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new and confused type 1

Discussion in 'Type 1 Diabetes' started by lynncampbell, Mar 27, 2010.

  1. lynncampbell

    lynncampbell · Newbie

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    I am 34 just found out I am type 1.

    Most confused about what type of diet I should be sticking to. I know carbs are good for slow release but my levels are high at 16 and trying to get them down and not sure how you achieve this I understand how to increase but not decrease levels.

    Help !
     
  2. janabelle

    janabelle · Well-Known Member

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    Hi Lynn,
    Welcome to the forum :)
    Are you sure you're not type-2? If you're type-1, you should be on insulin. and that reduces BG levels.
    Are you on any medication?
    Jus
     
  3. lynncampbell

    lynncampbell · Newbie

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    yes I am on insulin but levels still on the high side
     
  4. janabelle

    janabelle · Well-Known Member

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    Hi again Lynne,
    it's very early days yet, and there's a lot for you to take on board so it'll take a wee while to get levels to a more 'normal' level. You'll have to follow your doc's advice and increase your insulin doses gradually. Are you being looked after by a hospital consultant, and are you being monitored closely at this early stage?
    As regards lowering BG levels, excercise can also help keep levels down, so a brisk walk, or a dance workout can do wonders!
    What is your daily diet and how are your BG levels throughout the day?

    Jus
     
  5. jopar

    jopar · Well-Known Member

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    If your BG is higher than 12 a brisk walk could be more harmfull than good, gental walk rather than anything too strenuous..

    Is your clinc teaching you to carb count, so that you can adjust your insulin to match your needs?

    Two good books to get hold off, is Think like a pancreas or Using Insulin, either of these will explain carb counting, how to carry out a fasting to test to get your background insulin right etc..

    You can ask many questions here, and there never is a silly question, if you don't know the anwser it's never a silly question to ask...

    Tell you one thing that always drops my sugar levels, a stint ironing, does the same for my husband as well (he's T1 diabetic as well as me)
     
  6. Catherine_h

    Catherine_h · Well-Known Member

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    Lynn

    I was dignosed three months ago with type 1 I'm 42.

    You will have lots of learn and at times things can seem a bit scarey really! but trust me it does get better - I'm starting to feel normal again.

    If I can be any help with anything no matter how trivial it may seem please send me a message.

    take care and keep smiling

    Catherine
     
  7. lynncampbell

    lynncampbell · Newbie

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    Thanks for your replies I am only a week into it I have woke this morning and tested at 7.4 I am more worried that my eyes are still blurred is this normal?
     
  8. Catherine_h

    Catherine_h · Well-Known Member

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    Lynn

    I remember my eyes being blurry for a couple of week.

    I did go see my own optician, just for reassurance, whilst I was waiting for the diabetic eye photos.

    I can see great now! all back to normal

    xx
     
  9. kewgirl

    kewgirl Type 1 · Well-Known Member

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    Hi Lynn

    Just to reassure you blurred vision is common during early diagnosis of Type 1 diabetes.
    It happens due to a difference between the blood glucose level of the lens of the eye and the blood glucose level in the blood.
    Blurred vision is common when blood glucose levels are changing rapidly which is what you are currently experiencing.

    Jopar has already posted an excellent book to get hold of “Using Insulin” :D by John Walsh (ISBN: 1-884804-85-3).
    The other good book which is worth purchasing is "Type 1 Diabetes in children, adolescents & young adults :D (please don’t be put off by the title because the subtitle of this publication is How to become an expert on your own diabetes” by Dr Ragnar Hanas (ISBN: 1-85959-078-0).

    Both the above should be considered a dip in and out book and not a novel that you need/want to read cover to cover straight off (although you might want to of course).

    Keep asking the questions. :D

    Best wishes

    Txx
     
  10. lilibet

    lilibet · Well-Known Member

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    Hi lynn
    I was dx T1, same age as you. Just take your time, its a steep learning curve - with many blips along the way which will frustrate you (now and forever) but if you start as you mean to go on you stand the best chance of keeping well, now and in future

    It would help if we knew what insulin etc you are on as advice will vary slightly as to how to go about things (ie are you on two injections per day, or the more modern regime of 4 or 5 per day). I wont bamboozle you with jargon until you let us know

    Re food and diet though -Managing your carbohydrates is a very good way forward (and IMHO a necessity) for diabetics. The old wives tales of sugar being the 'enemy' are true in part. So, yes a teaspoonfull of sugar or full sugar fizzy drink will raise your blood glucose (BG) very quickly and therefore to be avoided for obvious reasons. You can in theory take it but it will work quicker than any insulin you could ever inject (werent our bodies good at doing all that stuff, and we didnt even known it!! :D ) so for me its not worth it

    A bit of white bread wont raise it as quickly, but it will still raise it, and higher too. As will pasta, rice, potatoes, cakes etc -anything starchy or sweet. In essence everything turns to glucose once its eaten (even proteins such as meat, chicken, cheese) its just a matter of how much, how quickly and how your body responds to this an the medication for the combination of this. The best way is to use your BG monitor to find this out.

    This sound easy in theory and leads to the fallacy that as diabetes is so prevalent (and soon you will begin to hear many many 'I know a diabetic who' stories, I would bet my house on it!) that actually its not that big a deal, and well you look ok and you just inject dont you and thats that. Aye Right!! :evil:


    Things to be aware of though
    - If you start to cut carbs, please please please keep a close eye on your bg. If you keep taking the same meds, you will get lower bg. So, usually a change in diet is accompanied by change in meds (in your case insulin). Again this will either be one ofyour two injections (if thats what you are on) or the meal time injections if you are on the other kind of regime

    -Blurry eyesight is a sign of sorting your bg out - its not permanent and will go away

    -Hypos- Im sure you have been told about these but 4mmol is deemed the lowest to go before hypo 'territory'. The longer you are diabetic the more you will know what to eat, how much and when to stop yourself going too high again after a hypo remedy. For now, please make sure you eat fast acting sugar (fizzy juice, lucozade tablets, actual sugar etc etc). Things like chocolate dont work fast enough (until you learn your own body and then can be confident at treating them with Cadburys mini eggs, like I presently do!!)

    -Honeymoon period - phrase you might hear. Basically after diagnosis your ailing pancreas gets a break, and starts to work again a wee bit. However you are still diabetic but may need less medication and have to cut doses. This doesnt always happen but is very common so dont worry about this- im sure your medical team will keep you up to date

    So, for someone who didnt want to overwhelm, its a hell of a long post.......

    Most importantly - I promise, you WILL get there. Life will be different, but its not over. You will live to eat another chocolate and have another hangover. You will go on holiday, got out with friends, and manage to cope with Easter and Christmas. The words 'wish' and 'cure' will be part of your vocabulary for a while, and may always be but I promise, it gets easier
    So, hang in there
     
  11. manu

    manu · Member

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    Hi Lynn,
    I got diagnosed T1 last year at the age of 30, it really takes time to get BG back to normal!
    I suppose it might depend on which stage you were in by the time you got diagnosed.
    I assure you though that if you keep trying, you can get control of your levels :)

    What kind of medication are you taking? Are you taking any background insulin, or are you injecting only before meals?

    Also, do you measure your BG regularly before/after meals? Measuring your BG levels before and 2 hours after a meal can help you understanding if the insulin dose you are taking matches the carbs you're eating. There are different kind of carbs which can raise your sugar levels differently, but since you're taking insulin, the amount of carbs you eat is important as well.

    I would definitely recommend you the book that kewgirl suggested: "Type 1 Diabetes in children, adolescents & young adults", it is really a good reference book, it has a special section on carbs where it explains in details how different carbs affect your BG. Are you being followed by your GP or are you being followed by a specialist in a hospital/clinic?

    Feel free to ask any questions :)

    Manu
     
  12. lynncampbell

    lynncampbell · Newbie

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    hi all thanks for the posts, I am currently taking novomix 30 insulin with breakfast and evening meal, I am still a bit up and down but not as bad as I were, my concern is headaches and blurry vision still, I have made an appointment for an eye test and not looking forward to the results.

    I am being looked after by the diabetic nurse at the hospital once a week at the mo, going tomorrow.

    This will be the 4th week I have had blurry vision now, also need to know what you are best taking for a headache can we take aspirin or is that something else we can't have !??

    I am off work at the mo as this is only my 2nd week into it work have been very good just want to know am I being a bit pathetic taking time off work?? would be interested to see if others took time off work or am I being soft !

    look forward to hearing from you and just like to say I am finding this forum very helpful it does help to make you feel you are not alone
     
  13. Debloubed

    Debloubed Type 1 · Well-Known Member

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    Hi lynn, bless you, you're not being pathetic at all! although, this type 1 business won't go away so prob a good job when you get back to work and try to get back to 'normal' (I use the term loosely as i'm sure you know there will be some changes!)

    you can treat headaches with your usual method, although I find good old paracetemol works better than aspirin, but you stick with what works for you :)

    I didn't take time of work but I was 13 when diagnosed and I didn't have a job!! :lol: :lol:

    Keep testing, testing, testing and if in doubt, test some more! write everything down as well as what you are eating and know that when you have got to grips with things, you will be able to eat pretty much as normal (providing you didn't previously live on chips and full fat coke!!). It's all about 5 a day and treats every now and then, just like everyone else out there :wink:

    I'm sure your DN is doing her stuff, you will find info on here which may disagree with what you are told but you need to work out what works for YOU.

    All the best,

    Deb
     
  14. Heath

    Heath · Newbie

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    Be careful about treatment of blurred vision until thing have settled down. I to had blurred vision, and got a different glasses , only to find after three weeks it settled down and I was back to the old ones !
     
  15. acron^

    acron^ · Well-Known Member

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    Like other have said, and we can't stress it enough, your vision will return to normal. Do not panic. Do not rush out and buy glasses.
     
  16. jopar

    jopar · Well-Known Member

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    Nope you'll not being pathetic having time off work as in reality you are investing in being a better healthier and more reliable employee..

    I will say though I am surprised that knowing you work that your team have put you on the novomix twice a day regime, unless they have the intention of using this to settle you into jabbing yourself on a regualr bases before introducing you to the delights of basal/bolus regiem ( background know as long acting insulin, then a quick acting insulin to cover food/snacks)

    The Novomix regime only really works well when the diabetic can/does live a very regimented lifestyle that really doesn't change from one day to the next, as to get full benefits from it you need to be doing things like, having breakfast, mid-morning snack, lunch, afternoon snack, tea and supper at set times of the day every day, and with the same about of carbs depicted for each meal/snack... About as flexable as an iron rod!! And impractical if you work and lead an active lifestley..

    Very good information, to expand a little bit,

    1 tsp of sugar will start to raise BG in a couple of minutes, then raise will be fast reaching it's highest point quickly

    1 slice of bread, will take 5 minutes or so to start to impacting on your level, the raise in BG will be much slower, and take much longer to get to it's highest point..

    But if you put the tsp of suger on the slice of bread fold then eat..

    The bread will prevent the sugar getting asorbed and impacting on the BG, slowing it down to it's highest level.. The body doesn't distinquish from fast or slow carbs a such, so it doesn't work with sugar first, by the next fastest etc.. What it does is start to break down the carbs into simple as a complete process, but the comblination of bread + sugar will eventually raise the BG level by the combined carb count..

    Add a fat such as butter, this can slow this process even more, high fat content foods can still be impacting on the BG many many hours later..

    A bit of info to spin the head

    Only 40% of the carbs we eat at any one time, will go straight into the blood system and directly impact on our blood glucose levels, the other 60% heads off to our livers, to top up our Glycogen stores, that drip feeds into our blood stream (hence the need of a long acting insulin which deals with this side) the liver maintains a store of glycogen for emergency to dump into the blood stream to raise BG quickly.. If the stores are all full and anything left over, then body then lays this excess down as fat for an emergency supply that it can pull on when devoid of a carb/food imput..

    Protiens also adventually break down into a simple carbohydrate, around 40+% but this takes time indeed, and has a mim impact on BG levels
     
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