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<blockquote data-quote="HSSS" data-source="post: 2633386" data-attributes="member: 480869"><p>Very confusing. I’ve never heard of type being (accurately) decided by hba1c alone or by achieving decent blood glucose levels whilst on insulin. So you’ve had no insulin for the last 6 months? Are you on anything else?</p><p></p><p>Do you know if they tested your insulin production (cpeptide) in hospital or for antibodies? Or who by and why the diagnosis was formally changed? A nurse doesn’t normally have that official responsibility for naming which type even if they understand it and get their beliefs proven right.</p><p></p><p>It matters and they should make sure you understand it. Because if you are a slow onset type 1 (called LADA or type 1.5 sometimes) and you aren’t on insulin you could dka again. You will eventually need insulin. and the tech available to you will be different than if they call you type 2 on insulin at that point, as will attitudes even from medical staff. If you are truly a type 2 it’s unusual to dka and it would be helpful to establish likely reasons you did so it can be avoided in future. Also diet alone to manage it is a possibility for type 2 that isn’t a long term prospect for even a slow type 1. </p><p></p><p>Finally can I just check this isn’t a misunderstanding of what type 1 and type 2 actually are. It is NOT whether insulin is used or not, nor about age at diagnosis, as so many believe. Type 1 is about inability to produce insulin due to an autoimmune cause. Sometimes fast onset as is common in kids, sometimes slow as happens in adults more than kids. Type 2 is about inability to respond to the, likely high levels, of insulin you do have aka insulin resistance. Eventually type 2 can cease production after many years of overproduction but that’s not the way it starts. Both types do get treated with insulin, although for a lot of type 2 it might not be the most effective long term option in reality, and many adult type 1 are initially (or permanently) misdiagnosed as type 2.</p></blockquote><p></p>
[QUOTE="HSSS, post: 2633386, member: 480869"] Very confusing. I’ve never heard of type being (accurately) decided by hba1c alone or by achieving decent blood glucose levels whilst on insulin. So you’ve had no insulin for the last 6 months? Are you on anything else? Do you know if they tested your insulin production (cpeptide) in hospital or for antibodies? Or who by and why the diagnosis was formally changed? A nurse doesn’t normally have that official responsibility for naming which type even if they understand it and get their beliefs proven right. It matters and they should make sure you understand it. Because if you are a slow onset type 1 (called LADA or type 1.5 sometimes) and you aren’t on insulin you could dka again. You will eventually need insulin. and the tech available to you will be different than if they call you type 2 on insulin at that point, as will attitudes even from medical staff. If you are truly a type 2 it’s unusual to dka and it would be helpful to establish likely reasons you did so it can be avoided in future. Also diet alone to manage it is a possibility for type 2 that isn’t a long term prospect for even a slow type 1. Finally can I just check this isn’t a misunderstanding of what type 1 and type 2 actually are. It is NOT whether insulin is used or not, nor about age at diagnosis, as so many believe. Type 1 is about inability to produce insulin due to an autoimmune cause. Sometimes fast onset as is common in kids, sometimes slow as happens in adults more than kids. Type 2 is about inability to respond to the, likely high levels, of insulin you do have aka insulin resistance. Eventually type 2 can cease production after many years of overproduction but that’s not the way it starts. Both types do get treated with insulin, although for a lot of type 2 it might not be the most effective long term option in reality, and many adult type 1 are initially (or permanently) misdiagnosed as type 2. [/QUOTE]
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