I dropped 30 points in around 12 weeks, you dropped around 65 so I imagine your pain is twice as bad.......I get arm and leg pain as in dull aches but can still work out. I think there is some supplementation that people have found effective. I have to ask , how did u achieve such an incredible drop in HBA1C??
Neurologist diagnosed with me insulin neuritis, so can it be possible to be too effective?
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Walking everyday & cold turkey…gave up all sugar, bread, pasta, desserts, ice cream, all alcohol, chips, snacks and eat about 20-30 carbs per day since 8/15/22. I attacked it like I’ve never attacked anything else. I went too fast too hard. Developed Morton’s Neuroma in left and battling that now.
Same experience - I only want from 11.0 to 8 but need to see my current HBa1c next week, the muscle aches are uncomfortable. I even had an EMG with a Neurologist to ensure nothing more sinister. The symptoms are getting better but was told to slow down BG reduction, but I think that the risks of higher bG outweighs these pains....Thank good ness for this forum.
Consider yourself lucky your doctor even knew what T.I.N.D is!
I dropped my BG from 96 to 50 within less than 3 months after diagnosis and it went down to 31 after 6 months which is pretty much around the time I had severe problems on my feet with tingling and hot feeling sensations as well as itchiness around my joints (wrists, and ankles) and shoulders. I had a look around and everything pointed to symptoms caused by lowering BG too quickly (which luckily doesn’t affect everyone who does so!).
I called my doctor and mentioned my symptoms and what my google search had produced and I could hear him rolling his eyes from the other side suggesting I should stop googling and that he had never heard of TIND. Other option I found would be B12 deficiency and mentioned that but he dismissed it completely saying there is no correlation between B12 and nerves (?!?!?).
So I followed the advice I found on this forum and started supplementing with Alpha Lipoic Acid and that helped me! Pain stopped or if there is... is bearable. I tried stopping those tablets after a year or so but pain came back after a few weeks and couldn’t sleep so had to go back to them and still am.
I saw a neurologist who said that nerve damage is pretty much irreversible.
Could I go back I would take a different approach to lowering my BG and would do it way slower..I wish I knew this before I started this journey
From all I’ve read, watched and learned, peripheral nerve damage is technically irreversible in the sense that the nerve, once damaged, does not recover due to glycation. BUT BUT and BUT….watch Dr. Ken Berry and Dr. Bernstein on peripheral nerve re-sprouting. Peripheral nerves, under conditions you must assist with do re-sprout. Those new nerves replace the old damaged nerve. It takes months but it does happen. I’ve confirmed this with my neurologist and there are many videos on this. 1-3mm per day. But we must stop what is attacking the nerves. It’s the Central Nervous System that do not re-sprout. There are folks on this forum that have seen their pain stop once BG is under control.Consider yourself lucky your doctor even knew what T.I.N.D is!
I dropped my BG from 96 to 50 within less than 3 months after diagnosis and it went down to 31 after 6 months which is pretty much around the time I had severe problems on my feet with tingling and hot feeling sensations as well as itchiness around my joints (wrists, and ankles) and shoulders. I had a look around and everything pointed to symptoms caused by lowering BG too quickly (which luckily doesn’t affect everyone who does so!).
I called my doctor and mentioned my symptoms and what my google search had produced and I could hear him rolling his eyes from the other side suggesting I should stop googling and that he had never heard of TIND. Other option I found would be B12 deficiency and mentioned that but he dismissed it completely saying there is no correlation between B12 and nerves (?!?!?).
So I followed the advice I found on this forum and started supplementing with Alpha Lipoic Acid and that helped me! Pain stopped or if there is... is bearable. I tried stopping those tablets after a year or so but pain came back after a few weeks and couldn’t sleep so had to go back to them and still am.
I saw a neurologist who said that nerve damage is pretty much irreversible.
Could I go back I would take a different approach to lowering my BG and would do it way slower..I wish I knew this before I started this journey
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I think we may be talking about 2 different but similar things. Treatment induced Neuropathy is indeed reversible and goes away 6-12 months but is dependent on magnitude of change and also the length of time that BG was high for. Other Neuropathy is permanent. So I think that we need to understand which discomfort you are feeling. Is it the nerve damage caused by traditional neuropathy ? or is is the TIND? The former is permanent and caused by high BG , the latter is the actual neuropathy caused by the reduction , but is temporary.
Hi, I was referring to peripheral neuropathy due to high BG, not TIND. From what I’ve learned, TIND and PN due to high BG have 2 different causes.
Indeed PN due to high BG is believed to be reversible. The science behind it is explained and understandable. Peripheral nerves resprout. If you YouTube Dr. Bernstein and search for peripheral neuropathy, he explains. As does Dr. Ken Berry.
