Looking for other mody folks x

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Flora123

Well-Known Member
Messages
1,078
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi. I’m being tested for Mody at the moment. I will join the “group” if I get a positive test back!
 
B

biochemmama

Member
Messages
6
Type of diabetes
Parent
Treatment type
Diet only
Have six with MODY2 in my family. There is a vibrant MODY community (1000+members) on Facebook if you do a search. Would love to see a subthread here as well.
 
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mike05

Member
Messages
7
Type of diabetes
MODY
Hi,

I am Mody 3, been diagnosed five years ago and managing it without meds. Always happy to share my experience.

Rgds !
 
aliceclaresmith

aliceclaresmith

Member
Messages
8
Type of diabetes
MODY
Treatment type
Tablets (oral)
Hi all, I'm MODY HNF4A (the rare type apparently) - diagnosed almost 10 years ago. My mum also has it (but only found out that it was MODY when I was diagnosed) and my brother carries the gene. My mum was told she was Type 1 and treated with insulin for 25 years. My brother's daughter was born with hyperinsulinism due to the gene. Lots going on with us! Nice to meet you all. :)
 
F

Fawbs89

Active Member
Messages
42
aliceclaresmith said:
Hi all, I'm MODY HNF4A (the rare type apparently) - diagnosed almost 10 years ago. My mum also has it (but only found out that it was MODY when I was diagnosed) and my brother carries the gene. My mum was told she was Type 1 and treated with insulin for 25 years. My brother's daughter was born with hyperinsulinism due to the gene. Lots going on with us! Nice to meet you all. :)
Click to expand...
Hi Alice,

Nice to meet you.

I haven't checked into this app in a while.

I'm Mody 3 as are my mum and 2 sisters.

I'm treated with insulin as they always thought I was type 1 and after years of using insulin I didn't want to change to tablets.

My mum and sisters treat using tablets.
 
S

Suz\anne

Newbie
Messages
2
Type of diabetes
MODY
Treatment type
Insulin
Fawbs89 said:
Come say hi..
Click to expand...
Hi
I am a mody diabetic. Diagnosed as type 1 back in ‘68 when I was 9
Treated as type 1 most is my life until about 12 yrs ago
Fawbs89 said:
Come say hi..
Click to expand...
It would be interesting to find out how diabetics have found dealing with their diabetes after finding out they have mody. Sadly, I have found a lot more help is given to type 1. My care has greatly reduced after finding out I don’t have type 1
 
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