CherryAA
Well-Known Member
- Messages
- 2,170
- Type of diabetes
- Type 2
- Treatment type
- Diet only
Many of you will have seen the recent study done on the T1 facebook group.
http://pediatrics.aappublications.org/content/early/2018/05/03/peds.2017-3349
i.e. N=1 data used to create actual scientific papers which then hit the press.
I have just joined Dlife India to take a look at their content .
I have noticed that they have an extremely useful section called the Dlife datalog. It is being sold as a place where members can record their data in case they lose it. They are collecting extensive data across 22 categories . Over time if successful this would become a rich source of data for accumulating N=1 results to show the world how their methodology LCHF works. Over time therefore it is likely that the Indian website could become a source of scientific enquiry. The Indian website is primarily vegetarian for religious reasons. Therefore this will continue to boost the vegetarian message. Nothing wrong with that - but it will make omnivore even more difficult to defend
Currently our efforts at trying to get the world to listen to N=1 is extremely difficult and both Big Food and Big Pharma will fight all the way to prevent the message getting out.
This website is ideally positioned to accumulate together all of the scientific data of its members. This could be in the form of a data base we complete - and at the same time upload our actual blood panel results each time we get them into a storage vault.
dlife collects - blood sugar, A1c, Insulin, C peptide, lipids, BUN, creatinine, calcium, uric acid, sodium, potassium, bicarbonate, alkaline phospate, bilirubin direct, bilirubin total GGT, SGOT, SGPT, Serum protein, albumin, serum microalbum, creatinine.
It is a bit clunky in that users cannot use it without setting which reporting unit they want to use for ALL the markers - so take up will probably be quite low at present. It would be better if one could activate the one' you have and leave the one's you don't as not applicable .
Epidemiology
We have all seen food questionaires and realised how rubbish they are- they constantly confuse sugar and saturated fat, they don't separate natural foods from processed foods, they combine together things like grapes and strawberries presumably on the grounds that they are both small , the treat " nuts" as one thing when they have very different characteristics. they never split out usage of seed oils, versus fruit oils, they don't include usage of shakes for VLC diets, nearly everyone of us here could do a better job at designing a survey relevant to diabetes and diet than the epidemiologists.
If this website added to that a further section which was a food questionaire designed to elicit the same information that all the epidemiological studies do - but properly characterised - e.g. splitting out seed oils, vegetable oils, delineating the carbs by their carb. content ( e.g using the same stratifications as for example dietdoctor.com) and we asked members to complete that for the previous six months each time they submitted a new blood panel, then we would have the makings of a proper scientific enquiry tool drive by N=1 , covering the epidemiological bases and capable of being " audited" via the uploaded documents. The results would be useful for our own members revealing over time the differences between for example adopting a " carnivore" "keto", "traditional LCHF", "vegan" or "vegetarian " " very Low calorie" diets in terms of weight loss changes and blood panel changes.
Many quoted RCT's are on fairly small group's of people ( eg around 30)
With so many successful members here it should not take too long to collect data which is meaningful scientifically and which can then be used to help counter the continual industry studied funded studies suggesting we should all eat more pasta, etc etc.
I for one would be quite happy to devote an afternoon to providing the logs of everything since my journey began which now includes 5 different blood tests results at 5 different points in my journey, complete with my own records of what I was eating at the time and what I weighed. Many of us already do a pale version of this already in our signatures and I am sure many would be prepared to spend some time to contribute if they felt that it had some future purpose.
It is SO frustrating when we know how doing this works and yet everywhere we look there is some idiotic statement being made that we cannot refute as we are not " scientists"
Please can you explore whether this is something that this website could do? - maybe it could even be something that was done as a joint venture with dietdoctor.com - with them recording data from non diabetic individuals and this website taking the diabetic data?
The American dietary guidelines will be revisited in 2020. These guidelines drive down into the entire world's food recommendations. It would be marvellous if we could have something to show that we n=1 T2 diabetics mean business before then .
I would be very happy to contribute some time into a working party to help design it.
Any views anyone? @Administrator is this a possibility?
Edited to correct Admin link
http://pediatrics.aappublications.org/content/early/2018/05/03/peds.2017-3349
i.e. N=1 data used to create actual scientific papers which then hit the press.
I have just joined Dlife India to take a look at their content .
I have noticed that they have an extremely useful section called the Dlife datalog. It is being sold as a place where members can record their data in case they lose it. They are collecting extensive data across 22 categories . Over time if successful this would become a rich source of data for accumulating N=1 results to show the world how their methodology LCHF works. Over time therefore it is likely that the Indian website could become a source of scientific enquiry. The Indian website is primarily vegetarian for religious reasons. Therefore this will continue to boost the vegetarian message. Nothing wrong with that - but it will make omnivore even more difficult to defend
Currently our efforts at trying to get the world to listen to N=1 is extremely difficult and both Big Food and Big Pharma will fight all the way to prevent the message getting out.
This website is ideally positioned to accumulate together all of the scientific data of its members. This could be in the form of a data base we complete - and at the same time upload our actual blood panel results each time we get them into a storage vault.
dlife collects - blood sugar, A1c, Insulin, C peptide, lipids, BUN, creatinine, calcium, uric acid, sodium, potassium, bicarbonate, alkaline phospate, bilirubin direct, bilirubin total GGT, SGOT, SGPT, Serum protein, albumin, serum microalbum, creatinine.
It is a bit clunky in that users cannot use it without setting which reporting unit they want to use for ALL the markers - so take up will probably be quite low at present. It would be better if one could activate the one' you have and leave the one's you don't as not applicable .
Epidemiology
We have all seen food questionaires and realised how rubbish they are- they constantly confuse sugar and saturated fat, they don't separate natural foods from processed foods, they combine together things like grapes and strawberries presumably on the grounds that they are both small , the treat " nuts" as one thing when they have very different characteristics. they never split out usage of seed oils, versus fruit oils, they don't include usage of shakes for VLC diets, nearly everyone of us here could do a better job at designing a survey relevant to diabetes and diet than the epidemiologists.
If this website added to that a further section which was a food questionaire designed to elicit the same information that all the epidemiological studies do - but properly characterised - e.g. splitting out seed oils, vegetable oils, delineating the carbs by their carb. content ( e.g using the same stratifications as for example dietdoctor.com) and we asked members to complete that for the previous six months each time they submitted a new blood panel, then we would have the makings of a proper scientific enquiry tool drive by N=1 , covering the epidemiological bases and capable of being " audited" via the uploaded documents. The results would be useful for our own members revealing over time the differences between for example adopting a " carnivore" "keto", "traditional LCHF", "vegan" or "vegetarian " " very Low calorie" diets in terms of weight loss changes and blood panel changes.
Many quoted RCT's are on fairly small group's of people ( eg around 30)
With so many successful members here it should not take too long to collect data which is meaningful scientifically and which can then be used to help counter the continual industry studied funded studies suggesting we should all eat more pasta, etc etc.
I for one would be quite happy to devote an afternoon to providing the logs of everything since my journey began which now includes 5 different blood tests results at 5 different points in my journey, complete with my own records of what I was eating at the time and what I weighed. Many of us already do a pale version of this already in our signatures and I am sure many would be prepared to spend some time to contribute if they felt that it had some future purpose.
It is SO frustrating when we know how doing this works and yet everywhere we look there is some idiotic statement being made that we cannot refute as we are not " scientists"
Please can you explore whether this is something that this website could do? - maybe it could even be something that was done as a joint venture with dietdoctor.com - with them recording data from non diabetic individuals and this website taking the diabetic data?
The American dietary guidelines will be revisited in 2020. These guidelines drive down into the entire world's food recommendations. It would be marvellous if we could have something to show that we n=1 T2 diabetics mean business before then .
I would be very happy to contribute some time into a working party to help design it.
Any views anyone? @Administrator is this a possibility?
Edited to correct Admin link
Last edited by a moderator:
