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new type 1

kendod666

Well-Known Member
Messages
51
Location
Merseyside
Hello fellow sufferers :-)

Was diagnosed on the 9th of may with type 1 after being admitted into hospital with DKA (although took around 4hrs in a&e thinking I'd had a stroke!)

Male, 33 and no history in family so total surprise and around a day from coma.

Trying to control it with very low carb diet, very early days.

On novamix 30. Waiting for my follow up clinic appt to get my short acting and very long acting insulin (not really sure what its called).

I am already on anti depressants, anti anxiety meds. And on testosterone replacement as well due to the above.

Getting massive mood swings, really really forgetful and scatty.

More so than usual!! :-)

Signs of neuropathy in my big toe already :-( pins and needles big pains as well.

Managing to keep my glucose around the 4-7, few hypos, few hyper readings.


Just feel very alone at the min.

Thanks for reading.
 
Sorry you're here but welcome to the forum. After reading your post, sounds like you've had a rough time. However, couple of positives there too. Managing to keep your blood glucose levels between 4 & 7 is pretty much spot on. Also, just the fact you've actually been diagnosed. There are many diabetes sufferers here that wait many, many months but still don't know if they're type 1, 2, 1.5 or LADA. At least once diagnosed, you can begin to take control of the condition, rather than the other way around. In the meantime, read lots and ask lots !
Good luck !
 
Hi and welcome, I'm also as type 1. Been on ad's but was recently took off them due to bad side effects which made me more depressed and near suicidal. After a few days off em felt like my old self. This was done with doctors consent. No way am I saying stop them but might be worth seeing your gp just to see if there is a different anti d to the one your on to see of that would help. Take care.

Sent from my GT-S5360 using DCUK Forum mobile app
 
Thanks so much for all the replays so far.

Battled depression and gad (generalised anxiety disorder) for over 8yrs now.

Quite a big link between hormones ie the testosterone treatment I'm on and insulin apparently?

So much to take in.
 
Hi Ken and welcome to the forum :)

Here is the information we give to new members which I hope you will find useful. Ask all the questions you need to and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Having some good results these last few days.

Glucose sitting at 5.5 with very little deviation even after eating only going to 7.4 2 hours later.

Carbs no more than 40g per day, high fat and medium protein.

And have reduced my insulin dose on novamix 30 from 36 units twice per day down to 20 twice.

Still feel very angry and scared about the kidney and heart problems though, worried for the future.
 
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