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-naming Type 1 diabees

S

spills 12

Newbie
Messages
1
Type of diabetes
Type 1
Treatment type
Insulin
I have been a Type 1 diabetic for nearly 40 years and have managed to keep very good control--so far having no complications. My reason for this blog is to get opinions on petitioning to get a name change for Type 1 diabetes. I find that I am frequently asked the question "were you very fat?". My reply is that I have always been very slim. The problem is that the general public do not seem to understand that Type 1 diabetes is totally different from Type 2. There is so much written in the media about Diabetes being a lifestyle choice and it is not understood that there are various forms of the disease.I think it would be so much less confusing if Type 1 Diabetes could be renamed and would cause us Type 1's less stress in being thought of as coach potato gluttons.
 
So how do you think we type 2's feel being likened to a couch potato glutton, especially by a type 1. I have never been a glutton and never been a couch potato.
 
But not all Type 2s are fat, what is needed is education on the whole diabetes and pancreas function.

It should be I have diabetes shouldn't matter what type, if people ask tell them to mind their own business.
 
I agree the virtuous T1's shouldn't be associated with the evil gluttons T2's
There are a few T1's who think it's over eat first, then T2 and not T2 insulin resistance which causes over eating and weight gain
 
It's a real shame that within this diabetic community we can't find the spirit to support each other in the commonalities of our conditions.
 
Deja vue, there is a long thread on here about this, it was at times divisive , it wasn't the best use of time and certainly not good for a support forum. I hope that this won't happen again.

Perhaps you might like to read this article which gives an alternate view from a T1 blogger.. (unfortunately some of the links from it aren't working anymore) .
http://www.diabetesmine.com/2013/04/the-kerfuffle-over-new-names-for-type-1-and-type-2-diabetes.html

Is T2 itself is it one condition any way?

Type 2 diabetes is a disease in search of a definition. It has no hallmark clinical features, is generally diagnosed by default (no other cause for diabetes being evident), has very heterogeneous pathophysiological features, and varies widely between populations in clinical presentation and consequences.
Click to expand...
http://www.diapedia.org/downloads/category_error.pdf

Here's a guy with T2 (couch potato?)
http://www.teamnovonordisk.com/teams/type-2/john-Anderson
What about this one, you must have heard of him. Five Olympic gold medals gained, in spite of sitting on the sofa stuffing himself all day!
http://www.nhs.uk/Conditions/Diabetes-type2/Pages/SteveRedgrave.aspx

And just where would you put those of us that have LADA (latent autoimmune diabetes in adults) ?
Doctors can't agree on where in the spectrum from T1-T2 it lies. A similar condition is also becoming recognised in childhood onset 'T1' where some children have a much slower onset than others. What about the numbers of people labelled with T1 at present who they now realise have some working beta cells after 50 years of diabetes. What about those who are prone to ketosis but have no evidence of autoimmunity? (at the moment variously labelled T1b or T2)

Name change won't educate the public nor the media and we don't actually have the science to subdivide effectively anyway.

(added more this morning)
 
Last edited by a moderator:
I think it might be useful for you to also educate yourself about the different types of diabetes, rather than rely on ignorant misinformation about type 2 diabetes, and lumping us all together as "coach potato gluttons"...

If you find it offensive to be lumped under this description, then how do you think that slim and otherwise healthy type 2s feel when a supposed fellow diabetic attaches this label to them?? Do you actually believe it's any less stressful for them??

Robbity
 
spills 12 said:
I have been a Type 1 diabetic for nearly 40 years and have managed to keep very good control--so far having no complications. My reason for this blog is to get opinions on petitioning to get a name change for Type 1 diabetes. I find that I am frequently asked the question "were you very fat?". My reply is that I have always been very slim. The problem is that the general public do not seem to understand that Type 1 diabetes is totally different from Type 2. There is so much written in the media about Diabetes being a lifestyle choice and it is not understood that there are various forms of the disease.I think it would be so much less confusing if Type 1 Diabetes could be renamed and would cause us Type 1's less stress in being thought of as coach potato gluttons.
Click to expand...


Have you ever considered that there are many reasons as to why a person develops Type 2 and media stereotypes, which you seem to endorse, do nothing to help any diabetics.

If you feel it necessary to condemn and segregate other members of society then I would suggest that you look within yourself. There are people of all shapes and sizes who have diabetes, even Type 1.
 
I gave been diagnosed for 12 years as type 2. My gp told me I was always going to be diabetic. Why ? He said I just was because of all the problems if had leading up it it. . I am 4 ft 9 inches and until I had my second child I weighed less than7 stone. But I had high blood pressure and cholesterol from my twenties. Along with IBS. . I was actually told to eat less fibre but not more fat . But obeying instructions got me nowhere. I did not become overweight until I got a full time desk job .so I am not lazy it gluttonous. I have since been told that all of my problems could be down to the fact that u only weighed 3lb at birth even though I was full term . Even now though I cannot bring myself to go completely LCHF because I already have heart disease and have had low fat drummed into me for over 30 years . I'm scared to make the change.my type 2 was not self inflicted. My old GP retired and my bee one just says do what you like you know more than I do


Sent from the Diabetes Forum App
 
Not necessary for all the reasons already stated, we should stand United not Divided and try and educate the uneducated about diabetes and its causes.
 
A year or so ago there was long thread about alternative names. It was very creative with a lot of input but got nowhere! Possibly a useful modification is to talk about insulin-dependent diabetes and non-insulin dependent. As Phoenix has said, approx. 20% of so-called T2s are not overweight and the majority are probably Late onset T1 (LADA), so getting improved diagnosis would help narrow T2s down to those who are insulin resistant and probably overweight due to diet. This would minimise those LADAs who are not yet on insulin being questioned as to why they aren't fat. I'm not suggesting any of the groups should be targeted for criticism but the problem is education of the population at large. I always try to explain to people what diabetes is and the range of different types (there's MODY, Gestational and so on). I try to highlight to two key areas of separation i.e. insulin resistance due to diet and genetic pre-disposition and failing islet cells due to a range of things e.g. auto-immune reaction, pancreatitis, viruses and so on. Whether any of these people remember anything I have no idea but you can only try!
 
We should stand united but of course all of us huge T2s will be sitting on our arses eating biscuits and sweeties.............
 
semiphonic, If I thought someone would take notice. I would put up a link showing how it's insulin resistance causing the high BG. That means the cells aren't getting energy. That causes hunger, the body thinks it's starving and sends signals to eat which then increases BG levels. Catch 22.
meanwhile the liver is busy trying to get rid of the glucose by making it into fat
 
jack412 said:
semiphonic, If I thought someone would take notice. I would put up a link showing how it's insulin resistance causing the high BG. That means the cells aren't getting energy. That causes hunger, the body thinks it's starving and sends signals to eat which then increases BG levels. Catch 22.
meanwhile the liver is busy trying to get rid of the glucose by making it into fat
Click to expand...
You're preaching to the converted (me), but I would still appreciate the link!
 
jack412 said:
semiphonic, If I thought someone would take notice. I would put up a link showing how it's insulin resistance causing the high BG. That means the cells aren't getting energy. That causes hunger, the body thinks it's starving and sends signals to eat which then increases BG levels. Catch 22.
meanwhile the liver is busy trying to get rid of the glucose by making it into fat
Click to expand...

I'm interested Jack, please post the link
 
it was a youtube one and I'm on mobile broadband, so I'm limited in data search and video is out of the question for now
here is insulin resistance and fatty liver http://www.ncbi.nlm.nih.gov/pubmed/16179270
here is glucose not getting into the cell http://www.joslin.org/info/what_is_insulin_resistance.html
"Insulin is a hormone produced by the pancreas that helps unlock the body's cells so that sugar (glucose) from the food we eat can be used by the cells for energy. In people with type 2 diabetes, a combination of problems occurs, and scientists aren't really sure which is the chicken and which is the egg.
The person's body may not be producing enough insulin to meet their needs, so some glucose can't get into the cells. Glucose remains in the bloodstream, causing high blood glucose levels. In many cases, the person may actually be producing more insulin than one might reasonably expect that person to need to convert the amount of food they've eaten at a meal into energy. Their pancreas is actually working overtime to produce more insulin because the body's cells are resistant to the effects of insulin. Basically the cells, despite the presence of insulin in the bloodstream, don't become unlocked and don't let enough of the glucose in the blood into the cells."

here is Insulin Resistance - Starving Cells http://www.bistromd.com/insulin-resistance/what-is-insulin-resistance

I'm getting flooded with fatty liver when I try to search for the liver conversion of glucose to fat best I can do is http://www.thenutritiondr.com/gluco...e-liver-glycogenhow-much-glycogen-do-we-have/

fructose is converted by the liver the same as alcohol, which is why too much fruit sugar is bad
 
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