Long nocturnal hypo

[enzina]

Last night i woke up around 2am sweating a lot and feeling terrible. Libre 2 showed 2.5, test strip even 2.1. Looks like i haven't heard the alarm, maybe because i'm at the moment on a 7.5 mg morphin plaster, Cocodamol, Pregabalin, Amitriptyline and Ramipril. Libre showed nonstop hypo from 9pm to 2pm.
Awaiting spinal surgery since over three month but i can't even get to speak to my consultant who has done the two surgeries before. GP absolutely useless, my private physiotherapist sent me to A&E because she even thought the spinal cord has been affected. Scan showed two old fractures i didn't even know about and very bad stenosis on all levels, particularly on the L4 and L5 but spinal cord ok. I was told hospital will get in touch with me, since then i had a telephone appointment with a member of staff who couldn't even answer simple questions. She said the consultant will prioritise. I then pointed out i have T1 and the opoids are completely muddling with my brain and at times feel like i can't manage at all anymore and this might become a major problem.
There is no way i myself can contact the hospital, i just feel like i'm being fobbed off everywhere and i don't know where to turn at all. Feeling incredible lousy, scared and exhausted today.

 

[AndBreathe]

Last night i woke up around 2am sweating a lot and feeling terrible. Libre 2 showed 2.5, test strip even 2.1. Looks like i haven't heard the alarm, maybe because i'm at the moment on a 7.5 mg morphin plaster, Cocodamol, Pregabalin, Amitriptyline and Ramipril. Libre showed nonstop hypo from 9pm to 2pm.
Awaiting spinal surgery since over three month but i can't even get to speak to my consultant who has done the two surgeries before. GP absolutely useless, my private physiotherapist sent me to A&E because she even thought the spinal cord has been affected. Scan showed two old fractures i didn't even know about and very bad stenosis on all levels, particularly on the L4 and L5 but spinal cord ok. I was told hospital will get in touch with me, since then i had a telephone appointment with a member of staff who couldn't even answer simple questions. She said the consultant will prioritise. I then pointed out i have T1 and the opoids are completely muddling with my brain and at times feel like i can't manage at all anymore and this might become a major problem.
There is no way i myself can contact the hospital, i just feel like i'm being fobbed off everywhere and i don't know where to turn at all. Feeling incredible lousy, scared and exhausted today.

Enzina, it certainly sounds like you are having a really tough time of it all. I can't imagine your frustration levels.

In your shoes, I think I would be calling the guy who has done your spinal work in the past. of course, you won't get through to him, but you should be able to talk to his secretary and ask if there is anything she can do to help - explaining your situation.

Thankfully, I haven't been in your position, but I have always found Consultant's secretaries to be very helpful - whether it be test results, medications or information.

Let's face it, you can hardly end up in a worse situation.

I do hope you find a way forward.

 

[enzina]

Enzina, it certainly sounds like you are having a really tough time of it all. I can't imagine your frustration levels.

In your shoes, I think I would be calling the guy who has done your spinal work in the past. of course, you won't get through to him, but you should be able to talk to his secretary and ask if there is anything she can do to help - explaining your situation.

Thankfully, I haven't been in your position, but I have always found Consultant's secretaries to be very helpful - whether it be test results, medications or information.

Let's face it, you can hardly end up in a worse situation.

I do hope you find a way forward.

So many thanks @AndBreathe , i will just do that! I wasn't even thinking of doing that but why not? I will try tomorrow morning and let you know if i got through at all.

Best wishes to you.

 

[AndBreathe]

So many thanks @AndBreathe , i will just do that! I wasn't even thinking of doing that but why not? I will try tomorrow morning and let you know if i got through at all.

Best wishes to you.

If the spinal guy doesn't work, you could try your diabetes consultant (assuming you have one)? Let's face it, it is in nobody's best interest if you are to start having sustained hypos you don't know anything about. Without wanting to over-dramatise matters, your back may not be life threatening, but a deep low, sustained whilst in a drug induced stupor could very well be.