More pump choices

AndyS

Well-Known Member
Messages
784
Type of diabetes
Type 1
Treatment type
Insulin
@AndyS have you actually asked for a pump?
Yup asked a couple of times. Consultants have flat out said I do not qualify though my DSN has said she would put me forward on quality of life. Even had me write a letter but that was more than a year ago so guess that never worked.

/A
 

catapillar

Well-Known Member
Messages
3,390
Type of diabetes
Type 1
Treatment type
Insulin
Have you sought advice from INPUT? They might be able to help with how to set out your quality of life case in a way that, truthfully, best ticks the boxes. It might be worth contacting them.
 

hollyo

Member
Messages
12
Type of diabetes
Type 1
I had a choice of two the animas vibe or the Roche I have gone for the animas vibe hope it's a good one!
 

paulliljeros

Well-Known Member
Messages
417
Type of diabetes
Other
Treatment type
Other
The thing with the CCG is that they operate to a check list, and I guess are not necessarily experts in diabetes. Therefore, if for example the criteria is that the A1c must be above 59, but an applicants is 58, then they automatically fail on that particular criteria. Whilst I appreciate there has to be cut-offs, and there has to be guidelines, diabetes is clearly not black and white, yet the funding decisions very much are. If you want to play the honesty game straight down the line, then I hold my hat off to you, but on that basis, I'm afraid if you don't qualify, you don't qualify.
You could easily make yourself qualify by stopping injections, over eating etc and raising your A1c, or over injecting or under eating and giving yourself hypos, but I do not believe that is the right approach. I genuinely believe that you should not be penalised for taking such good control of your diabetes, and if I needed to justify a pump I would look at my options and, for example, knew that micro dosing would perfect by BG AND qualify me for a pump, then that is exactly what I would do.
 
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CarbsRok

Well-Known Member
Messages
4,688
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
pasta ice cream and chocolate
@paulliljeros you do not have to tick all the boxes to get a pump, only one will do. I would suggest @AndyS asks his GP for a referral regarding a 2nd opinion for pump qualification.
 

AndyS

Well-Known Member
Messages
784
Type of diabetes
Type 1
Treatment type
Insulin
Agreed. I didn't mean to imply you need to tick all, but you do need to tick at least one!
Don't need a referral since my primary diabetes treatment is from the diabetes specialists at hospital. GP has freely admitted many times to me that he will just sign off on my prescriptions since for the T1D he doesn't know enough to be able to offer any useful advice.

I am sure that the prices of pumps will eventually come down so I guess a lot of the qualifying hoops will one day go away. But going back to the OP I agree that it would be good to see more choice available to those that do get them offered.
Would also be nice to see the JewelPump starting to make an appearance in the UK since it is a significantly different mechanism for the pump though I kind of lost track of where it was with certification etc. I know it got kicked back first time around since they relied on a phone app for control but have now built out an actual control unit.

/A
 

CarbsRok

Well-Known Member
Messages
4,688
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
pasta ice cream and chocolate
Don't need a referral since my primary diabetes treatment is from the diabetes specialists at hospital. GP has freely admitted many times to me that he will just sign off on my prescriptions since for the T1D he doesn't know enough to be able to offer any useful advice.

What I am trying to tell you is ask your GP to refer you to another hospital and consultant for a 2nd opinion as your consultant now isn't playing ball so to speak, it's amazing how different consultants interpret the guidelines :)
 
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