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Type 1 Mentally dealing with diabetes

Frandelion

Frandelion

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The past year I've struggled to deal with my diabetes. I'm back on track with it now. But is it something others go through too? Like not testing or taking insulin. I felt so low in life, I hated people seeing me test etc and I just wanted to be normal as I was fed up of the questions of "if you have diabetes why aren't you fat" or "can you eat that" I guess I also didn't do it because it made me lose weight quickly which isn't the best way to go around it and I irritated my family and friends because of the way. I see myself. But I know I can be normal and healthy if I take care of it. I hope this isn't offensive In anyway I just want to know if anyone else has had a similar experience?
 
I am T2 so I won't comment. Lots of T1s round here have probably experienced what you are going through. They will be along shortly, you are not alone.
 
Hi @Frandelion
Yes what you describe is a common occurrence.
There seem to be two factors in what you are describing- diabetes burnout - which is the not wanting to test or inject. It’s all too much to take antmore.
And - body issues, easy weight loss. Which can be linked to diabulleamia, a type of eating disorder.
Are you injecting and testing again now? How are you feeling?
 
I'm back on track. I am testing and injecting. I'm still not comfortable with it but I just do it because its so important.
Diakat said:
Hi @Frandelion
Yes what you describe is a common occurrence.
There seem to be two factors in what you are describing- diabetes burnout - which is the not wanting to test or inject. It’s all too much to take antmore.
And - body issues, easy weight loss. Which can be linked to diabulleamia, a type of eating disorder.
Are you injecting and testing again now? How are you feeling?
Click to expand...
 
That’s good to hear @Frandelion - it is hard mentally to keep it all under control at times. Feel free to share concerns here. There are so many T1s who have been through similar experiences.
Glad you are back on track.
 
Frandelion said:
The past year I've struggled to deal with my diabetes. I'm back on track with it now. But is it something others go through too? Like not testing or taking insulin. I felt so low in life, I hated people seeing me test etc and I just wanted to be normal as I was fed up of the questions of "if you have diabetes why aren't you fat" or "can you eat that" I guess I also didn't do it because it made me lose weight quickly which isn't the best way to go around it and I irritated my family and friends because of the way. I see myself. But I know I can be normal and healthy if I take care of it. I hope this isn't offensive In anyway I just want to know if anyone else has had a similar experience?
Click to expand...
I am so glad I read your article as I am feeling the same and now I am struggling to take my Insulin as I am afraid of going into another Hypo it is constant battle I know I need to talk to my Heath professional team about it but don't want them thinking that I am giving up even though I need to keep going. Thanks. Hope you are now in a good place now.
 
Yes, many others have problems dealing with the mental strain of the diabetes. It is much more than anyone non-diabetic understand. And I speak from knowledge. My mother has had T2 for all my life, I always though it was no big thing... until I was diagnosed. Well, actually the diagnosis was easy, I thigh I just need to eat healthy, not prob. Then month after diagnosis I started having serious problems in my legs. And that was devastating mentally. I am pretty new and I have never yet experienced not wanting to measure. I actually test like mad 2-3 times after ever bite I eat desperately trying to find what , if anything, I can eat.
Only thing I can offer is knowledge that you are not alone in this. Try finding other people with diabetes that you can talk freely and who know what you are going through. Who do not ask stupid questions. Try remembering that the people who ask these "stupid" questions often do so beacause they care about you. Last weekend I visited my old friend first time since the diagnosis, at some point I felt like not talking about the disease and try to have some fun and for a second try to forget it. So I just said to by friend "Let's talk about something else. I do not want to talk about it at the moment." You have right feel what you feel and you have right to say if you do not want to talk about it. Just try to tell it nicely to people close to you.
 
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I struggle from time to time I normally test as it's a legal requirement for my hgv license. But I have stopped injecting at times.. my body up until about a year ago was still producing some insulin so I didn't go downhill too quickly.. I now produce almost none so am trying to stay on track.

I've never been fat. So too get the questions of how as your not far.


At work when someone brings treats/snacks the "can you eat that"


And a million other questions..

I try to stay positive, but then something drops up like I've been much more prone to other illness since being diabetic.

I worry about seeing the gp when unwell as 3 times they have called an ambulance saying ive had a heart attack.. mostly due to the increased risk of being diabetic

When I'm out I worry about injections etc

Things like battles with the gp removing things from my repeat prescriptions that are required like lancets.
 
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