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Looking for advice re my 16 month old!

I would go for a second opinion Kirstie, it seems as if your current facility is not answering the questions you have. 2 hours after a meal a non diabetic should be returning to a normal range so regardless of your son eating things that can raise blood sugar, the bottom line is that he is not producing insulin normally to bring it straight back down is he. Let us know how you get on and be insistent with them about a second opinion if you haven't already done this. Best of luck.

Ali
 
Sounds like you need to be referred to a specialist childrens hospital in endocrine, assuming he isn't already under them. You can demand on wards referral if you feel you're not getting anywhere (you most likely know that though).

A girl at my hairdressers her son was born with a very strange thing cant remember what its called, but he had some scary high and low blood readings, they struggled with his feeds etc, he's about the same age as your son and he was referred to Royal Manchester childrens hospital, as they have specialised endocrinologists and this thing he had they said he would grow out of and he did. i couldn't believe when she said, i said still better to keep an eye out in case it came back when he was older. He did have some other health issues, but not majorly serious and was a month premature.

How did you spot that something was amiss?
 
Ali H said:
I would go for a second opinion Kirstie, it seems as if your current facility is not answering the questions you have. 2 hours after a meal a non diabetic should be returning to a normal range so regardless of your son eating things that can raise blood sugar, the bottom line is that he is not producing insulin normally to bring it straight back down is he. Let us know how you get on and be insistent with them about a second opinion if you haven't already done this. Best of luck.

Ali
Click to expand...

Thanks Ali. This is what I've been saying all along. It's nice to hear from someone who sees what I see :) I'll keep you all updated, who knows, there might be others out there who are in the same position!


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Bev18 said:
Sounds like you need to be referred to a specialist childrens hospital in endocrine, assuming he isn't already under them. You can demand on wards referral if you feel you're not getting anywhere (you most likely know that though).

A girl at my hairdressers her son was born with a very strange thing cant remember what its called, but he had some scary high and low blood readings, they struggled with his feeds etc, he's about the same age as your son and he was referred to Royal Manchester childrens hospital, as they have specialised endocrinologists and this thing he had they said he would grow out of and he did. i couldn't believe when she said, i said still better to keep an eye out in case it came back when he was older. He did have some other health issues, but not majorly serious and was a month premature.

How did you spot that something was amiss?
Click to expand...

I have been giving them the benefit of the doubt for the last month or so as they are my colleagues and I trust them, but I'm fed up now and want answers! I'm working tomorrow so I'm going to speak to them and demand something be done.

My wee boy was 3 weeks early, has a floppy larynx and has always had issues with feeding, not helped by his allergies but until now, has appeared to be a healthy wee boy. I have known for a while that something hasn't been right, his weight has been up and down, he can get really irritable along with looking generally unwell with no obvious cause, he then began blacking out for 1-2 mins, was admitted to the children's ward after the 2nd episode but all tests came back normal and we were sent away with the "we may never know what is wrong". Then at toddler group he blacked out like many times before and my friend (who happens to be a diabetic nurse and also has a son the same age who has Type 1) decided to check his BM during the episode. She told me to take him to the GP that day as it was over 11, the GP gave us a monitor and told me to check him when I felt I needed to and that's when I noticed he had high fasting levels and had some high post meal levels (they can also be normal but recently have been over 10 generally, the highest being 15.2 on Saturday)

It just doesn't make sense! Even my friend that I mentioned earlier is stumped.


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Definitely second / tertiary opinion is needed. good luck
 
Hi,

What tests did they do to make them sound so confident? I thought that fasting blood sugars of above 7.0 mmol/l on multiple occasions meant a diabetes diagnosis?

Have they done a C-Peptide test or GAD autoantibodies test? C-Peptide to see how much insulin is being produced and GAD to see whether an autoimmune response is going on.

My son had a couple of random high blood sugars when he was under 2 and a pediatrician I badgered about it said that young children's blood sugar can be quite erratic and the thing to look out for was glucose in the urine rather than doing blood tests as that shows that the renal threshold for glucose is being passed and is a strong indicator of diabetes.

GAD antibodies test would confirm it one way or the other?

Wikipedia has a good page on Type 1 diabetes that you might find useful; http://en.wikipedia.org/wiki/Diabetes_mellitus_type_1#Autoantibodies

All the best

Dillinger
 
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