I'm very saddened to hear about your daughter. My grandparents were first cousins, two of their three children suffered for it. My brother and I were affected too. I was luckier. I only inherited the ulcerative colitis.
I'm very interested in following your progress.
I thought about adding a comment that you should be having regular liver tests so if you are one of the "lucky" ones, you could catch it early. (It is true - but some people prefer not to know bad news. But . . . since you've already discovered the connection, if your doctor is not running annual liver tests - s/he should be. We would have discovered my daughter's PSC a half-dozen years earlier. It wouldn't have changed the course of the disease, but it would have been a much easier emotional adjustment for her than discovering it her freshman year in college.)Primary Sclerosing Cholangitis? I'd not heard of it before. Interesting that 75% of the people who have this condition have Ulcerative Colitis too. The treatments for Hepatitis C are so much better now than they were 10 years ago. Glad the researchers are looking at PSC now. There's hope.
Our son's girlfriend had a liver transplant 8 years ago. She's doing amazingly well. Hoping they'll find a treatment that works for your daughter.
Well, it is now pretty definitive that stress negatively impacts my BG levels!
Diagnostic radiology revealed a hard, small-marble-sized mass. No diagnosis yet - but comments like, "troubling," "not good news," etc. Dancing around the C-word. Hearing it packed a bigger punch than I expected.
And, not surprisingly, my BG is about 1.1 points higher than it normally is after eating the same lunch I've eaten most days for the last 2+ weeks. Still within normal, but I just ate my supper - which normally does raise the BG a fair amount (because it includes lentils). I may be outside of the normal range for the first time in more than a month.
Needle biopsy likely tomorrow to confirm - pending availability of radiology (but likely no definitive answer until early next week).
Wow what a tough day for you. Good luck tomorrow and whatever the result let us knowWell, it is now pretty definitive that stress negatively impacts my BG levels!
Diagnostic radiology revealed a hard, small-marble-sized mass. No diagnosis yet - but comments like, "troubling," "not good news," etc. Dancing around the C-word. Hearing it packed a bigger punch than I expected.
And, not surprisingly, my BG is about 1.1 points higher than it normally is after eating the same lunch I've eaten most days for the last 2+ weeks. Still within normal, but I just ate my supper - which normally does raise the BG a fair amount (because it includes lentils). I may be outside of the normal range for the first time in more than a month.
Needle biopsy likely tomorrow to confirm - pending availability of radiology (but likely no definitive answer until early next week).
Week 4 - It's official. The doctor woke me up this morning to notify me that I have breast cancer. No word yet on type, other than it is a primary tumor rather than a metastasis from somewhere else. Almost certainly Stage I. I have a fun-filled weed of additional tests (and stress to drive up my blood glucose).
So my wrap-up of Week 3 is along the lines of, "Other than that, Mrs. Lincoln, how did you like the play?"
No big surprises on the eating front. No more grand experiments with higher complex carbs yet. I had enough of an elevation in connection with the lead-in to diagnosis that I'm playing it safe. I have started adding a few chickpeas to my salad most days. Things are still looking good for remission (stress induced elevated BG, aside). My average will probably be up a bit this week, which should surprise no one who has a combination of diabetes and stress. I just hope I don't have to interrupt this 8-week experiment for treatment.
I'm enjoying being able to fasten every item in my closet (even though some are too snug to wear out of the house, yet). People are finally commenting on my size on a regular basis.
I'll update numbers (below) later - my BG meter and I aren't on speaking terms at the moment since it decided to play hide and seek last night.
Week 1 - Fasting blood glucose: M: 5.05 mmol/l, T: 5.28 mmol/l W: 5.06 Th: 5.39 (highest in months) F: 4.44 S: 4.39 Sun: 4.44
Week 1 - Starting weight: 150.2 lbs - Ending weight: 147 lbs
Week 1 - High for the week: 7.72, Low for the Week: 4.06, Average for the week: 5.5
Week 2 - Fasting blood glucose: M: 4.83 mmol/l, T: 4.72 mmol/l W: 5.11 mmol/l Th: 4.79 mmol/l F: 4.83 mmol/l S: 4.33 mmol/l Sun: 4.6 mmol/l
Week 2 - Starting weight: 147 lbs - Ending weight: 144.8 lbs
Week 2 - High for the week: 6.83 mmol/l Low for the Week: 3.5 mmol/l, Average for the week: 5.27 mmol/l.
Week 3 - Fasting blood glucose: M: 4.61 mmol/l, T: 4.72 mmol/l W: 4.67 mmol/l Th: 4.9 mmol/l F: 4.5 mmol/l S: 4.33 mmol/l Sun: 4.66 mmol/l
Week 3 - Starting weight: 144.8 lbs - Ending weight: 142
Week 3 - High for the week: mmol/l Low for the Week: mmol/l, Average for the week: mmol/l.
Week 4 - Fasting blood glucose: M: 5.05 (just a wee bit of stress - since the diagnosis call came before my test!) mmol/l, T: mmol/l W: mmol/l Th: mmol/l F: mmol/l S: mmol/l Sun: mmol/l
Week 4 - Starting weight: 142 lbs - Ending weight:
Week 4 - High for the week: mmol/l Low for the Week: mmol/l, Average for the week: mmol/l.
Weight loss on Low Carb/Moderate Protein (179 days): 47.1 lbs Average BG 6.0
Weight loss on 800 Calorie Mediterranean Style food with 16:8 intermittent fasting (21 days): 8.2 lbs Average BG
It's too soon to tell.Oh boy. I'm sorry you've had the diagnostic outcome any of us who have had such tests dread. Bearing in mind you are just entering week 4 or 8, are you hoping to defer surgery until you have finished?
It's too soon to tell.
More pathology will give us a better idea of whether this is an aggressive or slow growing critter. My age and family history suggest slow-growing. The doctor wants to start treatment, of some sort, in under 30 days from diagnosis. What sort depends on more pathology, genetic testing, more radiology (what I get to do for the rest of this glorious week). I doubt she'll want to wait 4 weeks (although it would be much more convenient to wait for a lot of reasons). So I'll have to talk to her about exactly what I'm eating and see how she sees it fitting with whatever is in store for me.
Were it just "diet," I'd agree in a heartbeat. I view what I'm doing these 8 weeks more as medical treatment to induce diabetic remission than diet - so it would be interrupting treatment of one disease to treat a different disease and balancing the two.To be honest, in your shoes, I, personally, would want to get on with dealing with the issue. Diet can be revisited in the future, when life is settled and other complications have been dealt with, but that's just me.
Hi @Neohdiver
That's a tough break with the diagnosis and I feel for you. But when I look at those latest figures and what you have achieved since October I have no doubt you will take this head on and get on top of it.
Best Wishes
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