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New member here Hi everyone

joannew

Newbie
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2
Hi I am Jo ,I got diagnosed type 2 15th Jan this year with levels of 11.7 ,Just had my test done and my level is down to 48 whatever that means ,
The nurse has now said I no longer need to test and has stopped my prescription for strips and lancets and that she will see me again in 6 mths ,Is this normal ?
I also managed to lose 4 stone since xmas and I was told today that it wasnt enough and that I was obviously still over eating surely the glucose levels show that I am not over eating or is 48 a bad result ?
sorry for the questions and confusion it's been a weird day
 
First of all congratulations on 4 stone of weight loss! I know it aint easy no matter what the nurse tells you, be proud of the achievement. SOmeone will be able to translate the readings for you, I'm sure there's a link somewhere to something that does it for you, but again i'm disappointed that the nurse didn't translate the reading for you. Obviously it must be ok as you mention "down to 48" so again well done, it seems common that many practices don't help much and it appears to me your's aren't very supportive of the achievements you've managed so far! Oh, and welcome too.
 
Hi Jo and welcome to the forum :) Your HbA1c level of 48 is an improvement on your diagnosis level, and with some effort you can get it even lower. It is frequent that nurses say that you don't need to test but we believe on the forum that it is essential to test to be able to see what foods you are able to eat. Test before meals and 2 hours afterwards and the levels should be similar, if not you can alter your portions or cut out that food. Later on, when you have tested all these foods, you won't need to test so often. Unfortunately you will need to buy your own test kit if they won't prescribe one for you as is the case for many members here. Congratulations on your superb weight loss ! Here is some information we give to new members which I hope will be helpful to you.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS


Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
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Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 
Wow I think you have done incredibly well and should be so proud of yourself, huge applause.
There is a conversion somewhere but I was told my BG had come down to 7 or 55 so 48 is brill.
Well done you.
 
Hi Jo 48 means you are doing really well :clap: In the old measurement style it converts to 6.5% so its right at the low end of the NHS target range of wanting people to aim for between 6.5 and 7.5. Your weight loss is brilliant! I hope she told you how well you have done.

Funny she is taking your strips away. Mine wouldn't initially prescribe strips so I had to fund my own. Like you I've just had my first review and based on doing well like yourself mine is now recommending I get them prescribed as "testing works for you".

I'd put up a fight and say you need them as you found them very helpful. The UK NICE guidelines say you should get them if you've proved you understood and reacted to what your meter was telling you which patently you have. Most forum members recommend testing as it tells you what is safe for you to eat.

If you want to aim for a score even less as some of us do then you might want to consider reducing the amount of starchy foods you eat like rice, pasta, potatoes, cereals, bread and other flour based products. A lot of NHS practices encourage diabetics to eat quite a high quantity of those kinds of foods. In other countries that have more recent dietary guidelines you would be told to limit the amount of those starchy foods. Replace with more meat, vegetables, eggs, cheese and fish if you get hungry. If you can get your score to under 42 (6%) then you will be beginning to approach the blood level range of a non diabetic and really minimise the risk of diabetic complications. Losing more weight if you need to will also help.
 
thanks for the warm welcome everyone ,
The nurse today I could have quite easily roared at her she was'nt helpfull at all .
Granted I do have another 4 stone to lose but she could have cared less at the weight I had lost .
When I asked about things I should be eating she said I could eat anything in moderation ,Just as well she was'nt the nurse I saw first of all .
I did say I prefered to test so I could adjust meals accordingly ,she said after 3 mths I should know what affects and what does'nt
 
I'm afraid that happens to a lot of us Jo so welcome to the post code lottery world of Type 2 diabetes care in the UK. Honestly you have done brilliantly especially if you've had very little help. If you can't get the meter and strips back then you might want to consider buying your own. I'd try your gp next. If you are brave enough you could try pointing out that the surgery now gets £2000 pa for you so maybe they'd like to spend some of that on you!

If all else fails there is a relatively new meter called an SD CODEFREE that will cost you about £20 to buy (meter + lancets + 60 strips) and then £5 / 50 strips thereafter. The cheapest place to get it seems to be the health.co.uk shop on eBay but make sure you get a UK mmol/l model and not a US mg/dl one.

To fine tune your levels and what's safe to eat a lot of us do a thing called carb counting. Are you familiar with that? It's really useful if you want to push your score down some more. Likewise on a blood meter and strips you should be aiming to be under 8 two hours after eating. Going regularly over 8 is where research says problems can and do start from.

Take care and just ask questions!
 
Whatever the nurse 'Didn't' say about the weight loss you've managed so far I'll say it instead...4 STONES SINCE CHRISTMAS!!! A MASSIVE WELL DONE TO YOU!!! THAT'S EXCELLENT!! :clap: :clap: :clap: :thumbup: :thumbup: :mrgreen:
 
Well done Joanne, and welcome. As everybody else has said, of course you need to test. Suggesting that 3 months is enough to work out what you can and can't eat would be patronising if it wasn't stupid and totally lacking in genuine knowledge about the subject.
It's not just what we can eat, but how much, cooked in what way, at what time of day, after what exercise, mixed with what else and so the list goes on. Do try and argue the case with the doctor, but if you don't win (and some do!) buy your own.
Good luck for the next test, and see you in the 5's! :thumbup:
 
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