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My name's Gordon and I'm a diabetic...

gfmoore

Well-Known Member
Messages
354
Location
Stoke
Type of diabetes
Treatment type
Diet only
Uhmm, now that I've broken the posting ice and seem to be going a bit OTT I thought I'd use my energy today to introduce myself properly.

I'm 55, weigh 17 1/2 (was 18 1/2) stone, 5ft 10, but still got all my hair.

25 years ago, I was reasonably fit, slim and a chain smoker of roll ups.

Then I became a JW and as part of that I gave up smoking. The first thing I noticed was that I began to put on weight and more weight.

Some years ago (more than 5 I think), and I just cannot remember when, as part of some blood test my doctor told me I had diabetes type II. He said lose some weight, do some exercise. I did neither just kept on with my sedentary lazy life and though I tried the gym for a few months that's all I did.

Oh he gave me a blood glucose meter and I just took the occasional reading and recorded it, but it didn't really figure. It was up and down like a yoyo and so like my blood pressure didn't seem to be consistent enough to mean anything. I think I was once told my HgA1c reading, but it meant nothing.

Then he decided to put me on Metformin, gliclazide, januvia for the diabetes, ramipril and simvastatin and . an aspirin. What a drag. Anyway I just took them.

The worst symptom I experienced at this time was a lessening of er, prowess!

I sort of knew diabetes was a bad thing, but since I didn't feel much different I wasn't bothered.

I then read about how a gastric bypass could end my diabetes and so I gave some consideration to that and was sent to the local hospital. Fortuitously there was a series on tv about gastric bypass surgery as well. The consultant sent me to the dietician - I had to lose some weight first and to the diabetes doctor who put me on Byetta, taking me off the Januvia.

It was a pain in the neck having to inject myself before each meal, though the injections themselves didn't bother me - I have enough midriff fat - sigh. After a year? I asked to be put on Bydureon with it's once a week injection. The needle was much bigger for this and sometimes very painful as well as a faff, but better once a week than twice a day.

Every year I would have my feet checked and my retinopathy exam - both okay, though my health area -stoke-on-Trent) stopped the foot exam, which I now feel is appalling.

I didn't have any side effects, but neither did I lose any weight, in fact my weight increased during this time. However, every six months back to the diabetic doctor who just said, improve your diet and do some exercise. I said to the dietician that I realised I wasn't going to change my diet that much and just couldn't be bothered doing exercise, so we agreed not to bother seeing her anymore. The diet suggested was just a balanced type thing. I knew I had to cut back on the beer and the chocolate biscuits and eat more fruit and veg, but English fruit and veg seemed so horrible compared to what you get from the markets in France etc that I just paid lip service to that.

I also decided that the gastric surgery was much too drastic for me and had a high risk and since I hadn't lost any weight the surgeon wouldn't do it anyway.

During all this time I never got the impression that I was ever given any serious explanation as to what was going on with the diabetes, how it worked, what I could do. It just seemed to be lose weight, do exercise and you'll be right.

I noted that I had elevated blood glucose level at the start of the morning and when I mentioned this to the diabetes nurse (who was sort of monitoring my byetta/bydureon use) just suggested I have an extra gliclazide. It didn't do any good.

A year or so ago I noted pain in my arms and in the shoulder. I was sent for an injection that sorted out the pain in the shoulder eventually, but the pain in my arms kept on.

I mentioned this to the doc who said and did nothing.

Three months ago I noted that my blood glucose seemed to be getting a bit higher, again mentioned to the doc who said and did nothing. By this time my simvastatin had been changed to atorvastatin and dded amlipodine (or whatever its called). I didn't feel as well with this and I noted my arm pain got worse.

Doc didn't seem bothered when I mentioned it to him.

I got called in to be told my liver ALT reading was twice as high as it should be and that I needed to stop drinking for three months. I used to have a beer or two at night.

I also got called in to visit the eye doctor at the hospital as a result of my last retinopathy exam. This was a bit worrying as it hadn't looked like a problem.

Then one night about a month ago (May 3rd 2014) I was looking at the captions on the tv and noted a blurry spot in my vision. This was rather more worrying. I later found it that it was probably sugar getting into the fluid in the eye and causing the rays of light to be diffracted slightly differently - like a sugar drop in the eye fluid.

Again when I mentioned this to the doc he just looked at me and said nothing. He gave me an inhaler for my cough.

However, this blurriness at last worried me enough that I decided that I needed to get to grips with my diabetes and pains as no-one else was going to.

Very fortunately I saw the book Blood Sugar 101 on Amazon, downloaded it and was blown away.

I couldn't believe how ignorant I was. I'm not stupid - I teach computer programming, maths and statistics etc - but man was I ignorant about something that was heading towards killing me horribly.

I realised I didn't want to go blind as I love reading etc.

Over the last month (is it only that long?) I have gone mad with the blood glucose meter, at first taking my readings every hour and graphing the results. It's cost me a fortune in strips, though the doc has now increased my prescription, I have read Bernstein and many other forums. I have now come off my meds totally from today, though I know this will have an adverse effect on my blood glucose for a while, but I just need to get rid of this cough and I am on a low carb diet, which is hard work, but at least I can see the results on my testing. The Dawn Phenomenon is my biggest issue, and my cough is lessening. My arms still hurt, but not as bad as when on the atorvastatin.

My doctor won't let me try basal insulin. I have to see the hospital doctor later this month, see what he says. My ALT is hgher than it was before, so now I have to go for a liver scan.

However, I am now in some kind of control, I now have the power to decide what I will or will not do about the diabetes. I now have a good chance of not going blind.

My average bg was 9.3, for the last month it has been 6.1 - That I consider a battle won in the war.

Look forward to sharing.
 
wow Gordon, welcome to the forum. You have woken up and decided to tackle this head on, well done you. You will learn a lot from this forum and everyone is friendly. At last you have started off with the good books and blogs that we have all discovered.
 
Hi Gordon, welcome, wow that's quite a story! Good to see you starting to turn things around, there's lots of good advice and experience on here.
 
@gfmoore - coincidentally, there was a posting yesterday from @Southport GP relating how he has witnessed improved liver function in people who have participated in his Low Carb diet programme. You could find the thread a useful, if long, read.

http://www.diabetes.co.uk/forum/threads/new-research-on-the-low-carb-diet-in-general-practice.53261/

The thread contains links to the Docs presentations and papers, so there's plenty to take in.

I'm a lower carber, as opposed to Low Carb High Fat (LCHF) eater.
 
Hi Gordon and welcome. Thank goodness you have eventually come out of denial and decided to take control. Keep browsing, keep asking questions, keep testing, record everything you eat and drink and your BS levels. Try and get hold of your last HbA1c test result and ask for another one a couple of months from now. Good luck!
 
As you are into graphs ask for all your previous test results l find a help
 
Hi, I too had a high liver ALT reading, following a low carb diet has brought this down to near normal levels. Well done for sharing all of that with us.
 
Hi. The good news is that you are now low-carbing which is the best solution for you. If you can set yourself a daily target of, perhaps, 150gm or less and keep at it you should see both weight and blood sugar reduce. Yes, Gliclazide will have little effect as it's for treating a failing pancreas whereas you probably have insulin resistance and too much insulin. This is probably why you have ben refused insulin as it may not help. Hopefully if you can get the weight down a lot you can come of the Bydureon and Gliclazide and just, perhaps, have the metformin; that's up to the docs. Success will mean little or no further harm being done which will be great for you.
 
Hi Gordon, great to see you taking control. A mass of info on this forum and lots of people with great experience and advice.
 
Hi Gordon, apart from me not being a bloke and not being a JW, I could have written your post, except it didn't register with me even when I found out I had a cataract developing. I took a replacement knee op being cancelled due to high blood sugars to make me sit up and take notice.

My first steps on my journey to taking control start here - http://www.diabetes.co.uk/forum/threads/im-rosie-and-im-a-carboholic.58305/

I have found this forum a great help. Like you, no health professional really spelled out what diabetes is to me. I was just stuck on some drugs, then some more. Given a blood monitor, but not told the implications of what the readings were, so I stopped bothering to take them. On this forum I've finally begun to understand more about the readings and, more importantly, what I can do to get them lower.

The diet suggested by the diabetic nurse - the balanced plate approach - didn't work for me, and my portion control was ridiculous. I ate healthy food, too much of it, but also too many carbs and they don't do me any favours.

So you've taken the first steps and I wish you all the best on your journey. I hope to share it with you and wish for both of us that we get to where we want to be.
 

This is my Blood Glucose since February. I took control about 5 May 2014. Yes a lot of readings since then.

Oh the hyper and hypo levels are just my limits, as is the blue zone and yellow zone. I'm aiming for the blue zone.

(Using Jazz meter and app from AgMatrix - supplied by GP and AgaMatrix UK)

Thanks for all the positive encouragement
 
Tremendous improvement Gordon. Well done. Excellent HbA1c as well. Keep going and you will see even more improvement.
 
A big hello and welcome to the forum. With best wishes
 
Hi Gordon welcome to the Forum, the people on it are wonderful as you can see. Well donw with taking control. Ps prob really silly question but what is JW? LOL x
 
Hi Gordon welcome to the Forum, the people on it are wonderful as you can see. Well donw with taking control. Ps prob really silly question but what is JW? LOL x

Jehovah's Witness.
 
Hi Gordon,

I've recently come out of denial too; my last HbA1c is also 51 and I've just had a liver ultrasound scan because my Doc said my liver figures were 'wonky'. (I can't keep up when she uses these technical expressions ).

Take care with that blue band if you drive. The rule I was given is "If it's under 5, don't drive.". It stuck, so I don't..

J.
 
Welcome Gordon. Looks like you are doing all you can and that's important. Complacency is a real threat with this disease, it allows us to ignore what's happening but you have come out of the darkness and into the light so well done you. Knowledge is power!
 

Hi Gordon, well I am glad you are having a new look at everything. You have a lot going on and I think what struck me the most was the lack of proper support you have got over the time. I too am in a similar boat to you and am facing blindness as a possibility. I have had difficulty controlling everything and because I also have M.E. I was told there was no point in trying to excercise because I would get iller.
Also I have asthma. But I found that it was not okay to just give up on me. And it is not okay for them to not help you properly either. However the biggest help can come from yourself as I have found and sometimes we have to make ourselves the expert in diabetes and solve our own problems. I think as you have started doing that and achieved that wonderful result you should be very proud. You can do anything you set your mind to.

I noticed you were on statins and getting side effects. This happened to me and I eventually found out there was something called fenofibrate which successfully lowered my cholesterol and I now have that instead of statins.
I went to regular DECS appointments but suddenly things started to go wrong. And I have been under the specialist eye clinic at Kings College Hospital for a while.Make sure you push people into dealing with any eye problems and never miss an appointment. Some things you just cannot leave. The thing is you just cannot tell what is going on with the retina most of the time and you just have to be checked over. Sometimes sudden changes in glucose levels can trigger retina problems. This can be sudden rises or sudden decreases in blood sugar levels.
But once again you have made an impressive start to getting things under control. It is hard work but it will be worth it.
 
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