My four year old son has type 1 we need HELP

Jude1

Member
Messages
8
To Woodiamond.

Sorry I missed your post. I hope you are feeling a bit better and getting more sleep. It is normal (I hope otherwise it's just me and thee! ;)) to feel constantly worried. When my son was first diagnosed he was just a few weeks into having started nursery. They were brilliant with him, as have been his school.

How much contact have you had with your school. Did the diabteic nurse train the school staff with you, or did you do it alone? Do you have a good rapport with the staff who have been trained to care for your daughter? Although I presume next term will come different staff. It is important to build a good relationship with staff, if only for your own reassurance that they are doing everything they should be in the interests of your child. I have found that those who have looked after my son notice when he is starting to look peaky and will check his Blood Glucose and find he is hypo - and I can never tell by just looking at him - so they know better than me!

We organised a to and fro book to hand to the class room assistant or teacher looking after him. There is a day to a page, and on it I put on his Blood Glucose reading for first thing in the morning and write any notes for anything I want the staff to be aware of. Then there is space for them to write down his lunch time reading, what insulin they have given, what he has eaten at lunch time or any snacks he has had or Blood Glucose readings at any other time. They will say in the book if he was hypo and what course of action was taken and if he has had any upsets during the day. It sounds quite detailed, but really it's only information put in as necessary and what you know you would want to know about. When my son was in the infant school, all the kids went to the class room with their parents so I always spent about five minutes or so, doing a "handover" with the book and explaining any different to what they may be used to. Now he is in Junior school, it is his responsibility to make sure he hands over the book and he brings it back home again. This goes some way to reassure that they are constantly monitoring him.

It is hard, particularly when you feel such a burdon of responsibility yourself in making sure your child does not get poorly to hand over that responsibility to other people who essentially, unless you have known them well prior to being involved with your childs class, are strangers. But once you know your child is happy and settling in well in to the class, you do come to welcome the respite. And if you are up all night (I hadn't been for a good few years, until our son recently went on a pump and can so sympathise), you should try if you can to use that bit of respite to get a bit of rest.
 

DizziDog

Newbie
Messages
2
To all the newly diagnosed & parents of, I just wanted to say something that I'm sure many parents will relate to.
Our daughter was diagnosed with type 1 3yrs ago when she was 5 & seemed to accept it immediately. We kept waiting for the tantrums to begin, expecting her stubborn nature to shine through picturing having to wrestle her at insulin time, deal with the tears when she couldn't face another needle. None of this happened, ( we are aware that this doesn't mean she wont ever rebel) but my point is, it's us parents that feel like our world has been turned upside-down, we cry, question 'why our child?' and generally scream at the world while they take it all in their tiny little stride!

My little girl's strength and courage is a constant source of inspiration, she will not let this slow her down let alone beat her, I'd never of coped during those 1st months without her!!!
They do say though
"Parents of diabetics have the toughest most resilient kids around"

There is light at the end of the tunnel xx