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It might be MODY? Gah! Will it make any difference?

devexity

Active Member
Messages
25
Type of diabetes
Type 1
Treatment type
Insulin
8 years after a post-partum T1 diagnosis in the US, I finally saw a UK specialist today. He declined to look at any of my careful charts and instead said, "Has anyone ever suggested before that you might not be a Type 1 diabetic?"

Well yes - me: after the test results in America showed up completely autoantibody negative. But the endo said, "You're skinny: Type 1 all the way!", and I didn't respond to Metformin, and so I took their word for it. I'm an ass.

The endo I saw today is investigating MODY, in part because both my lean and very active grandfather and my lean and very active father were diagnosed T2 in their early 50s. My grandfather died with uncontrolled BG and full-blown glaucoma. My father is responding poorly to oral meds. Clearly, a MODY diagnosis will make a difference to his treatment. Will it make a difference to mine? Anyone successfully switch to sulfonylureas after using insulin for years?

Thanks in advance for any info: am swimming in a sea of poorly-understood medical journal articles right now.
 
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