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MODY Glucokinase - Medication suggested

Discussion in 'Diabetes Discussions' started by AnnieOakley, Apr 29, 2016.

  1. AnnieOakley

    AnnieOakley · Newbie

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    Hi

    I was diagnosed as Type 2 diabetic 21 years ago at age 17 and was immediately commenced on Gliclazide. A few years later I suffered a severe hypo and my BG was recorded at <2. As a result my Consultant changed me to Metformin. I was always considered an anomoly and my family was asked to be involved in MODY testing more than 6 years ago. As a result I was immediately taken off all meds and have had a yearly checkup with my Consultant since.

    I went to my appointment yesterday and as the Consultant has since retired and not been replaced I saw a Diabetes Specialist Nurse. She immediately advised she didn't feel able to speak to me about my type of Diabetes and advised I should be seen by a Consultant. She then went on to discuss my most recent HB1AC result which was 61 and discussed how this has gone up yearly from 47 when on Metformin to 61 in January.

    As far as I am aware my version of MODY shouldn't require medication and I must say I am reluctant to go on the word of someone who initially told me she shouldn't be seeing me. I have called to speak to the Service Manager and am awaiting her calling back but would welcome any advice in the meantime.
     
  2. biochemmama

    biochemmama Parent · Member

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    Our endo told us that you could have MODY2 and Type 2 together. You might have to verify insulin levels. How did you feel on metformin? How do you feel now? That A1C level is on the upper edge for even MODY2 so you might look at the pros and cons of meds.
     
  3. DavidGrahamJones

    DavidGrahamJones Type 2 · Well-Known Member

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    Would knowing how much insulin your pancreas was capable of producing and what your insulin resistance (if any) was like be of any benefit? I've just had both done so at least I know what I'm dealing with.
     
  4. JohnEGreen

    JohnEGreen Other · Master

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    I have never had test done when I suggested it to my GP last week he laughed and said I am producing plenty of insulin and no more blood tests for me for a while So I asume doctors can tell without need for testing.
     
  5. desidiabulum

    desidiabulum · Well-Known Member

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    Hi. Which version of MODY do you have and how was it diagnosed?
     
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