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New LADA anyone?

mrbroons

Member
Messages
8
Hi,

I have been diagnosed in Feb with Type 1.5? Hope I'm getting that right. I am 38 and was fine up until Feb with the past 5 years of fasting glucose tests all reporting normal. I have no history of DB in my family. I've gone through the merry go round of emotions since diagnosis see below for the snapshot. Luckily I have had a lot of support and I feel that whilst I am getting through this there is a long way to go.



I am currently in the 'Honeymoon' period where I am producing some insulin on my own. Like everyone I am finding it hard as the only things I can adjust are how much I eat and how much exercise I take. I'm on one long lasting Humulin of 8 units a day and Glic twice a day. I initially lost a lot of weight then put it back on, but have since had a bad cold lasting around 4 weeks and lost a lot of weight again trying to keep my levels down. I am usually somewhere between 4.x and low 6.x before meals dependent on food and exercise.

I was hoping to speak to other people in my situation to share experiences and problems. It can be a very dark place at times and you can get lost trying to ride the knife edge of low and high numbers, which I have done. Ultimately there is always someone who has been there first however and I'm so happy to have found this website as just from skimming some of the posts titles I know I am not alone.
 
hi, I'm T2 and welcome, start the topic on the T1.5 pages as well, that will get the other t1.5 to say hi
I found it a very steep learning curve but this forum helped a lot
 
Welcome mr brooms
LADA is also known as late onset type 1. Some people have a more prolonged period where they make some insulin themselves but this can gradually reduce over a period of time, unlike me whose insulin dropped off the edge of a cliff. Although it is a better pill all is not lost. It has taken me 6 months,to get my BGs under fairly good control. During which time I have discovered some of the foods, such as bread, which make my BGs spike up into the high teens. Not good, not good at all
One thing I would mention and ask that you consider seriously is that of reducing your carbohydrate intake - it has helped me and many others on here. I have my carbs down to a max of 100 per day. My fasting BGs are around 5.0 and normally max out at 9. Something two hours after eating. If it is higher then I investigate my food log,so that i exclude that food item from my future meals.
There is loads of help on here.



Late onset T1, several auto immune issues.
Humalogmix25 twice a day, Methotrexate 25mg once per week, FolicAcid 5mg once per week, prednisolone 5mg daily, Allopurinol 300mg, Calcichew-D3 800iu, Levothyroxine 50mcg, Atenolol 50mg, Losarten 100mg, Aspirin 75mg, Nicorandil 20mg, Nitrolingual GTN spray, Metformin 2000mg, Allimemazine 10mg, Lanzoprazole 30mg, Atorvastatin 20mg, Co Codamol 8/500mg, Depo Medrone (Methylprednisolone) or double Prednisolone for 7 days in case of RA flare.
 
Thanks Alan.

Are they any good apps for recording and BG levels side by side to help reviewing them?
 
Yr welcome

Andrew Colvin a forum member has just created an app for iPad, iPhone. why not message him.

I'm basic and use XL to record everything with my D


Late onset T1, several auto immune issues.
Humalogmix25 twice a day, Methotrexate 25mg once per week, FolicAcid 5mg once per week, prednisolone 5mg daily, Allopurinol 300mg, Calcichew-D3 800iu, Levothyroxine 50mcg, Atenolol 50mg, Losarten 100mg, Aspirin 75mg, Nicorandil 20mg, Nitrolingual GTN spray, Metformin 2000mg, Allimemazine 10mg, Lanzoprazole 30mg, Atorvastatin 20mg, Co Codamol 8/500mg, Depo Medrone (Methylprednisolone) or double Prednisolone for 7 days in case of RA flare.
 
Hi and welcome. Many of us have gone thru the LADA route. Low-carbing is a good approach to minimise sugar swings and weight gain on insulin but just be aware that insulin may need to be reduced a bit to avoid hypos. I suspect as you settle you may be moved to a Basal/Bolus insulin regime where you also have rapid insulin added for meals and can adjust to the number of carbs. This regime gives the best overall control but does involve two insulin pens. Discuss options with the DN as things settle. At least you have been put onto insulin. Some of us struggled to have our LADA recognised and were on tablets and starvation diet for too long. I find taking insulin now an irritant rather than a problem and I can eat fairly freely.
 
Wonder whether I'm lada (reminds of those cars ) was type 2 metformin 10 years, no problem till last year then on glizerade twice a day, still wasn't controlled gone on insulin this last 5weeks, the Dsn explakined it that the pancreas was now needing help. Next blood tests due in 3 weeks I'll ask if they can do the c peptides ; other test as I'm curious as to what insulin I am producing,,.

I do find this fascinating as well as frustrating
 
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