new type 1

rarity88

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
was just diagnosed with type 1 diabetes. the only one in the family after being in hospital with ketone issues..

still quite shocked and terrified about what i read about it. like people dont live very long lives with the condition and likely to have heart issues...

i have been put on novorapid and lantus so far and just starter carb counting. what a shock this has been
 

Gabrielle_Tai

Well-Known Member
Messages
185
Type of diabetes
Type 1
Treatment type
Insulin
Hi rarity88, do not worry as long you learn how to control this disease you may even outlive me :) . Can somebody tag him and give him some advice to get started, thank you.
 

librarising

Well-Known Member
Messages
1,116
Type of diabetes
LADA
Treatment type
Insulin
Tagging @daisy1
Welcome rarity ! You've little to worry about with your T1D if you learn to control it. It's more about developing good habits than anything. There are many long-lived T1Ds.
Just keep asking questions if there's anything you want to know.
Geoff
 

slip

Well-Known Member
Messages
3,523
Type of diabetes
Type 1
Treatment type
Insulin
Remember living with T1 is a marathon not a sprint, take baby steps to start with.
 
  • Like
Reactions: mytype1.life

catapillar

Well-Known Member
Messages
3,390
Type of diabetes
Type 1
Treatment type
Insulin
still quite shocked and terrified about what i read about it. like people dont live very long lives with the condition and likely to have heart issues...

If you want to read something useful, get hold of the book "think like a pancreas" it's a good practical guide to the basics of managing type 1.

It's nonsense to say "people don't live very long lives with the condition". Type 1 is currently thought to shave about 10-15 years off your life expectancy, but improvements in type 1 management is really likely to trim down the lost years. In any event, I'm not especially convinced that years 88-100 are the most inviting, so I'm not overly fussed about losing them.
 
  • Like
Reactions: slip

Snapsy

Well-Known Member
Messages
2,552
Type of diabetes
Type 1
Treatment type
Pump
@rarity88 sending hugs. This must all feel really really massive right now, and there's a lot to get your head around, but with the right support and education (great that you're already embarking on carb counting) you will I am sure find things get easier as time goes on, and in time it will all become second nature. Right now I expect your head is spinning! But take one step at a time, be kind to yourself, listen to what people are saying to you, do some reading (I second @catapillar 's advice to read 'Think Like a Pancreas'), and ask lots and lots and LOTS of questions.

There is absolutely no reason for you to not be able to live a long and healthy life. With the right tools (such as blood glucose testing and your new friends Novorapid and Lantus) and the support of a DSN (diabetes specialist nurse) and those around you in your everyday life, you can minimise your risk of any complications and remain healthy. It's hard work, particularly to start with, but I'm sure you've got this! And I'm sure of this because you've taken the step of joining this forum - so you've got access to the support and advice of all of us lot!

There'll be good days, less good days, GREAT days and I'm sorry to say this, in all likelihood some WT*? days. Remember that in diabetes management - as well as in many other things - one size doesn't fit all (as I well know in my experience with trying to buy 'one size fits all' socks for my size 8 feet - WHY ARE LADIES' SOCKS SO BONKERS?!) - so read some posts, ask some questions, test, test, test (yes I know it hurts, yes I know it's boring, yes I know it's WORTH IT) and last but not least please accept a big hug from Snapsy.

:happy:
xxx
 
  • Like
Reactions: Crystalwand

NewTD2

Well-Known Member
Messages
1,563
Type of diabetes
Treatment type
Tablets (oral)
was just diagnosed with type 1 diabetes. the only one in the family after being in hospital with ketone issues..

still quite shocked and terrified about what i read about it. like people dont live very long lives with the condition and likely to have heart issues...

i have been put on novorapid and lantus so far and just starter carb counting. what a shock this has been

Hey do not worry, we’re here to help!
 

TheBigNewt

Well-Known Member
Messages
1,167
Type of diabetes
Type 1
Treatment type
Insulin
I've had Type one for 34 years no problems yet. Lantus and Novorapid too. Painless disease. As my dad said "it's going to be more of a PIA than anything". He was right.
 
  • Like
Reactions: TheMutts

therower

Well-Known Member
Messages
3,922
Type of diabetes
Type 1
Treatment type
Insulin
Hi @rarity88 . Welcome to the forum . Try not to read to much internet information regarding diabetes, stick to the people who actually know and have the condition 24/7. This forum being a very good place to start and stay hopefully.
Look at your diagnosis like this..........
You now have a reason to follow a sensible , controlled and balanced diet. Not many non diabetics do this.
You will find that regular exercise will help tremendously, not just your diabetes but your overall wellbeing.
Hopefully you will have access to regular health checks and expert advice. Not available to a lot of people.
Your life will have focus, yes it's a pain, but " no pain no gain ."
The gain will be a better understanding of yourself and how you function and survive on a day to day basis. This knowledge could quite easily give you a huge advantage over a lot of non diabetics.
Embrace your diabetes, make it your friend, use it to your advantage and you'll live long and be a happy,strong,committed and successful T1.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@rarity88

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it interesting and useful. Ask as many questions as you like and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 259,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Tony337

Well-Known Member
Messages
731
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being on holiday....
Hello there
43 years a type 1 here rapidly approaching 50 years old and fit as a fiddle.......
Yes I've had a few autoimmune complications but nothing that will attract the grim reaper.....lol
If you take in to consideration I started on 1 insulin injection per day and blood test machines were science fiction then you have every chance of reaching a ripe old age!

Have a top Christmas and if theres anything at all I can help you with then just ask.

Tony
 
  • Like
Reactions: TheMutts

Bluey1

Well-Known Member
Messages
429
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
People who try and make Diabetes the centre of the party and poor me, I'm special because I have diabetes now everyone run around after me.
Welcome to one of the most exclusive clubs around. What seems overwhelming, daunting and even terrifying will soon fade. I do know what you are going through as I have been there done that along with a large chunk of the forum here! We are here to help and as a bonus you will get the odd laugh.
 

rarity88

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
thats abit worrying i have been sitting around 17-20 mmol since i got out hospital 2 weeks ago. even adding the corrections to meals carb counted
 

librarising

Well-Known Member
Messages
1,116
Type of diabetes
LADA
Treatment type
Insulin
thats abit worrying i have been sitting around 17-20 mmol since i got out hospital 2 weeks ago. even adding the corrections to meals carb counted
Who's helping you with your dosing ? And any needed adjustments over time ?
It will take a few weeks to get blood sugar down to normal levels.
Geoff
 

Gabrielle_Tai

Well-Known Member
Messages
185
Type of diabetes
Type 1
Treatment type
Insulin
thats abit worrying i have been sitting around 17-20 mmol since i got out hospital 2 weeks ago. even adding the corrections to meals carb counted

Do not worry it took me 3 weeks to normalize my sugar to the range of 5 to 7. But until recently i still spike to 13 and need bolus correction most of the time. But this few days by following a low carbs diet( be warn please be careful when doing low carbs as type 1 since you may need to reduce your basal but still i recommend getting advice from your doctor first ) i seldom see any reading higher than 9.
 
  • Like
Reactions: EllieM

scotteric

Well-Known Member
Messages
312
Type of diabetes
Type 1
Treatment type
Pump
thats abit worrying i have been sitting around 17-20 mmol since i got out hospital 2 weeks ago. even adding the corrections to meals carb counted

Your basal dose probably isn't adequately covering you. What regimen are you on? 2 shots of Levemir per day?
 

rarity88

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
14 lantus at night novorapid carb counted with meals 3 times

1:10g ratio
 
Last edited:

scotteric

Well-Known Member
Messages
312
Type of diabetes
Type 1
Treatment type
Pump
14 lantus at night novorapid carb counted with meals 3 times

1:10g ratio

Have you read about basal testing? You should try that to make sure your basal dose is right. Also for many Lantus doesn't last 24 hours. The dose can be split and taken at morning and night to give better coverage. Levemir is more conducive to this since it lasts around 12 hours in small doses meaning there is little to no overlap if you split it. You could also try Tresiba which lasts up to 42 hours!
 

rarity88

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
Have you read about basal testing? You should try that to make sure your basal dose is right. Also for many Lantus doesn't last 24 hours. The dose can be split and taken at morning and night to give better coverage. Levemir is more conducive to this since it lasts around 12 hours in small doses meaning there is little to no overlap if you split it. You could also try Tresiba which lasts up to 42 hours!
not heard of basal testing, il read up on it later today. going to the diabetic clinic right now heh.

the diabetic nurse told me lantus lasts 24 hours, il mention that one that lasts almost 2 days would be great to inject less. although i know what she will say, "wait till your numbers stabilize and maybe we can look into that" its what i was told when i mentioned a pump and the libre.