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susanmanley

Well-Known Member
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A couple of years ago I had pancreatitus and was very ill
I have now been diagnosed with diabetis and am quite devestated.
Although I have seen the nurse I am very confused and wonder if I am just old and fat or the pancreatitus is to blame...or both!
I have also had a range of symptons over the last few years but as I suffer from deppression and anxiety they have always been put down to this
I also suffer from CHD and want to know if I should inform my specialist. Also I had my left kidney removed due to a tumour in 1997 so should I inform those people so my other kidney is watched.

As you can see I am very mixed up and worried. Can anyone help?
 
Hello Susan,

Welcome to here. I am sure a lot of people are willing to support and try to help.

Being diagnosed with diabetes can send you reeling a bit - it is only natural that we react to a crisis. I remember my own diagnosis too, I was quite upset also. It will calm down as you learn to manage it and make sense of what to do about it.

It sounds like you have been through quite a bit, and I can appreciate that you can come to a point where you say 'Frackin' 'ell, not again'. I've had my share too.

However, living with diabetes can be entirely as fullfilling a life as life without it.

I don't want to belittle your pain, and I cannot take it away - but for me, after a while, being diagnosed with diabetes has lead me to take better care of myself as things became really obvious and I had no choice. I would rather be without, I spose, but when it must be...

For now, a hug! And try to believe that you will get your head around it - faster than you think too.

Any questions, just post them in the relevant sections or read around a bit and see if there's anything that you need. Remember the search function also on the top right of the page, it can be quite handy.

All the best!

-M
 
susanmanley said:
A couple of years ago I had pancreatitus and was very ill
I have also had a range of symptons over the last few years but as I suffer from deppression and anxiety they have always been put down to this
I also suffer from CHD. Also I had my left kidney removed due to a tumour in 1997
I have now been diagnosed with diabetis and am quite devestated.

With that list of problems, I'm not surprised you feel as you do.
Finding this forum may turn out to be the best thing that has happened to you in the last few years.
We tend to believe that conventional diabetes advice, usually pushing quite a lot of carbohydrates, is unhelpful for diabetics, and quite a few of us reduce our intake of carbs, leading to weight loss and better control of our blood sugar levels.
This can bring us into disagreement with our GPs, Diabetes Specialist Nurses (DSN) and dieticians. It's sad but often they DON'T know what's best for us. Some other countries (such as Sweden)are more up to speed with a low-carb approach to diabetes control.

As has already been said, your feeling of being 'all at sea' diminishes as your understanding rises.
Feel free to ask any questions, and someone should pop up to answer them :)

Regarding your CHD/kidney specialist, a call to his/her secretary might be an idea, just to update them.

Welcome. Glad you found us !!

Geoff
 
thank you for your kind replies.
I hope to get more positive soon and not have the Wetherspoons 'there's nothing here I can eat' tantrum again!! :lol:
Thank you
 
Hi Susan and welcome to the forum :) As you can see already, you are among friends and we all have something in common and have learnt to cope with it as you will too. It's just a shock to start with. To help you start looking after yourself and keep your levels as good as possible, here is the information we give to new members. Feel free to ask all the questions you like, and there will probably be quite a lot, and there will be someone here to answer.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS


Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
-------------------------------------------------------------------------------------------------------------------------------------------------------

Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
Thank you for the quides referenced by you
I do find the carbs/no carbs a bit difficult to decide on. One lot of advse contradicts the other but I will keep reading.
I have also written to my GP asking for more support to start me off.
Should I demand a blood machine as this seems to be the only true way to monitor?
thank you
 
My diagnosis has improved my health no end, thanks to this forum and its members. Once you get your head around things it is easy enough. I would tell your other healthcare Dr`s. Also your dentist :)
 
Basal means a long acting insulin which resembles your missing or insufficient insulin for 24 hours - it keeps your blood sugar level when you don't eat.

Bolus is the insulin, short or rapid acting that goes with a meal - most often in type 1 diabetics, sometimes in type 2s on insulin. It is intended to cover the carbohydrates of a meal so that your blood sugar does not rise to dangerous levels after eating something that the body will convert to sugar.

Both insulin types tell the muscles to use the sugar which would otherwise raise your blood sugar too much - or in case of excess calorie intake, store this glucose as fat.

This insulin regime can be done on different types/trade names of insulin and is sometimes referred to as intensive insulin therapy or flexible insulin therapy.

It allows for close blood sugar control around meals (you can eat when you like and in principle, what you like, although not always a good idea) and for reductions in dose to match exercise or the occasional skipped meal.

It requires some knowledge about carbohydrate contents of what you are going to eat, and the effect of exercise on your blood glucose levels.

It comes somewhere between long acting insulin only or two-phase (premix) insulin and then on the other hand an insulin pump.
 
susanmanley said:
A couple of years ago I had pancreatitus and was very ill
I have now been diagnosed with diabetis and am quite devestated.
Although I have seen the nurse I am very confused and wonder if I am just old and fat or the pancreatitus is to blame...or both!
I have also had a range of symptons over the last few years but as I suffer from deppression and anxiety they have always been put down to this
I also suffer from CHD and want to know if I should inform my specialist. Also I had my left kidney removed due to a tumour in 1997 so should I inform those people so my other kidney is watched.

As you can see I am very mixed up and worried. Can anyone help?

Hello Susan ... Welcome to the "Am I Just Old And Fat or Is There A Medical Reason For It Club?" It has a membership of ONE at the moment but if you'd like to join me you're very welcome. I also have suffered from depression and have quite a few other health issues which have always been put down to depression. I was recently diagnosed as T2 and suddenly everything made sense. I'm very angry that I wasn't diagnosed earlier or that the doctors didn't 'join up the dots' and come to a conclusion years ago but for the moment I'm sorting out my diet, taking the meds and getting support and valuable info from the many good people on this forum and I'm not trying to take too much information in at once - just like food, little and often. Hungrier on some days than I am on others and that's OK. :wink:
 
Oh, Oh, Oh Grace, can I join too please? (although add menopausal and history of depression to the list please)

Susan, everything can get overwhelming especially when 'depression' seems to be the excuse given for evey symptom. I truly understand your comment about 'joining the dots'. Since I have found this forum, taken control of myself, and really started questioning medical advice I have gone from strength to strength. I have no doubt that you will too but the most important thing to know is that you are not alone and you always have someone to chat to here. Welcome!
 
sallylondon said:
Oh, Oh, Oh Grace, can I join too please? (although add menopausal and history of depression to the list please)

Susan, everything can get overwhelming especially when 'depression' seems to be the excuse given for evey symptom. I truly understand your comment about 'joining the dots'. Since I have found this forum, taken control of myself, and really started questioning medical advice I have gone from strength to strength. I have no doubt that you will too but the most important thing to know is that you are not alone and you always have someone to chat to here. Welcome!

OMG I can't believe I forgot to mention 'menopausal' - in that case please accept my resignation as Chair, Vice Chair, Treasurer and Secretary :lol:
 
GraceK said:
sallylondon said:
Oh, Oh, Oh Grace, can I join too please? (although add menopausal and history of depression to the list please)

Susan, everything can get overwhelming especially when 'depression' seems to be the excuse given for evey symptom. I truly understand your comment about 'joining the dots'. Since I have found this forum, taken control of myself, and really started questioning medical advice I have gone from strength to strength. I have no doubt that you will too but the most important thing to know is that you are not alone and you always have someone to chat to here. Welcome!

OMG I can't believe I forgot to mention 'menopausal' - in that case please accept my resignation as Chair, Vice Chair, Treasurer and Secretary :lol:

I'm going to have to second that :wink: :lol: RRB
 
Robinredbreast said:
GraceK said:
sallylondon said:
Oh, Oh, Oh Grace, can I join too please? (although add menopausal and history of depression to the list please)

Susan, everything can get overwhelming especially when 'depression' seems to be the excuse given for evey symptom. I truly understand your comment about 'joining the dots'. Since I have found this forum, taken control of myself, and really started questioning medical advice I have gone from strength to strength. I have no doubt that you will too but the most important thing to know is that you are not alone and you always have someone to chat to here. Welcome!

OMG I can't believe I forgot to mention 'menopausal' - in that case please accept my resignation as Chair, Vice Chair, Treasurer and Secretary :lol:

I'm going to have to second that :wink: :lol: RRB

:shock: Where is the loyalty these days?
 
make that another member of the "Am I Just Old And Fat [and menapausal] or Is There A Medical Reason For It?" Club !!!

I even had a cardiologist telling me I had nothing wrong with my heart and the child hood memories were just 'because you are so anxious' and that the pancreatic pain was just nerves and if I 'just sit back and relax they will go away' [NB same doctor on 2 different occasions!!!] I supose I just cut my chest to create a 50 year old scare and let my pancreas get infected [and NO I am NOT an alcholic..just get stones that block it all up] for attention!!!

That was a moan but really feel quite good at moment...long weekend just me and grandchildren...Lovely [+icecream :]]
 
Ha! Susan ... if we didn't laugh, we'd cry wouldn't we at some of the responses we get from doctors. Did you know that the automatic response to a man and a woman describing the same symptoms is very different?

A man who complains of chest pains,nausea and indigestion is immediately suspected of heart attack and in most cases receives a referral to a cardiologist.
A woman who complains of chest pains, nausea and indigestion is immediately suspected of anxiety and depression or a bug and in most cases receives a prescription for antidepressants, goes away and doesn't go back to the doctor.

It's only in the past decade or so that the medical profession has discovered that female symptoms of heart attack are different to male symptoms. Women's symptoms tend to be nausea, indigestion, vomiting rather than the chest pain so have been more likely to be diagnosed as indigestion or a bug.

A man who starts behaving peculiarly around the age of 36-40 is having a mid-life crisis and good luck to him, enjoy the fun! Get divorced, get a younger woman and a big car!
A woman who starts behaving pecularly around the age of 36-40 is having a nervous breakdown and needs to pull herself together for goodness sake! You're no spring chicken any more! Think of your family and those elderly parents you have to take care of!

Breast cancer detection - we have our bits jammed between two metal plates and scanned and after years of that they now tell us the results are not reliable and some women have incurred damage as a result.
I'm sure most men would think twice before having their bits jammed between a couple of metal plates! No thanks.

:wink:
 
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