1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2020 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Long Time Type 1 Suddenly no control

Discussion in 'Type 1 Diabetes' started by Stefp, Sep 17, 2020.

  1. Hopeful34

    Hopeful34 Type 1 · Well-Known Member

    Messages:
    162
    Likes Received:
    95
    Trophy Points:
    68
    I had a horrific time with diabetes going through the menopause, and the nurse at the time at the hospital diabetes clinic, said it played havoc with blood sugars for a lot of people. You only have to look at the difference in the amount of insulin many people need the week before their period, compared to the week of their period. Is your gp male by any chance?!! You've got my sympathy, it's a horrible time, and like you I was at my wits end. Sending hugs, and hope you can find a way forward.
    A pump helped me a lot, so if you find you can afford one, it might be the way to go.
     
  2. JMK1954

    JMK1954 Type 1 · Well-Known Member

    Messages:
    353
    Likes Received:
    195
    Trophy Points:
    83
    I was prescribed HRT by a 'diabetic' consultant, when I first hit menopause symptoms, or rather when they hit me. He told me that only a small percentage of female type 1 diabetics are affected by crazily changing BS levels in this way. My GP had been zero help in the previous three months. which had seen my BS regularly spike for no reason. On the first occasion it happened, it climbed from a point in the 4s to 22 mml in an hour or so. When I asked what percentage of us were affected in this way, he didn't want to give a figure, but when I suggested 5%, he said it was lower than that.

    I have posted several times about this. Nobody accused me of doing anything wrong diet-wise, probably because I had previously been extremely well-controlled for 20 plus years and I had been dealing with type 1 from the age of 10, so they accepted the situation I was describing to them was real. My GP was startled when he got the hospital letter recommending he prescribe HRT, as I gather he would not normally have prescribed this for a type 1, but he went along with it and it rescued me from a desperate situation. It wasn't a perfect solution. I still got spikes to 12 mml or so, but I could cope with that. HRT doesn't work for everyone - but it did for me. You would be likely to need a consultant to prescribe it. It is not something GPs seem to know anything about. If you run a search for HRT on this forum, you should find earlier messages I have posted about this.
     
  3. Stefp

    Stefp · Member

    Messages:
    16
    Likes Received:
    1
    Trophy Points:
    3
    I wish GPS and endos know more about this stuff - like you guys, until the last few years my control was always good - I am a little obsessive about my blood sugars and have always have hba1c’s in the 5.8 - 6 range. These crazy swings have a really negative impact on my life and are creating physical as well as mental health issues like high levels of anxiety. I no longer trust myself.
    Today my numbers are back to normal - all day they have been between 3-7 again for no apparent reason.
    So from these responses it could be my Lantus, insulin resistance or menopause - among other things! Looks like I need to restart my look for a new endocrinologist- though to be honest we mostly have to problem solve this stuff ourselves don’t we? Thanks for listening - even though I have a very supportive family it can be lonely as no one else really understands and I know they get a little tired of hearing about it day after day!
     
    • Like Like x 1
    • Hug Hug x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook