Yes that's exactly the case. If we do get enough users with MIDD we'll definitely consider giving you all a section of your own.Yeah, maybe it's to rare to merit it's own topic area, might be worth asking though, just in case.
MIDD is maternally inherited diabetes and deafness, though about a quarter of people with MIDD aren't deaf. It involves insulin insufficiency but not insulin resistance, and almost none of the people who have it are overweight. It's inherited from your mother through mitochondrial DNA.What is MIDD? What are the symptoms? How is it diagnosed? What is the treatment?
Hi,
I've noticed that there is now a new topic area for type 1.5/LADA, which is fantastic!
I was wondering if a similar thing could be organised for MIDD (Mitochondrially Inherited Diabetes and Deafness)?
I was diagnosed with this condition last year and have been feeling very isolated as I've come across only one other person on this forum who also suffers with this condition. I'm not sure if I need to get in touch with a moderator regarding this, so I've posted it in the LADA section as I'm not really sure where I should have posted this!
Anyway, it'd be nice to hear from other diabetics with this condition, although, as I understand it, it's quite rare/not often detected.
Thanks,
Sarah
My daughter was diagnosed a few years ago (at 19 or 20yrs old) and confirmed with MIDD. My son has it too and I had blood test last week to confirm my diagnosis (100% sure already as I have passed it to both my kids). GP needs confirmation before referring for hearing and heart tests. My daughter has had a nightmare getting BG levels under control - now back on insulin 4 times per day. Would be great to hear from others with this condition as so little info out there and dictors/nurses have no experience. Thanks
Dodgygenes - You might get more responses on a thread of your own in the T1 arena, rather than here, which was originally started to to discuss aspects of the forum structure.
If you'd like a new thread of your own, myself or another mod can move your post. Just let us know.
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