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new, scared and confussed

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floridagirl

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Hello there everyone,
After taking my daughter to the doctors, expecting a water infection he sent us straight to a&e were they admitted her and diagnosed her with Type 1 diabetes :shock:
She only turned 7 a month ago and we noticed that she had lost weight and was drinking/weeing alot, but we never even dreamt it could be diabetes, its such a shock, my poor baby :cry: she is coming home tomorrow and I am nervous about it all, I just cant believe that she will have to have injections for the rest of her life.
My husband is sleeping tonight as I ve not slep for days (cant sleep in hospital) on my way out a nurse told me to put a claim in for Amelia as we would be entitled to some money :?: ??????????? I ve never heard of this, has anyone else????
My daughter has been a little super star and took it in her stride, she is so brave when having her injections but its a parents nightmere to have to inject thier little baby!!! will this get easier???
thank you xx
 
Hi, Sorry to hear about your little girl. You are probably still in shock right now, but things do get easier over time. Hopefully your hospital will give you lots of training and support so you can deal with this condition and manage it well. There is always plenty of support on this forum, along with plenty of advice from worried parents like yourself.

Things do get easier but it takes time. Diabetes does become a way of life and shouldn't stop your little girl from enjoying a normal life. I have a little girl who is also seven (diagnosed age 6). She leads a very active lifestyle with dancing twice a week and lots of swimming at the moment. She goes on lots of playdates and doesn't let this condition stop her from doing anything she wants to.
I know that it all must seem so daunting at the moment and it is a bit of a lifestyle adjustment, but overtime it just becomes a way of life. Leggott
 
It is such steep learning curve at the start when you are bombarded with information and also dealing with the emotional side of diabetes. Diabetes will just become a member of your family over time and it will occassionally take up more than it's fair share of the household.

As you have already seen, kids adapt really well and it is us parents that struggle more with the change.

You should get lots of support from the diabetes team at the start but eventually you'll be able to adjust doses and bend blood sugars to suit your lifestyle instead of the other way around.

Take one day at a time.
 
Hi Floridagirl, I'm sorry that your daughter has been diagnosed T1. Like the others have said the day to day routine of managing diabetes does become easier with time. There is a huge learning curve but the more knowledge you have the better and easier it is to get good control of her diabetes. Read and ask lots of questions, knowledge is the key.

Regarding benefits, your daughter may qualify for Disability Living Allowance (DLA) and you may qualify for Carer's Allowance if she is approved for DLA.

All the best with your daughter coming home tomorrow, I know you'll be apprehensive about being on your own but remember the diabetes nurse and care team should be there for you at the other end of the phone if you need any advice or help, don't be afraid to ask them for help if you need it.
 
Hi Floridagirl & welcome. I'm guessing you're based in Florida, USA? As this is a UK based site, with some international members, most of us (me for sure) have little knowledge of US health insurance programmes (or US spelling of programs) or benefits. DLA and CA are only for UK residents. Some coping mechanisms tend to be universal, though, so we can help with them.
 
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