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jackie_b

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16
Hi, I'm newly diagnosed, apparently type 2 caused by steroid use during chemotherapy. I've been told this might regulate itself in time. Anyone else heard of this? Any input positive or negative would be appreciated


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Hi Welcome :)

i know nothing about it but someone will

best of luck :)
 
Really struggling at the moment, I haven't helped myself by refusing to see the diabetes nurse because I was insisting I wasn't diabetic though my bs was 22 on admission to hospital. I've got myself a meter and am trying to do a food diary but I have no idea what I'm doing and my bs are swinging wildly, I'm on metformin 500, ( 5 tablets so far) I've now become scared to eat. :( as if the cancer wasn't enough..


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hey. take a breath, the denial isnt your fault its natural and we all go through it to varying degrees as well lots of other emotions

whats happened has happened, you cant move forward looking backwards

the food diary is a very very good idea, you could start by reducing your carbs, ie. potato, bread, rice and pasta, have a read of the forum and look what people do to control the diabetes, its never as bad as it looks at first, all will become clear :) ask lots of questions, not seeing your dsn may be a good thing, in my experience theres alot more to learn here than with them
 
not eating isnt a good idea although i can remember thinking that myself, there are lots of dietary ways to control your blood glucose, its amazing the effect food has on us, also exercise is great too if your able

carbohydrates turn to sugar in our stomach, so reducing them will help reduce the amount of sugar floating around in the blood, but this is a very deep subject, hopefully daisy will be along shortly with some awesome advice for new folks like yourelf
 
Great advice from Andy there ! I appreciate diabetes is probably 2nd on your list of priorities at present but please don't ignore it ! Take care !
Mo
 
Thanks guys :) I've made some massive dietary changes in the last two weeks since leaving hospital, my HB3 thingy test was 76 so I've had this at least for the length of my chemotherapy. I'm frankly enjoying my new diet though and have lost 3 kilos in 2 weeks, 75 to 72, without really trying. I'm a big fruit eater though, and can someone tell me if I can still eat my favourite apples? I know citrus fruits are good for me. I've just started weight lifting again now I'm feeling better, but radiotherapy starts on Wednesday which will slow me down again. I'll be doing as much excersise as I can cope with though. I'm so grateful to have found this site :)


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fruit is quite high in sugars, berries are best! but with what you are going through i dont think you should deprive yourself the apples, id concentrate on getting through the chemo while doing what you can but give yourself the apples :) there is plenty of time

your doing great by the sounds of it, well done you :)
 
Hi Jackie

If you can deal with cancer then diabetes will be a piece of cake. But not real cake ;)


There is a great book called 'Carbs and Cals' which shows photos and portion sizes.
Really helpful

Lots of us have had great results cutting back on carbs but with your other health issues take extra care not to get too hung up on your diet. Allow yourself time to recover.

Please ask as many questions as you want.

Good luck!
Cara
 
Well done on the weight loss that's fab x
 
Hi Jackie,

I've only just found your post. I am also still on active treatment for breast cancer. I finished chemo July 2013, radiotherapy during September 2013, and am still on Herceptin infusions. I have another 3 doses to go, then finished. No tablets necessary. I had my first 12 month check up mammogram on 3rd Jan and got the "all clear" thumbs up. We were busy celebrating this news when, 2 weeks later, I was diagnosed with type 2! Hit me like a bombshell as it was the last thing I expected.

Well done on the weight loss. I put over a stone on during chemo, and Herceptin is well known to be a weight gainer, so I'm having to work really hard.
xx
 
not eating isnt a good idea although i can remember thinking that myself, there are lots of dietary ways to control your blood glucose, its amazing the effect food has on us, also exercise is great too if your able

carbohydrates turn to sugar in our stomach, so reducing them will help reduce the amount of sugar floating around in the blood, but this is a very deep subject, hopefully daisy will be along shortly with some awesome advice for new folks like yourelf

Hi Jackie and welcome to the forum:)

Here is the information that Andy was referring to and I hope you will find it helpful.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 70,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Thanks for that Daisy, lots of really useful stuff in there!

Bluetit, I suspect I know why you have that name! :) have they said that your steroids were probably responsible for your diabetes as well? I actually have that in black and white after my last admission with neutropenic sepsis. I won't be having Herceptin, but my radiotherapy starts tomorrow. Nice to meet you:)


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I can't help with your fruit question I'm afraid, I'm too new at this game!

No-one has mentioned any link between the steroids and the diabetes, but it is an interesting thought. I will mention it when I next see my oncologist. It seems strange if the steroids have caused this though. I had Dexamethasone steroids 8mg morning and 8mg afternoon for 3 days once every 3 weeks for 18 weeks between last April and July.

Good luck with your radiotherapy. Mine was a breeze, no side effects at all, so I hope yours goes as smoothly.
 
Berries are the best. I've developed a taste for blueberries!


Have a look at the book I mentioned in my earlier post.
 
Carraway, the book arrived from amazon yesterday , it's been really useful so far, but I've been saddened to see how many things I need to give up. The Christmas pudding was a real downer! But lots of eye openers there too. I recommend it :)


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Hi Jackie

I am so sorry to hear you have this blow to deal with. I am a type 1 diabetic and am currently at loggerheads with both my oncologist and diabetic nurse over this and related issues. Well exact truth I am currently in hospital with neutropenia after my firsts chemo cycle, plotting my attack on those in the medical profession who have failed me and others :happy:

I am new to this forum malarkey so don't know how to direct you to a post I started yesterday... You might find it interesting and I hope you can contribute. I think I called it type 1 and cancer.

Basically in answer to your questions, the References I have found in medical journals suggest that type 2 diabetes caused by steroids used in cancer treatment is 'often reversible'. I have become alarmingly cynical of medical professionals but I do hope for your sake that it is true. If it is, then taking the strain off your pancreas by cutting out foods that spike your sugars must be key.

With regards to my fight, I am sure a lot of people on here will attest to doctors/ nurses on hospital wards trying to preach diabetes control to diabetics (I know, still cynical) but I am encouraged to hear you have it in black and white (can you remember if they said steroids caused it, or glucose spike caused by steroids caused it?). I am faced with nurses and doctors who think a hypo (low blood sugar caused by an overdose of insulin) is the worst thing in the world and are trying to encourage me to let my sugars run high. But at the same time they cannot find a reason for my persistent neutropenia ( I think they said 2.5 is normal, below 1 is neutropenic and I am on 0.2. ). My theory, in my bestest medical terminology, is that large amounts of glucose inhibit either the production or function of white blood cells and while I can find plenty of stuff online which supports this, I am being ignored.

I can say that when diagnosed 8 years ago I lamented the long list of foods to be avoided but in all honesty I don't miss them! I found that having less sugar in my diet made things taste sweeter, so healthy foods like fruit started tasting as naughty to me as a big old slab of chocolate cake used to!
 
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