SuzannaHarriet
Member
- Messages
- 6
- Type of diabetes
- Other
- Treatment type
- Insulin
If you had been T1 your whole life you wouldn't be around to tell the tale without insulin.So really I'm guessing I've either been T1 my whole life and just managed to tick along or I'm T2 with a really bad case of insulin resistance. Either way, I dont know a lot about being diabetic as I've received next to no information these last 9 months!
Good on you for reading up @SuzannaHarriet ! Low carb diet might be good for PCOS as well!!@Daibell - thanks so much for the reply. I've honestly only started low carb over the last 5 weeks because my original diabetes nurse told me that I needed to eat the normal amount of carbs to ensure I didn't suffer any hypos, and my new nurse never asked about my diet.
It's only from searching around online that I've realised how wrong that was.
You came to the right place!!Hi guys, I'm Suzii and 27. I was officially diagnosed in July last year but I've been probably been diabetic much longer.
Pregnancy 2013 - GD with blood glucose of 18.2. metformin. No difference in BG, diagnosed late at 30+ weeks.
Pregnancy 2014/2015 - blood glucose of 9.9 at 16 weeks, nobody read previous notes or rechecked and just left it.
No yearly check as no letter ever received or check mentioned due to close pregnancies.
Blood tests prior to 2013 showed higher BG - one being 22.1. Nobody queried. Just put it down to me being sick.
July 2018 - in hospital, I noticed high BG of 12, no Dr had noticed. Nurse said she didn't have time to look at it and to go to GP.
GP queried type1 due to previous history but never did a blood test to check.
Put on metformin, 500mg BD
August - bought a monitor to check as I was feeling so rough and sleeping a lot and GP wouldn't give me one. BG highest recorded in August 29.4, lowest 16.7
Metformin 1G BD, Gliclazide 30mg MR BD
September - Metformin same, Gliclazide 30 AM 60 PM. Highest 29.8, lowest 16.5
NO COMMUNICATION FROM SEPTEMBER TO BEGINNING OF NOVEMBER. GP kept cancelling appointments.
Blood test HbA1C 83.
November - still double figures, linagliptin added and stopped due to reaction 4 days later.
December 13th Insulin - novomix30 10units
20th 14 units
28th 16 units
December highest 21.4, lowest 9.2 (skipping meals)
Fast forward to now. I joined a new GP practice in January and am now on Novorapid with an insulin:carb ratio of 1:4, any different and my levels are way out. I'm also on abasaglar total dose of 84 units split morning and night.
I've been referred for genetic diabetes testing and to a consultant and have an appointment on the 17th April to hopefully finally get some answers.
For all my rambling, I think I'm just curious if anyone has been through the same and still been a T2 diabetic. At the moment I'm being treated as a T2 but my diabetes nurse and GP both think I'm probably a T1 and sent the referral to check thoroughly incase it's a different type (they didn't explain that much). For some reason neither have done the antibody blood test, they're letting the consultant do that.
So really I'm guessing I've either been T1 my whole life and just managed to tick along or I'm T2 with a really bad case of insulin resistance. Either way, I dont know a lot about being diabetic as I've received next to no information these last 9 months!
*waves* so, hi again
My nephew was diagnosed as LADA at age 22 when he went into DKA and was hospitalised. I get the feeling that T1 can start at any time between birth and age 90 (yes, I saw that age in a report a few years back). One day NHS GP training will catch-up. My recently trained diabetes GP said being LADA at age 22 was very unusual and for me at age 50 impossible. So much for Warwick Diabetes training@Rokaab - I agree, if I'd been diabetic forever I certainly wouldn't be around, I think the nurse was thinking more late onset or slow burning which I think is LADA? However research into that suggests that (if we assume it's been since 2013) 21 is too young to be diagnosed as LADA. I know there's always exceptions to the rule though.
@kitedoc - I have my first appointment with an endocrinologist in 9 days so hopefully I'll have some answers then!
I have debated reporting it, I filed a complaint with my old GP surgery but they basically ignored it which appears to have been there entire outlook on my health quite frankly.
My mum said as a child I would fall asleep all the time out of the blue and she'd have to wake me up and give me sugar or fruit juice to make me even slightly coherent. The GP told her to give me iron supplements! When I was diagnosed with PCOS at 16 and classed as very underweight they prescribed mefenamic acid and told her I'd put on weight eventually.
Due to all medical professionals ignoring my health, I honestly wouldn't know where to start to file an official complaint with the higher ups. I'll ask at work as I work for the NHS.
Thank you all for your lovely replies. I'm crossing my fingers for the endocrinologist to have some answers
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