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MRI results

  • Thread starter Thread starter Sharon Anne
  • Start Date Start Date
I feel very humble at the moment. I have worries but reading what you guys have endured almost leaves me speechless. Sharon, you've had it tough, make no wonder you feel so low. Dibbles and Saffy, I admire how you just get on with things. All I can say is all the very best to you all and big hugs for everyone here xxx.
 
Dibbles1 said:
I remembered some other TOTALLY harmless pockets of spinal fluid last night in bed.

So thought I should share them with you.

There are 'meningocele' or something like that :rolleyes: these are little pockets of debris and spinal fluid that form along your spine after injury. TOTALLY HARMLESS. Very very small.

Then there are arachnoid cysts, with also come off the spinal column, and again TOTALLY HARMLESS, I have two, on my sacral spine. Again, small.

All these things have IN MY CASE been caused by my accident.

But anyone can have them. Many people wouldn't even know.

Neither of them require any action, but they might just want to look closer at something like these, just to register what they are and eliminate them.

So no need to worry x

Good luck and let us know how it goes?

love n hugs

Debs
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Hi Debs thank you I got the letter this morning here is wht it says can you make sense of it as I just feel so unwell with worry nd my husband is struggling to keep me calm.
Okay it stated there are no brain stem lesion ? It then says that there was suspicion of a 1.8cms CSF ( spinal fluid ) signal intensity in the right frontal parasagittal region noticed, the signiicence of this finding is questionable and it could be due motion artefact ??????
It's says in conclusion there is no structural lesion in the brain and he says he will write to me and my GP after the contrast enhancement scan.
Does any of this make sense to you Hun and if so can you just do your calming effect on me please.
I have a lot of pressure feeling in my head and I am worried sick xx
Hoping with all my heart you can shed light on it, the thing is the consultant said more thn once he wasn't worried and tht it was radiology tht wanted to do the second scan my husband says that is reassuring .

Hoping you get to see this soon .
 
AnnieC said:
Hi Sharon I know it is easy to say don't worry but it is what we all do when it is the unknown. I would think as your next scan is two weeks away that it is not something they are that worried about...as your GP said... if they had been surely they would have wanted another scan straight away so that sounds like good news and the scan is just to clarify things but not serious Keep your chin up and I am sure the outcome will be all good
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Thank you I am making myself so unwell ,
 
saffynix said:
Hi Sharon mine isn't the same as you ,but I know the worry and fear you feel .i was diagnosed with a brain aneurysm 4yrs ago and had it coiled then after a MRI check up was told they were pleased with the coiled aneurysm and the second one hasn't changed, I hadn't been told I had a second one so now they are just going to watch it which means a wait of two yrs then have another MRI which is due November. So I am living with two bombs in my head ,I just have to push it away and try not to think about it and now my diabetus has gone AWOL so am trying to sort it out on here . All I can say is try and stay positive and have faith in your drs .keep us informed.
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I am just all over the place withe everything Hun x may I ask you something please your description of living with a bomb in your head is how I feel the same right now . When I had this scan I said that once I got the all clear I was going to chuck myself into therapy as my family is falling apart.
Okay what I want to ask Hun and you don't have to answer you have obviously been through the mill with scans and everything , my first scan was three weeks ago and now the second one will be in just over a week now to me this all sounds very quick but my husband thinks tht if they were worried they would have not just let me go and the consultant wouldnt have said he was redoing it because the radioologist wants it but he is north worried. X what do you think overall Hun
 
Hi Sharon. The first scan I had was ct. when I got home from having that there was message on phone to go back next day for another ct with dye ,within a week I was sent for for a MRI ,then I was told by my consultant that same week what I had , so to me that was quick although I had to wait 6months for op which I must admit was hell. I feel if it's urgent they move quick. So please try not to worry ..I must admit I hadn't read your full story at first , you have had it really bad not surprised how u are., I lost my son to cancer 12 yrs ago sometimes you wonder what you did it a past life to get all this c--- but we have to try and plod on ,you can get through this Sharon and you've all these lovely people on here to listen .xxx
 
Dibbles1 said:
Hi Sharon

Soo so sorry, I was out with the pup at the vets today.

Then I just spent two hours trying to get online to reply.

First of all, that's just an area and view of the brain.

Fabulous news, is that Aldebaran gets to say 'told you so'. LOL

Movement artefact, means there's probably nothing there at all.

It all means that you probably just moved, or took a deep breath at some point.

So in short, they just want to re-scan you to make sure.

Go out and have a nice meal and a drink girl xxxx

love Debs
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Hey Hun thank you x I too am having problems getting on line .
I think the thing that is confusing me is that when we sat with the consultant yesterday he said that he can see the sac and that he could see the dent ???
So I am. Going round in circles Hun x What so I have dent in my brain ?
My diabetic nurse read the letter today and she says the thing I need to bear in mind is that it states no tumours
The consultant said he could see the dent and now I have time on my hands I m going over and over it.
Let's say there is a fluid sac there do you really think they are nothing to worry about xx
I must be driving you nuts my head is just banging with it all and I am going over what the Dr said and I am driving everyone nuts .
So sorry just tell me straight what you really think Hun x
The nurse says to her it reads like essentially fine even if there is this fluid sac she is saying that it still reds fine .
Please don't give up on me debs x
I feel so bd coming on here talking about this nd not my diabetes.
We are supposed to be going out for a drink later and I so wished I could celebrate like my husband says I should he says he would be chuffed there are no tumours and that the consultant said it was the radiologist who suggested it , speaks volumes he says
 
saffynix said:
Hi Sharon. The first scan I had was ct. when I got home from having that there was message on phone to go back next day for another ct with dye ,within a week I was sent for for a MRI ,then I was told by my consultant that same week what I had , so to me that was quick although I had to wait 6months for op which I must admit was hell. I feel if it's urgent they move quick. So please try not to worry ..I must admit I hadn't read your full story at first , you have had it really bad not surprised how u are., I lost my son to cancer 12 yrs ago sometimes you wonder what you did it a past life to get all this c--- but we have to try and plod on ,you can get through this Sharon and you've all these lovely people on here to listen .xxx
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thank you so much x I am so sorry to hear about your son x it makes me question my faith sometimes xx
 
thank you so much it's mad my health anxiety is my biggest issue x I am now sat here feeling immense head pressure and if I touch my head it hurts this is how bad this as got to me x I am now feeling the top of my head and I can feel a lump and well my hair is getting a little thin due to PCOs and looking through my hair line the top of my head looks a funny shape like it has a huge lump on it xx
So sorry I am just being honest as you have been my rock these past few days x
What the hell is wrong with me x
Bet yer wish you hadn't answered me now xxxx
 
Sharon Anne said:
thank you so much it's mad my health anxiety is my biggest issue x I am now sat here feeling immense head pressure and if I touch my head it hurts this is how bad this as got to me x I am now feeling the top of my head and I can feel a lump and well my hair is getting a little thin due to PCOs and looking through my hair line the top of my head looks a funny shape like it has a huge lump on it xx
So sorry I am just being honest as you have been my rock these past few days x
What the hell is wrong with me x
Bet yer wish you hadn't answered me now xxxx
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We all need to vent sometimes Sharon. Dibbles and others have given you some great advice my dear. You're on health alert right now and that is one of the worse things to feel. Believe me I know, I've driven myself mad with it sometimes. You need to go and distract yourself and try not to think of things too much. Everything at the moment will feel worse than it is. Again, good luck and never fear of letting it out and asking for help. Take care xxx.
 
Aldebaran said:
We all need to vent sometimes Sharon. Dibbles and others have given you some great advice my dear. You're on health alert right now and that is one of the worse things to feel. Believe me I know, I've driven myself mad with it sometimes. You need to go and distract yourself and try not to think of things too much. Everything at the moment will feel worse than it is. Again, good luck and never fear of letting it out and asking for help. Take care xxx.
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Thank you your right I decided not to go out but spent the night with a glass of red wine watching a movie with my son xxx
 
Dibbles1 said:
LOL
Not at all Sharon.

Your head's always been that shape, and that bump has always been there.

That's what anxiety and being extremely tired and stressed does to you.

You just need to rest and sleep and shut it all off for a bit.

Love Debs
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I adore you missy xx spent the night instead of going out watching a film with my son and a glass of red wine xxx he just wants his MUm to come home xx
 
Well trying to pull my socks up today as my Son wants me to go for a meal with him later.
can I ask any of you and I know a few of you have mentioned stress , I have had the headache from hell and immense feeling of head pressure got up this morning and I am very dizzy and have even been sick with it.
Debs if you do see this you have got to know how my mind works well I just keep thinking it this sac thing that is building my brain pressure but my husband thinks its stress .
So want today to be a little calmer than the last few days x
Very odd when I take a breath through my nose as well feels just like top of the head down the front of my face pressure .
Sometimes getting a stabbing pain xx
I am noticing all sorts now and overthinking everything x
It's like I have been saying for weeks that my vision is odd it was blurry with the high sugers but after they started to come down everything looked well it sounds mad but bigger I hope someone knows what I mean anyway I have also noticed that when I look through one eye things look brighter than with the other eye . My eyes have been looked at by drs and my screening was fine so now well you guessed it thinking its this fluid sac if there is one .
Husband and sons take on it is they both say if you look out of one eye things look diffrent than the other and things may appear darker from eye to eye I sat and had a really good talk to my husband last night and he says that since I was diagnosed diabetic I have become so much more stressed , he understands that completely but he says I have taken this result from the MRI the wrong way and that he wishes I would relax a little and re read the letter and the bigger point that they found no tumours xx
I dunno guys thought writing it down on here may help xxxx
 
My husband is sitting on the bed with me t the moment and he says I just look scared of my own shadow he says that the only way people cn help is if I m honest bout my fears so okay I am going to be even if I look. Plonker.
Head pain nd dizzy feeling sick nd been sick even hurts when I move my eyes if I move head to sharp I hve little white spots in eyes , my mind is saying oh god it's the he'd pressure building up !!!!!
husbands take on it , I am stressed have been dizzy many times and this fluid as if there is one is tiny no one apart from is worried !!!

What is my one big worry and Staffynix you mentioned feeling that way , I feel like I hve. Time bomb in my head !
husband says that the Dr said there are no bleeds so I need to try and put tht out of my head .
I want to shout yay no tumours but then I think oh but then there is this fluid sac .
Hubby says I should be shouting YAY as from what the consultant said he is not worried and if it is a fluid sac it could have been there for years , now correct me if I am wrong but I think that's sort of wht you were saying Debs isn't it ( you poor ****** your gonna need therapy by the end of this .

Right so there it's all written down and I dunno maybe someone will have some thoughts .
My husband admits he is no DR but he also says if anyone was worried they wouldn't just say off you go home for a week Sharon , but then I think of Staffynix and the fact it was six months before the operated and my husband as just said yes love but the fact is you don't have a bleed the scan was in his opinion apart from this fluid sac that is to be confirmed ( he admits the dr says he thinks there is one ) he says all in all it was clear xxx
So there you have it hubby is a good kind mn but I don't know if he is talking perfect sense or just being kind xx
 
Debs if you get to see this your knowledge and advice as kept me sane x are you really not worried the consultant said there was a dent ?
I mean do you think they are just harmless sacks of fluid really ?
I have the fact this started with my pupils going small going round and round in my head .
Now I have had for eye drs and the consultant check my eyes and they say that my pupils are small but they are reacting to light when they test them the neurologist says that my pupils reacted as soon as he shone the light in them .
Now I am thinking oh my god it's all connected .
I guess I may be overthinking everything .

I dunno do I kick my **** into gear or head for hospital xxxc lol or the funny frm
 
Sharon Anne, my take on this is that many, many people have this without ever knowing, or it causing a problem. It's only discovered when a routine test is done for something else, and often it doesn't even require treatment. As there is quite a gap before your appointment for a scan, it's highly unlikely that it is anything serious, and it is quite common for a radiologist to ask for a recall, from lack of clarity and they want to make sure the i's are dotted, and the t's crossed, to technical malfunction of the machines used.

I've read through the symptoms you are experiencing at the moment, and without exception, they can be attributed to stress, anxiety and panic. Which you have already said you suffer from anyway ;) Whatever it is (if anything) there is nothing you can do apart from wait and see, any amount of worrying isn't going to change anything. What you can try to change is the anxiety you are feeling, which is what is currently making you feel miserable ;)

Easy for me to say, I know, but do try not to worry too much, relax a little and do things you like to do, be good to yourself. You have done the right thing with sharing your anxieties with us on here, that in itself relieves the pressure . Try distraction therapy, go out, read a book, watch a film, anything you like to do. I clean out cupboards , but then, I'm just plain odd :D

This too, shall pass.

Big ((((((hugs)))))

Signy
 
There's a book by David Veale called Overcoming Health Anxiety - available on Kindle on Amazon as well as proper book format- that you might find useful.
I can't comment on the MRI scan but the rest of your symptoms are certainly attributable to high levels of anxiety. At the risk of appearing negative, it is that needs addressing as soon as possible as , speaking from experience, once the repeat scan is done you'll move onto another aspect of your health to worry about, or want another scan in case that one was wrong etc etc. It is an endless viscious circle and the only ay out is to seek help to learn to deal with uncertainty. You could spend the rest of your days searching for answers to one medical problem after another and be run over by a bus on way to the shops. We all have areas of anxiety unique to us, and given your medical conditions it is only natural that you are cautious about yoir health- but you need to live a life , no matter how long or short it is, and with all this worrying you have no life at all. This is something I am dealing with myself as I have health anxiety too- slowly coming to see that it's far better to take a chance and live with the uncertainty than to seek reassurance constantly and only reinforce the cycle.
I wish you good luck with the scan, but even better luck at nipping this in the bud as soon as possible. I'm sure you know that things like CBT are helpful so if you aren't receiving any, pester GP for a course. It is your way of thinking that needs to change,- once you change your thoughts and anxiety maintaining behaviours, the physical effects of anxiety diminish and you step off that endless loop of triggers and weird bodily responses.
 
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