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neuropathy

J

james1980

Member
Messages
7
hello, i have neuropathy in all four limbs and my dietitian suspects i may now have it in my stomach . . . when i eat my stomach bloats to twice maybe three times the size, i go to the toilet once a week then my belly goes down. i do try and excrete many times per day but all that comes out is a creamy clear discharge,i feel sick from when i wake until the gabapentin kick in. does anyone else suffer from this and what is it please?
i'm type 1 diabetic and have been for 20 years.
 
Hi
Have you had any stomach/bowel investigations done at all?
I stopped jelly babies as hypo stoppers, my stomach pretty much normal now... But was horrible...
I paid to see gastro chap privately to get ahead of waiting list, he then got me all tested within 5 weeks on NHS.
It is worth speaking to gp and asking for a referral, as there isn't much worse in all honesty than having troubles with stomach and or bowel. Being diabetic also tends to get you seen on a morning if tests needed.

Honest... I would really recommend getting yourself referred...there are so many opinions on what to eat/not eat etc... But it really deoends on where any problem may be in your stomach as going high fibre or going low fibre etc is dependent on what is the causation.... High fibre does not cure all... And even with high fibre there is good and better. My gastro chap advised stating off high fibre breakfast cereals... And to eat fruit and veg with crunchy skins included... Apples, pears.. But not oranges... Carrots, parsnips,.. But much against another posting on here... He advised against brocolli...

I really would advise seeing a gastroenteroligist...
 
James there is a form of neuropathy that affects the stomach, called "Gastroparesis" You might , of course, have developed that.
However it has been found that with improved bg control, these problems can be reduced in many cases.
Maybe now is the time to look at your bg targets and control?
Hana
 
Thankyou for your answers and the heads up on what could be going on, i've been to the doctors and had an internal they're sending me to the hospital for i think it's called an endoscopy appointment.
I've been a proper idiot in the past because i never looked after my diabetes' i abused it and therefor myself, i never told the doctors about episodes of waking up in a morning covered from my mouth down in blood and my tongue sliced open where i've been chomping on it, i now know it's something called diabetic coma?
i met my wife two years ago and now we have children it's given me a proper wake up call, i want to grow old and see my kids grow up and i'm grabbing my management with both hands, i will be in control!
 
Good for you James for climbing back on the diabetes balancing scale...
Do you use jelly babies as hypo stoppers? I had a barium enema done, sigmoidoscopy and a shapes marker test done, as I was ending up in A&e with impacted faeces (not nice). My results were negative, except for swallowing the shapes where 48 out of the 60 were left in me... Should have been none. The gastro chap asked if I had changed anything anout my diet in the previous year....I had... Jelly babies were my hypostoppers. So, I stopped jelly babies. 3 months on now, and my stomach is back to normal....
Not saying it is jelly banies causing you trouble, it seems that many people can eat them.. But they I believe were the cause of my 'slow colonic transit' being diagnosed. I'm seeing specialist again in April.

I couldn't understand why my stomach was getting so bad for the times of going to 'number 2's... As I eat so much veg and fruit and fibre, and pretty much always have, and my control has had lapses but has been fairly balanced.

I now have dolly mixture or mint crumbles for hypo stoppers when I'm out, or kendal cake, or butter tablet. Sugar in coffee if I'm home, ir milk n sugar.

Investigations aren'tpleasant for bowel problems, but far better to have them checked out for a day than suffering the rest of the time.

I wont tell you to change your diet or look at the fibre etc you are eating, as different diagnosis have different diets... Some need more fibre, some need less.. But keep eating same until you get seen by a specialist.. Who can diagnose and offer correct.
 
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