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New Type 1

Chris-87

Newbie
Messages
1
Hello everyone, :)

So I was diagnosed last Monday :(

Before I was diagnosed I didn't think there was anything wrong with me, the reason why I went to the doctors was because I noticed I lost weight fast! but I put it down to me chasing my baby that hasn't been walking long. My partner insisted I went.
When I went to the doctors my suger levels was 28, and had ++++ ketone levels. They said some other level was 104. I assume that's what made me lose weight. Got sent straight to a and e.
Had that blood test in my artery
So now I'm taken insulin 4 times a day the 3 rapid one and the long one!

Had my first hypo yesterday. Before I went out my level was 9.1 and walked for 20 minutes then bang!! How and why???

Now I'm scared to leave the house the hospital phone never answers and the nurse at the doctors is miserable and it feels like I'm bugging them!!!

I'm really skinny now and I don't how I can get my self back in to shape!

Any supportive input would be really appreciated !!
 
Welcome to the club.
Undiagnosed diabetes will cause weight loss.
Once your BG start to get under control, your weight should return ... some people complain about that but sounds as if you won't be one of them.
Hypos are scary. Especially the first. However, now you have had one, you know what to expect ... I was afraid of the unknown.

Your insulin regime sounds like the usual. Long acting, basal, to manage the glucose which is dripped from your liver throughout the day and short acting, bolus, to manage the glucose/carbs in your meals.
In the early days expect some tweaking to work out the best doses to suit you; we are all different so it takes a bit of trial and error.
Did you meet with a diabetes team at at the hospital? Typically, the nurse from this team advises on insulin doses: when I was diagnosed, I had daily, then weekly calls with the nurse to check my levels. And she provided her direct number if I needed to contact her any other time.
My local GP and nurses seem to only know about type 2 diabetes.

There is a lot to take on board with a new diagnosis and there will be a few trips (such as your hypo) along the way. Don't panic and don't expect to know everything on day one. It gets easier although I am still learning nearly 15 years later.

I will tag @daisy1 who sends out a "welcome" message.
Bear in mind 90% of people with diabetes have type 2. Whilst everything in daisy's message is interesting and useful, it might not all apply to you. For example, people with type 2 find a low carb diet helps them. Some people with type 1 also find it useful but many others find they manage their diabetes well through insulin ... and eating what they want.

Finally, when diabetes is getting me down and getting in my way, I remember the people in the public eye who have type 1 diabetes. People like Henry Slade, the Exeter Chiefs rugby player, Halle Berry, Theresa May, ... If they can do their job with type 1, I should be able to do mine!
 
hi Crhis as i am on tablets glucophage i do not think i have the same type so my knowledge on that is limeted as on mt own condition as well ie for joining this forum in hope to find some know hough for what is the reason for me sleeping most of the day and some at night i am on an arsenal of medsfor arthritus hp some cardiac meds have a stent due to a heart attack few years ago so i am in hinterland saw my docter yeasterdayand it was a new young docter and after she read my history some changes were made and now i feel like i am sleeping more day time than nights i know this is an essay but want to be clear about it i am 64 male and some overweight and do not eat wright so that my story regards suikersiekte
 
Hi @Chris-87 and welcome to the shonky pancreas club...

Not much to add to what @helensaramay put - other than if you do have another hypo when you’re taking care of your toddler, make sure they’re safe in a cot/playpen/buggy/car seat or whatever, and take care of the hypo. They’ll be fine for the 15-20 minutes or so it takes to get yourself sorted. Little one will be fine, even if they are furious! In the early stages of T1 your pancreas may still splutter into life now and then, it’s called the honeymoon period - so after your walk, it could well have dumped a little insulin into your body on top of what you’d injected, and dropped you a bit low. Make sure you keep glucose (choose your poison - we all use different stuff. Jelly babies, full fat fizzy drinks, glucose tablets and gels - chocolate isn’t great as it’s high fat content slows down the intake of the sugar) on or near younat all times - and around the house too, especially by the bed. That way you don’t risk falling down the stairs if you hypo in the night and need to get to the kitchen!

There’s a dedicated T1 forum too, so have a nose around and you’ll soon learn the ropes. And ask any questions, the answers might not always be relevant to you, but they may help others as well :)
 
Hello @Chris-87 as others have said welcome to the exclusive T1D club :)

Have mooch around, there is plenty of ideas and info to pick up about the condition.

Don't be afraid to go out, it's a bit of a learning curve but shouldn't stop you from doing anything.

If it's any consolation hypos can be scary even when you have T1D for a long time :)
 
Hi Chris, your introduction into this diabetic world sounds exactly like mine, you are sent off from hospital with a demonstration in how to inject insulin and that's about it (considering it will save your life). Please do not panic, it really is a case of trial and error with getting the insulin levels right and as Mel says, there is an added complication in the early days because you may well be still producing some of your own which kicks in pretty much randomly!

NEVER be put off by a moody DN, that is what they are there for, mine actually called me every day for around 10 days and said I could call her at any time in the day. I am assuming they told you to eat 'normally' at this stage so that they can gauge how much insulin you need to balance your food. I had several hypo's in the first weeks and months (in the 2s, 3s and 4s) and every day the DN lowered my insulin units until I was barely on any. (Honeymoon period I am told and I think I am still in it 12 months on because I only require 1 or 2 units of insulin).

Can you tell us how low you went and whether you had any warning? Most of us will be loathe to start going on about the food you ate at this stage because it really is early days but it is crucial to learn how to match insulin to the food you eat, the exercise you do, the stress levels of a baby and more.

With regard to the skinniness, I too was slim but have now settled after 12 months! I am sure that once your regime is sorted you will get to a weight you are happy with. Sorry I can't be more helpful but what I do know is that it is so very hard especially to begin with when you most likely know very little about the mechanics of it all.

My DN dropped my insulin one unit at a time (from 4 per meal, eventually down to 1 per meal and then none) but kept my long lasting (basal insulin, ie the 'background' insulin that keeps you steady during the day - this was tweaked downwards as well). As you can guess, it is all trial and error in the first few months, some would say for life but now, 12 months on I tweak and adjust with ease). x
 
Hi @Chris-87 the weight will come back as your insulin kicks in, allowing you to actually use the energy you eat to fuel your body rather than peeing it out as sugar.
Welcome.
 
@Chris-87

Hello Chris and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it both interesting and useful. Ask as many questions as you need to and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
@Chris-87. Welcome to the forum. Great advice from everyone.
One bit of advice I'll offer is this.....all the medication, diets and gadgetry are great for controlling your diabetes.
Your mindset or positivity call it what you will is key to living with the condition.
Never fear it, it wants you to live in fear.
No point fighting it. It'll still be there tomorrow ready to do battle again.
Respect your diabetes and take measures to control it, but make sure you're the boss.
Embrace it, not easy granted, but use it to inspire you and give you a purpose in life.
There will be times when it all goes belly up, these are the times when you will learn the most.
Some great ,experienced and helpful guys and gals on the forum who will always help.
Don't worry about the weight, give it a few months and you'll be a kick ass T1 diabetic.
 
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