Looks like I'll be monitoring this forum more...

@Skinto McGinto having the correct diagnosis is a huge step so although it may be disconcerting at least you can now get the best solution for your long term health.

Skinto McGinto said:

So. After 5 years and many false hopes of movement in dealing with what everyone thought was a typical T2, and being dejected with how things are going despite loads of hard work..I'm now officially not T2 but LADA.

Imagine my surprise - especially when I'd had c-peptide results that were pretty high and with the previous insistence that I was barking up the wrong tree. With the GAD test, though, had one of the 3 flags come back so, not only LADA but a very slow moving one by the looks of things! And was thanked by the clinic for being persistent in asking them to do the GAD test.

Basically moving from ordinary Gliclizide 80mg X2 and ordinary Metformin 500mg x3 to the slow release versions of both for the next month to determine whether I'll be on insulin by the middle of next month because it's moving so slowly and that I'm managing (albeit badly at the minute with HbA1c of 70) with diet, exercise and drugs. So-anyone else been in this situation? I feel strangely ok by it all-concerned by the fact that I'll be on insulin sooner rather than later and now released from the burden that I've been trying my damnedest to reverse something that I thought was all down to my lifestyle - I just need to deal with it.

And does anyone know how I can update my profile in the mobile app?

Click to expand...

Hello from a slightly faster mover from T2 to LADA! 2.5 years for me, but a very similar story, in many ways.

I was just utterly relieved to get onto the correct treatment and delighted I'd been proved correct in my suspicions it was really not T2, though I did understand why initially that was the diagnosis, so wasn't bothered at all by the reclassification. In fact, I think I delighted in telling all those who'd been happily commending me for my sterling work in losing weight that I was right there as well. I lost the weight because my body was attacking itself, not because I was particularly trying to.do so.

Whilst I'm still relatively low carb because I feel loads healthier on it, carbs are no longer the enemy they were in the battle when the chief weapons were diet/exercise/oral meds. All of which worked until they didn't.

I've also been lucky that I've found adjusting to being on insulin remarkably easy apart from a bit of weight going back on again, which is slowly being tackled. Oh, and learning to accept the fact no two days are the same!

Well done for pushing for the correct diagnosis. I wouldn't hold off going on small insulin doses to help bring your hba1c down - you might just need a small dose of long lasting to help.

I was misdiagnosed for years. I had asked if I could be a type 1 as I had an uncle that had died from type 1 diabetes. I believe because I have always been overweight they just categorized me as type 2. It took a new endo that decided to test me to find out I was type 1/LADA.

They thought I would be upset but I was happy. I had been a vegan and swam laps and while I had fairly good control A1C of 7.2, it was just okay. Luckily I had already been put on insulin because medications made me sick. I thrived on insulin.

But I was happy about the diagnosis, because it explained everything!!! I now knew what I was dealing with! I started using insulin more correctly as before I thought my body could just "cope" when I skipped shots etc. When I was diagnosed properly I ended up going on a pump and never looked back! I hover around an A1C of 6.4. I am not low carb.

Some are amazed I am happy about the diagnosis, but when you are frustrated and things didn't make sense, it's the answer that helps. I have always eaten right as I was a vegetarian since I was 11, I was always active, I swam laps and walked a lot at work, The proper diagnosis meant everything and answered everything!

I was diagnosed as type 2 18 months ago and was baffled as I never fit the typical type 2 profile, I was a skinny 9st 8lbs, although I was just under 11stone and it was my sudden weight loss and fatigue that first got me to ring the doctors, I had a physically active lifestyle as well as a healthy diet. To be told I was type 2 was a bolt out of the blue. So then stuck on metformin twice daily told to eat healthier, I already did, and come back in 3 months. So after 3 months my hb1ac only came down to 83 from 95 so metformin upped to 2 twice a day. Another 3 months passed and by down to 80 so then onto gliclazide once a day...by this time I really tried with the diet, so cut out bread, biscuits etc and went moderately low carb...to my surprise I got my blood levels down to 57 and felt I was getting to grips with the condition, however, since I was already a low weight with eating lowish carbs my weight went as low as 9st 3 and at 5ft 10 my bmi went too low and I was so tired....some days I’d get in from work and I managed to get my readings in the 6-7 mmol range then all of a sudden the readings crept up again to double figures, I couldn’t cut back anymore on food as I’d waste away and I was getting more lethargic. I fought and fought my diabetic nurse to refer me to a specialist as I’d always suspected I wasn’t type 2 but maybe Lada...upon meeting him he took one look at me and said to do a blood test and sure enough I have autoimmune diabetes aka Lada....I’m actually relived to finally get the proper diagnosis I’m not on insulin yet but I know it’s coming, he has stuck me on 80mg of gliclazide twice a day rising to 120mg by next month and if my bg remains in double figures it will be insulin, at the moment my bg is averaging 14 - 20 mmol with fasting ones as high as 21so I think it’s inevitable I’ll be on insulin soon enough. It’s a weight lifted off my shoulders and I too am happy to be Lada as it explains so much about my weight loss and not being able to get my bg readings under control....I have some reservations about insulin but I’m hoping that it will finally give me the control I need and be finally free of these dreaded tablets...hope all goes well for you

@mike gibson I think you'll find that you will feel better once you are on insulin. It's scary at first and more work than popping a pill, but it will give you more versatility in life! More foods and not have the worries of not controlling those highs because you can with the proper dosing of insulin, more energy because you are getting insulin to make that energy. You will feel better! Get a CGM too, so you can learn better how to control your BG's.

Skinto McGinto said:

So. After 5 years and many false hopes of movement in dealing with what everyone thought was a typical T2, and being dejected with how things are going despite loads of hard work..I'm now officially not T2 but LADA.

Imagine my surprise - especially when I'd had c-peptide results that were pretty high and with the previous insistence that I was barking up the wrong tree. With the GAD test, though, had one of the 3 flags come back so, not only LADA but a very slow moving one by the looks of things! And was thanked by the clinic for being persistent in asking them to do the GAD test.

Basically moving from ordinary Gliclizide 80mg X2 and ordinary Metformin 500mg x3 to the slow release versions of both for the next month to determine whether I'll be on insulin by the middle of next month because it's moving so slowly and that I'm managing (albeit badly at the minute with HbA1c of 70) with diet, exercise and drugs. So-anyone else been in this situation? I feel strangely ok by it all-concerned by the fact that I'll be on insulin sooner rather than later and now released from the burden that I've been trying my damnedest to reverse something that I thought was all down to my lifestyle - I just need to deal with it.

And does anyone know how I can update my profile in the mobile app?

Click to expand...

It must be a relief to finally know and make sense of your ongoing struggles for the last 5 years. Well done for never giving up, even with the going got tough. Best wishes for your new blood sugar management regime.