and get them used to the odd request that they bring it to you.
2. Get help from your medical team, tell them about your situation and fear and ask for courses and hints. They may give access to Libre.
3. Be kind to yourself. Test, learn about how good and insulin interact so you get better at spotting patterns.

 

[Sharnanike]

I'm type 1 and from what I understand being between 15 and 20 is too high, between 5 and 9 would be much better. The way to get your blood sugar 'under control' is to finger prick before eating and 2 hours after starting the meal. Learn how different foods affect you, learn to carb count and take the corresponding correct amount of insulin - too much insulin and you'll hypo, too little and the sugar in the blood escalates. Plus the combination of foods matters. For instance if you eat vegetables with lots of fat and protein the impact on your blood sugar is much slower and lower whereas if you just eat the vegetables the impact is much quicker and higher. Learn as much as possible about your diabetes.

Thank you for all of that. I understand all about diabetes, well, a lot of.. I didn’t know about the food though, apart from carb counting. Between 15 and 20 is too high but that’s what my specialist said I need to do as if I went straight to the control of between 5 and 9, it would affect my eyes which could cause blindness. I feel like I need to see my specialist and ask them for as much help as possible.. seeing a nutritionist/dietician etc may help with the understanding of foods too.

 

[Sharnanike]

as @Colin Crowhurst note above NHS England from April 2019 will refund CCG part of the cost towards 20% of the number of T1's in their area;, this might be worth a read; https://www.england.nhs.uk/wp-content/uploads/2019/03/flash-glucose-monitoring-national-arrangements-funding.pdf . It might also be worth reading up on the NICE guidelines for the clinical info, and you could also check the guidelines your CCG use so at least you know what they are looking for/expecting from you. Good luck x

Thank you, I’ll definitely be having a read of that! X

 

[Sharnanike]

Hi @Sharnanike
I have a daughter and a husband who travels a fair bit for work, so daughter and I are often alone.
There is some suer advice above so I’ll repeat some of that but here goes.
1. No one is perfect, stuff happens.
2. When child is old enough to know how to call an an ambulance practice the whole “mummy won’t wake up and she has type 1 diabetes” role play. Keep some hypo treatment where child can reach it just in case and get them used to the odd request that they bring it to you.
2. Get help from your medical team, tell them about your situation and fear and ask for courses and hints. They may give access to Libre.
3. Be kind to yourself. Test, learn about how good and insulin interact so you get better at spotting patterns.

Thank you so much! I’m definitely going to be teaching my son things to help if it’s needed, I think the role play idea is fantastic too! He may be able to understand more what to do if we perform a real life situation. Medical team is a must, I am seeing my consultant in the next couple of months but I think seeing my specialist would be good too! I also think you’re bang on the mark with being kind to myself.. not testing much isn’t being kind to myself! Thank you ever so much.