Hello - my son was admitted to hospital two weeks ago with severe ketoacidosis - and diagnosed on admission with T1 Diabetes, with 5% beta cell functionality. I am heartbroken for him as he tries so hard to be his wonderful gentleself, but wakes screaming in confusion and fear. And it is so hard to explain what I can't wrap my own head and heart around. He is now home and using a pump. I feel so shaken in my ability to make the right choices for him - that voice that says "surely a good mother wouldn't have let him get so sick.".. I just want to kiss it better! My son is 2 1/2 and turned to me and said "mummy, it is not fine. It is far from fine"...I want to help him, emotionally and physically and I'm hoping to find the community who will help me find the way. Anyone in Cumbria or Northumberland in same boat?
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Mum of newly diagnosed toddler
- Thread starter Blissfool
- Start Date
Love to you and your son. I'm sure it feels that the sun will never shine again, believe me it will.
It really is a hard pill to swallow when your child is diagnosed-I cried everyday for perhaps 2/3 weeks, and then gently acceptance came through. You are on a journey and everyday will get just slightly easier until type 1 becomes part of the family. As you go along the process of coming to terms with your sons diagnosis I send you love and hugs
Emma x
It really is a hard pill to swallow when your child is diagnosed-I cried everyday for perhaps 2/3 weeks, and then gently acceptance came through. You are on a journey and everyday will get just slightly easier until type 1 becomes part of the family. As you go along the process of coming to terms with your sons diagnosis I send you love and hugs
Emma x
Hi. So sorry to hear about your son. Things will get easier over time, but right now you are having to experience a rollercoaster of emotions and it can be a very hard time. I'm sure you will find lots of support on this web site which I personally have found invaluable. My son was diagnosed at the age of 4 so he wasn't quite as young as your son and my daughter at the age of 6. It is amazing how resiliant kids are and they just seem to get on with things even when we are falling apart. Diabetes will not stop your son from achieving and doing all the things he wants to and over time you will accept the condition and it will become part of life. Leggott.
Jen&Khaleb
Well-Known Member
I really feel what you are going through but don't feel guilty about what happened at diagnosis. My poor son had a bsl of 86mmol at diagnosis. In all honesty it happened so fast between some extra drinking, looking like he had a virus, seeming to recover and then the emergency department. This was all in about 36 hours.
You would have been told that you have done nothing wrong and there was nothing you could do to prevent diabetes. Your son is young enough that he wont really remember life before diabetes before long and if you can manage to keep a positive outlook your son will also (even if you have to have a good cry when he's not around.)
Try and think of every finger prick and cannula as 'kissing it better' as that is truly what you are doing.
You would have been told that you have done nothing wrong and there was nothing you could do to prevent diabetes. Your son is young enough that he wont really remember life before diabetes before long and if you can manage to keep a positive outlook your son will also (even if you have to have a good cry when he's not around.)
Try and think of every finger prick and cannula as 'kissing it better' as that is truly what you are doing.
