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New to Type 1 diabetes: Help?

sugarisfunny

Member
Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
I've just joined this forum to share thoughts and try to find answers to some budding questions! I'm 16 and was diagnosed with type 1 diabetes almost two weeks ago, with DKA just before this. I'm adjusting and getting used to a new lifestyle and carb counting and such... My blood glucose levels were more-so on the low side this week after eating, ranging from 5 to low 6's before meals. I am aware that BG levels should be between 4 and 7 but I find that when my levels are between this range, I'm always extremely tired and hungry and begin to feel quite shaky. Had my first hypo since getting back from hospital last week , at a BG reading of 2.6, and it was not pleasant.My BG levels rose to 5.4 after 15/20 mins, but after 40 mins dropped again to 5.2, which panicked me and left me very tearful. Even an hour after taking my lucozade and a biscuit my legs were still shaking and the palpitations hadn't stopped-but mabye it was my body's shock response. I fear hypos very much but was told by my diabetic team that hypos were expected at least 2x per week. Does anyone have any advice or suggestions on how to overcome consistent low BG levels? I eat alot of wholemeal bread but find myself quite hungry after 2 hours... Also, does anyone know why I feel quite low and not well at BG levels between 4 and 7? Prior to diagnosis my BG levels were just over 18 all the time, so mabye my body isn't quite adjusted to the lower levels. Advice or replies would be much appreciated! :)
 
Hi sugarisfunny
welcome to the forum :)
when your body has been so used to running at those high levels of 18 -- it very much starts to warn you at levels of 5-7 ( these are called false hypo's ) try and do your best to stay calm as they will not hurt you but are definitely your early warning signs -- just at a slightly too high level,
tears are a common symptom of real hypos so no surprise you feeling them at 5.2

Ideally -- you will want your blood sugars to run between 4-7 before your meals and no higher than 10 2 hours after but we have lots of time to get you sorted there :)

it is such early days --please do try and not panic or worry.
I am going to tag some young people to hopeully come along and offer you some support as I am an "oldie" (57) -- a nice helpful one but still an oldie all the same

@SerenaArthurs , @becky.ford93 ,@Signe_Kirk , @BecciAllgood , @llana
 
Thank you so much for your reply! Yes, I was told yesterday that since I'm quite new to the condition my body is trying to adjust and such to the new regime. Time will change things, I'm sure of it :) Thank you very much once again :)
 
It is no probs young lady -- we all been there at one point or another and it feels better if you feel like there other people with the same worries and issues to deal with.

you should try and not fear hypos - just be aware of them , carry some portable glucose and your testing and pen with you.

give this thread a couple of hours or so -- other peeps will be along - it is a lovely community and we try and help one another as much as we can

all the best !!
 
oops -- almost forgot -----

I will tag @daisy1 as well as she posts a great starter reading pack for newly diagnosed diabetics


and keep posting !!:cool:
 
you will get used of diabetes day after day and i am sure you will manage it easly by knowlge and persistence ,
 
Hi there, I'm 21 and three months down the line from diagnosis now. At 16 you have so much going on in your life besides this, so well done for staying positive!!
I can completely empathise with how you feel, when my blood sugars first started coming down I felt like I was permanantly in hypo, anything below 5 made me feel so weak. I promise you you'll get used to it, and it won't feel so bad to be 4-7. It may just take a few weeks.
As for hypos, don't panic. I went through a phase of haing one virtually every day for a week or so. I would really recommend keeping some kind of diary of when they happen, to recognise if there's any patterns. A usual rule of thumb is, <2-3hours after a meal - you probably need to take less rapid acting insulin with your meals. If they're happening before a meal or at night, your basal likely needs adjusting. Either way, keep in touch with your diabetes nurse, they should help you recognise what needs changing.
For now, keep testing regularly, before every meal and before bed time especially. If you have any questions please feel free to ask, I'm always happy to help :)
 
Hiya (& welcome).

Due to your bg being up at 18 your body will be readjusting to the lower levels, my bg used to be up at 20+ (fully admit I didnt really care) and when I decided to take control, I felt aweful when it hit anything below 6.

As your body gets used to these levels, you will begin to deal better and have more energy and feel less tired/hungry.

It may be that you are on too much insulin as you will be in 'honeymoon ' period.

Dont stress the hypo, as #himtoo says, make sure you always have some dextrose/lucozade near by.

Must say, this site will help you as much as you need. The people are all amazing!! :)
 
@sugarisfunny

Hello and welcome to the forum :)

I am sure that once you can manage to stabilise your levels you will feel much better. Some good advice from members above. Here is the information we give to new members and I hope you will find it helpful. Ask as many questions as you need to and someone will be able to help you.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi there, I'm 21 and three months down the line from diagnosis now. At 16 you have so much going on in your life besides this, so well done for staying positive!!
I can completely empathise with how you feel, when my blood sugars first started coming down I felt like I was permanantly in hypo, anything below 5 made me feel so weak. I promise you you'll get used to it, and it won't feel so bad to be 4-7. It may just take a few weeks.
As for hypos, don't panic. I went through a phase of haing one virtually every day for a week or so. I would really recommend keeping some kind of diary of when they happen, to recognise if there's any patterns. A usual rule of thumb is, <2-3hours after a meal - you probably need to take less rapid acting insulin with your meals. If they're happening before a meal or at night, your basal likely needs adjusting. Either way, keep in touch with your diabetes nurse, they should help you recognise what needs changing.
For now, keep testing regularly, before every meal and before bed time especially. If you have any questions please feel free to ask, I'm always happy to help :)

hiya and thanks for your response!! :) I feel much better knowing that others have also experienced what I'm currently experiencing. As of right now I haven't really left the house much nor exercising, so I'm assuming that when I begin going out and moving around I'd need more food for fuel.. I've been recording my BG levels before meals and whenever feeling ill, so I can see any trends soon. thanks once again :)
 
Hiya (& welcome).

Due to your bg being up at 18 your body will be readjusting to the lower levels, my bg used to be up at 20+ (fully admit I didnt really care) and when I decided to take control, I felt aweful when it hit anything below 6.

As your body gets used to these levels, you will begin to deal better and have more energy and feel less tired/hungry.

It may be that you are on too much insulin as you will be in 'honeymoon ' period.

Dont stress the hypo, as #himtoo says, make sure you always have some dextrose/lucozade near by.

Must say, this site will help you as much as you need. The people are all amazing!! :)


hello! Yes- my doctor said that my body is adjusting to the low BG levels so that's cause for explanation of me feeling ill and strange. would you suggest eating high carb foods as my body is re adjusting? thank you :)
 
Hi there, I'm 21 and three months down the line from diagnosis now. At 16 you have so much going on in your life besides this, so well done for staying positive!!
I can completely empathise with how you feel, when my blood sugars first started coming down I felt like I was permanantly in hypo, anything below 5 made me feel so weak. I promise you you'll get used to it, and it won't feel so bad to be 4-7. It may just take a few weeks.
As for hypos, don't panic. I went through a phase of haing one virtually every day for a week or so. I would really recommend keeping some kind of diary of when they happen, to recognise if there's any patterns. A usual rule of thumb is, <2-3hours after a meal - you probably need to take less rapid acting insulin with your meals. If they're happening before a meal or at night, your basal likely needs adjusting. Either way, keep in touch with your diabetes nurse, they should help you recognise what needs changing.
For now, keep testing regularly, before every meal and before bed time especially. If you have any questions please feel free to ask, I'm always happy to help :)

I have a question, since you've been with diabetes for a couple of months.. initially, when you were first diagnosed, did you get many headaches and stomach aches? i've been getting them after a pre-lunch snack fir the last couple of days (2/3 days) and I'm unsure if this is normal or not? Also, were you quite active when initially diagnosed? many thanks in advance :)
 
I'm ashamed to admit I don't think at any point in my life could I be classed as "quite active" :/ haha. I intend to change this when life settles a bit though. I do remember getting the odd headache, sometimes I found they'd happen after curing a hypo, though that may just be from the stress of it. They've gone away now. It's early days, and trust me I had tons of symptoms which I would have never known were related which went away within a month of diagnosis. Keep an eye on it, if things start to get worse or you see no improvement in your headaches/stomach aches within a week or two I'd get in touch with your GP or diabetes team
 
Hi, and welcome from me too. You're doing well, you seem to have a really good grasp of the relationship between food and insulin which is amazing for someone so recently diagnosed. And yes, hypos aren't nice but as Mammamia says your body should adjust to being at 'normal' levels again. Becky's advice is really good too. Did you lose weight before you were diagnosed? If you did you may find that once you've regained it and topped up the stores in your liver you'll have more energy, and you may feel less hungry too.

The shaky tiredness is something lots of us get with hypos; one of the ways body's defences against low blood sugars is to release adrenalin, which triggers a surge of glycogen making us ready for 'fight or flight', or sometimes just to sit down and cry which is really embarrassing but better than the 'fight' bit. Luckily increasing familiarity with the ways your own body warns you you're getting low, and with help from your Diabetes team, the hypos and hypo feelings will be much less frequent. Probably less than 2x per week. Glucotabs are easy to carry around to combat them, the simple molecular structure means that glucose is absorbed swiftly, and there are some useful chocolate bars that contain caramel and biscuit - in fact there are lots of yummy treats that are tempting to a low-blood-sugared T1!

It's very very early days for you but it does get better. I'm a golden oldie, diagnosed 45 years ago; I still remember the early days when it was all difficult. Knowledge is key, and you seem to be someone whose going to use the knowledge you're gaining to make it work for you. Before very long you'll be living a full and active life again, and there's very little we T1s can't do!
 
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